Restless Legs Syndrome (RLS) Discussion Board

Just an update on me..I have found a great Dr!!! Dr. S. Bhat. He is well versed with RLS/WED and asked all the right questions and I highly reccomend him. He is with JFK Hosp. neuroscience in Edison NJ. Well, I am doing much better. My understanding of the medications has helped me ratchet down my e...

Update: I have been off Mirapex now for 3 weeks. I did re-try some of previous medications in the interim however whether it be my head or my body, they were not successful for me. My current WED medication is Vicoden 7.5-750, I take it no more than 3 times a day. I sleep at night, up to 5 hours, an...

I will do that search. I think I have done it before, but my memory, LOL. Its the strangest thing and when I have mentioned it to Drs, my experience was they wanted to treat it as not part of my WED. Like they did when they gave me anti-depressants along with Mirapex, OUCH! My husband and I think me...

Thanks all. I appreciate the advice and the support. Because I had little to no meds, I was suffering so and I stepped back and dug through my magic bag of pills, LOL, and took some ropinerole for a few days. This has set me back phyically and mentally and its upsetting because I was doing so well o...

Very crafty and nurturing types here huh?

I was just thinking about this very subject and wanted to post a shout out to all those who stand by us and here was this thread. I am on my second marriage of 11 years now. I was diagnosed about five years ago and I have said it before, I did not realize then the extent to which my life was going t...

Thank you : ) GP told me to eat red meat at least 3 X per week to increase iron and find someone who knows about WED. I would have been very happy to take this advice 4 years ago. Soooo frustrated. Working it out. Have a good night and I will try to do the same. Need to try and shut it down. Haven't...

Can anyone point me to a credible source, (that is in print or that I could print) that indicates the correct blood ferritin serum level for a person who has RLS/WED? I was just tested and my result was 60. From what I have read, this is okay. I am not seeing any where that the level should be at ab...

Feeling like all I do is whine about how $h1TTy I feel. How this is no kind of life. Telling my husband how I have thoughts of being done. I have been looking at photos of my self from about 5 years ago. I am startled by the difference. Where once I was such a giving of heart kind of person and trie...

Really struggling to keep it together.

At the chat room, says 8pm CST time nightly. Anyone else interested in chatting? Let me know.

Thank you! Was just wondering. My imeadiate family used to chat weekly, was a cheaper way to stay in touch.

Trying to think of something else to talk about! I collect HANDS....not real ones but figurines. It started years ago when my Sister and I went to an estate sale they had two small vases known as "vase in hand", it is just as it is called. We bought them and it reminds us of each other. Th...

I was born in 1964, and my parents loved the Beatles...thier music was the sound track of my life growing up. There is a radio program here every Sunday morning that we listen to called "Breakfast with the Beatles" My family never misses it. We make breakfast and dance, sing and smile. Won...

It has been a productive day here in NJ...I am feeling good, so far. I made an appointment with the New Jersey Neuroscience Institue in North Jersey where Dr Arthur Walters practiced. He was one of the Drs that Dr B reccomended. Although he is no longer there, I will be seeing someone from the group...