Search found 54 matches

by cmooreinthepines
Wed Dec 19, 2012 6:28 pm
Forum: General Topics: RLS/WED
Topic: Hello friends.
Replies: 3
Views: 524

Hello friends.

Just an update on me..I have found a great Dr!!! Dr. S. Bhat. He is well versed with RLS/WED and asked all the right questions and I highly reccomend him. He is with JFK Hosp. neuroscience in Edison NJ. Well, I am doing much better. My understanding of the medications has helped me ratchet down my e...
by cmooreinthepines
Thu Aug 30, 2012 1:35 pm
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

Update: I have been off Mirapex now for 3 weeks. I did re-try some of previous medications in the interim however whether it be my head or my body, they were not successful for me. My current WED medication is Vicoden 7.5-750, I take it no more than 3 times a day. I sleep at night, up to 5 hours, an...
by cmooreinthepines
Thu Aug 23, 2012 8:58 pm
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

I will do that search. I think I have done it before, but my memory, LOL. Its the strangest thing and when I have mentioned it to Drs, my experience was they wanted to treat it as not part of my WED. Like they did when they gave me anti-depressants along with Mirapex, OUCH! My husband and I think me...
by cmooreinthepines
Thu Aug 23, 2012 7:18 am
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

Thanks all. I appreciate the advice and the support. Because I had little to no meds, I was suffering so and I stepped back and dug through my magic bag of pills, LOL, and took some ropinerole for a few days. This has set me back phyically and mentally and its upsetting because I was doing so well o...
by cmooreinthepines
Wed Aug 22, 2012 5:07 am
Forum: Everything Else...just no RLS/WED!
Topic: What do you collect?
Replies: 8
Views: 3249

Re: What do you collect?

Very crafty and nurturing types here huh? :D
by cmooreinthepines
Wed Aug 22, 2012 5:00 am
Forum: Help for Relationships
Topic: True friends
Replies: 9
Views: 5709

Re: True friends

I was just thinking about this very subject and wanted to post a shout out to all those who stand by us and here was this thread. I am on my second marriage of 11 years now. I was diagnosed about five years ago and I have said it before, I did not realize then the extent to which my life was going t...
by cmooreinthepines
Tue Aug 21, 2012 11:33 pm
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

Thank you : ) GP told me to eat red meat at least 3 X per week to increase iron and find someone who knows about WED. I would have been very happy to take this advice 4 years ago. Soooo frustrated. Working it out. Have a good night and I will try to do the same. Need to try and shut it down. Haven't...
by cmooreinthepines
Tue Aug 21, 2012 4:57 pm
Forum: Prescription Medications
Topic: Blood ferritin serum level documentation?
Replies: 3
Views: 815

Blood ferritin serum level documentation?

Can anyone point me to a credible source, (that is in print or that I could print) that indicates the correct blood ferritin serum level for a person who has RLS/WED? I was just tested and my result was 60. From what I have read, this is okay. I am not seeing any where that the level should be at ab...
by cmooreinthepines
Tue Aug 21, 2012 12:46 pm
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

Feeling like all I do is whine about how $h1TTy I feel. How this is no kind of life. Telling my husband how I have thoughts of being done. I have been looking at photos of my self from about 5 years ago. I am startled by the difference. Where once I was such a giving of heart kind of person and trie...
by cmooreinthepines
Tue Aug 21, 2012 11:33 am
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

Really struggling to keep it together.
by cmooreinthepines
Fri Aug 17, 2012 1:04 am
Forum: General Topics: RLS/WED
Topic: Chat on RLS.org
Replies: 11
Views: 3178

Re: Chat on RLS.org

At the chat room, says 8pm CST time nightly. Anyone else interested in chatting? Let me know.
by cmooreinthepines
Fri Aug 17, 2012 12:53 am
Forum: General Topics: RLS/WED
Topic: Chat on RLS.org
Replies: 11
Views: 3178

Re: Chat on RLS.org

Thank you! Was just wondering. My imeadiate family used to chat weekly, was a cheaper way to stay in touch.
by cmooreinthepines
Tue Aug 14, 2012 7:21 am
Forum: Everything Else...just no RLS/WED!
Topic: What do you collect?
Replies: 8
Views: 3249

What do you collect?

Trying to think of something else to talk about! I collect HANDS....not real ones but figurines. It started years ago when my Sister and I went to an estate sale they had two small vases known as "vase in hand", it is just as it is called. We bought them and it reminds us of each other. Th...
by cmooreinthepines
Tue Aug 14, 2012 6:54 am
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

I was born in 1964, and my parents loved the Beatles...thier music was the sound track of my life growing up. There is a radio program here every Sunday morning that we listen to called "Breakfast with the Beatles" My family never misses it. We make breakfast and dance, sing and smile. Won...
by cmooreinthepines
Mon Aug 13, 2012 8:50 pm
Forum: General Topics: RLS/WED
Topic: Venting on the attitude of my(soon to be former) Drs.
Replies: 79
Views: 13664

Re: Venting on the attitude of my(soon to be former) Drs.

It has been a productive day here in NJ...I am feeling good, so far. :D I made an appointment with the New Jersey Neuroscience Institue in North Jersey where Dr Arthur Walters practiced. He was one of the Drs that Dr B reccomended. Although he is no longer there, I will be seeing someone from the gr...

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