Search found 27 matches

by mapleleaf
Sat Oct 14, 2017 5:59 am
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

I totally understand about not wanting to change what you are doing right now with your treatment ....I think this disease is so individualized and each one of us tweaks a med to what fits our needs and if what you are doing works then don't change it...and yes I will keep posting my journey ... sta...
by mapleleaf
Fri Oct 13, 2017 7:09 pm
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

I only know my feritin was 34 which was done 2 weeks ago ... I will be seeing Dr. P. At the end of the month and as about the transferritin....
by mapleleaf
Thu Oct 12, 2017 4:53 pm
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

Hi all ....I received a call from my specialist that I qualify for the iron transfusion program at the Royal Alex Hospital in Edmonton!!!! Yessss! Another answer to prayer!! Thank you Lord!! Now I will wait for them to contact me to set this up. Beth/badnights I suggest your DR. try and contact Dr. ...
by mapleleaf
Tue Oct 10, 2017 3:25 pm
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

Thank you for sharing. I agree with you it should not matter what ferrition levels are at or hemoglobin...You have been diagnosed with RLS and from your history much like mine have tried soooo many meds. which do not help. Lyrica for me was a nightmare( memory loss, wt. gain, irritable) and it took ...
by mapleleaf
Thu Oct 05, 2017 3:37 am
Forum: Physical Treatments
Topic: IV Iron infusions
Replies: 10
Views: 156

Re: IV Iron infusions

I live in Alberta and just heard from my Dr. Yesterday and I can get the Iron infusions now!! Praise the Lord an answer to prayer! I have to get my feritin and hemoglobin done again and depending on where my levels are will depend when I get transfused. It may take as long as 9 months but to me that...
by mapleleaf
Thu Oct 05, 2017 3:37 am
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

I live in Alberta and just heard from my Dr. Yesterday and I can get the Iron infusions now!! Praise the Lord an answer to prayer! I have to get my feritin and hemoglobin done again and depending on where my levels are will depend when I get transfused. It may take as long as 9 months but to me that...
by mapleleaf
Tue Oct 03, 2017 2:12 am
Forum: Physical Treatments
Topic: IV Iron infusions
Replies: 10
Views: 156

Re: IV Iron infusions

Thank u some much Anne!! All of this info is very helpful!
My RLS specialist is trying to present a paper to the head of hemotology in my province to get a go ahead. I am seeing my family Dr. tomm and asking if he can give me the iron infusions.
by mapleleaf
Tue Oct 03, 2017 2:12 am
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

Re: IV Iron infusions

Thank u some much Anne!! All of this info is very helpful!
My RLS specialist is trying to present a paper to the head of hemotology in my province to get a go ahead. I am seeing my family Dr. tomm and asking if he can give me the iron infusions.
by mapleleaf
Fri Sep 29, 2017 12:58 pm
Forum: Physical Treatments
Topic: IV Iron infusions
Replies: 10
Views: 156

IV Iron infusions

Good am all. I live in Canada and see a specialist who is very up on latest meds. and treatments. He was at an RLS convention this past June in the US and now it seems all the RLS specialists are using IV iron infusions to help RLS. I have a severe case and we keep hitting brick walls with the opiod...
by mapleleaf
Fri Sep 29, 2017 12:58 pm
Forum: Prescription Medications
Topic: IV Iron infusions
Replies: 17
Views: 128

IV Iron infusions

Good am all. I live in Canada and see a specialist who is very up on latest meds. and treatments. He was at an RLS convention this past June in the US and now it seems all the RLS specialists are using IV iron infusions to help RLS. I have a severe case and we keep hitting brick walls with the opiod...
by mapleleaf
Wed Apr 13, 2016 11:24 am
Forum: Prescription Medications
Topic: Hormone Replacement Therapy
Replies: 4
Views: 267

Hormone Replacement Therapy

I am 56 yrs old and going through the lovely cycle of menopause and am dealing with all the symptoms of this process. Alot of the symptoms are as bad as the ones I suffer with my OCD (obsessive compulsive disorder) depression, anxiety, mood swings, terrible hot flashes, and symptoms of my RLS like i...
by mapleleaf
Sat Oct 10, 2015 4:59 am
Forum: Prescription Medications
Topic: oxeyneo
Replies: 5
Views: 226

Re: oxeyneo

My dr. has suggested that many times....will just the oxyneo and oxycodon control my legs?
by mapleleaf
Sat Oct 10, 2015 4:56 am
Forum: Prescription Medications
Topic: oxeyneo
Replies: 5
Views: 226

Re: oxeyneo

so the pramaperxeral is the cause...I guess I should ween off of that....and that will be a hard one to ween off right?
by mapleleaf
Fri Oct 09, 2015 6:54 pm
Forum: Prescription Medications
Topic: oxeyneo
Replies: 5
Views: 226

oxeyneo

I have been using oxeyneo the slow release for more than a year . 20mg at 6am and 20mg 6pm... 1.25 of miraprex ....than I started using 5mg oxycodone for breakthrough about 3 times in 24 hrs. My dr. thought I should up the oxyneo to 30mg 2x a day. That eventually also needed breakthrough 5mg oxycodo...
by mapleleaf
Mon Nov 03, 2014 9:58 am
Forum: Prescription Medications
Topic: side effects of short term oxycodone
Replies: 7
Views: 896

Re: side effects of short term oxycodone

I was on 3mg a day at one time of the miraprex and have cut it on half now...this was the minimal amount I could be on......I tried to reduce it to less but my WED was worse....but maybe now its time to consider reducing again since I am on the oxyneo ....thanks for the input , I will seriously cons...

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