Search found 1835 matches

by debbluebird
Sat Sep 01, 2018 2:01 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3085

Re: Methadone and Gabapentin no longer working well

I can't take Lyrica, made me suicidal. I don't remember what it did for my legs. I took it several months. Gabapentin helps me with my nerve pain and the spasms I get. Since my RLS and leg spasms come from my back, I think it is time to get another injection in my back. It has been causing me more p...
by debbluebird
Fri Aug 31, 2018 7:50 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3085

Re: Methadone and Gabapentin no longer working well

Well, let's see. I take gabapentin 600 mg, afternoon and evening. Methadone 2.5 mg every 6 hours Mirapex .125 mg. The fifth night I take it again. The first two nights I sleep wonderfully. Oxycodone 2.5 mg on night three and four when mirapex no longer working. I think I need to stop the oxycodone. ...
by debbluebird
Thu Aug 30, 2018 1:14 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 470

Re: Need Sleep

They told me the same thing: get sleep apnea under control and that will improve the RLS. For me I really don't know if it made any difference.
I do recommend small Amy's of the DA with days in between, as stated above.
by debbluebird
Mon Aug 13, 2018 10:22 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1059

Re: weather

My kids left for California today. Will be spending time at the beach, going to a Dodgers base ball game ending with 3 days at Disneyland. Wish I was going too. They need a vacation.
by debbluebird
Mon Aug 13, 2018 7:52 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 1059

Re: weather

We are st 8,100 feet in Colorado. 80 and 90's. It has been warmer this summer, at times. Like Steve said, cools at night, sometimes in the 40's.
I like 60's the best.
by debbluebird
Mon Aug 13, 2018 7:35 am
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 648

Re: What med cocktail works for you??

I started out with one drug. Then over the course of 20 years, I have tried about 20 meds. I slowly stopped them all when I started methadone. Then that didn't work by itself anymore. Started adding drugs again. Right now mine is similar to Steve's. Methadone 2.5 mg every 6 hours to avoid hyper aler...
by debbluebird
Sun Jul 29, 2018 10:26 pm
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 470

Re: Need Sleep

I am now taking 3 meds spread out, at all small doses. It is working for me. Methadone 2.5 mg every 6 hours Gabapentin 600 mg twice a day, 2 pm and 8 pm DA, mirapex .125 mg one every four days 8 pm I am getting loads of sleep finally. 4 to 6 hour stretches, then back to sleep for more after potty br...
by debbluebird
Wed Jul 25, 2018 9:45 pm
Forum: General Topics: RLS/WED
Topic: Camping
Replies: 21
Views: 660

Re: Camping

It sounds like you will be all set. I always had a little port a potty in our tent. I hated walking at night to out houses, in the woods. I wouldn't mind walking outside around the tent though.
by debbluebird
Wed Jul 25, 2018 10:39 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 26
Views: 1531

Re: What Calms You in the Night?

I think that because of all of the meds that I take they have really messed up my ability to fall asleep without them. As I lie here feeling exhausted, my legs are calm and nothing hurts, but I feel like I can't fall asleep. I think that I have become used to the meds making me fall asleep. So many ...
by debbluebird
Wed Jul 25, 2018 9:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Unhappy
Replies: 6
Views: 1727

Re: Unhappy

I like what Betty and Steve posted.
by debbluebird
Fri Jul 20, 2018 8:00 pm
Forum: Physical Treatments
Topic: Training Brain to Release Dopamine earlier
Replies: 11
Views: 1029

Re: Training Brain to Release Dopamine earlier

Doesn't Advil pm have benadryl in it? I didn't look it up. I know some pm meds do. Plus some people need to be careful with kidneys. I can't take it for that reason. I took mirapex for many years. Had problems I didn't realize because of it. Have been off for almost 8 years, but now I am taking lowe...
by debbluebird
Fri Jul 20, 2018 7:51 pm
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 744

Re: The lighter side of WED/RLS

Wonderful! I exercise at night. I never feel like doing it during the day, even though I have the time.
by debbluebird
Sun Jul 01, 2018 7:25 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3085

Re: Methadone and Gabapentin no longer working well

This is very odd. My poor husband can't sleep tonight because of his legs. He is having pain. First it was on the back side of his thighs, now in the back side of the calves. He is sitting in bed, with knees bent, less moving from side to side not together. He says it makes the whole body feel bette...
by debbluebird
Sat Jun 30, 2018 4:51 am
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 52
Views: 3085

Re: Methadone and Gabapentin no longer working well

This has been a strange few days. My husband is sick with shingles. He is very miserable. At times he has been pacing. I realized something, that I live day to day maybe more than some people. I won't know when I will no longer be able to sleep with my current meds. It will just happen. Of course no...
by debbluebird
Thu Jun 28, 2018 11:45 pm
Forum: Physical Treatments
Topic: RLS and Increasing Circulation in Legs
Replies: 32
Views: 6954

Re: RLS and Increasing Circulation in Legs

I have had decreased circulation for over a year now. I can't get the swelling in my legs to be gone. I don't know if this has changed my RLS and spasms.

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