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by jul2873
Fri Jun 28, 2019 12:47 pm
Forum: Prescription Medications
Topic: Request for Comments on Opioids
Replies: 0
Views: 74

Request for Comments on Opioids

Joint Meeting of the Drug Safety and Risk Management Advisory Committee and the Anesthetic and Analgesic Drug Products Advisory Committee; Notice of Meeting; Establishment of a Public Docket; Request for Comments

https://www.regulations.gov/docket?D=FDA-2019-N-1646
by jul2873
Wed May 29, 2019 12:47 am
Forum: Prescription Medications
Topic: If you have been denied opioid treatment
Replies: 5
Views: 173

Re: If you have been denied opioid treatment

Actually, I think many of the people in the suit were cut off. Sorry that I didn't describe it accurately.
by jul2873
Tue May 28, 2019 9:25 am
Forum: Prescription Medications
Topic: If you have been denied opioid treatment
Replies: 5
Views: 173

If you have been denied opioid treatment

If you have been denied treatment with opioids, you should check out this link which is a description of a class action suit brought against the government for putting out the regs. that have made opioids unattainable for many suffering people. I think 16 states have joined so far. https://sickofsuf...
by jul2873
Fri May 03, 2019 2:47 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 40
Views: 709

Excellent article on opioids

The New England Journal of Medicine and the CDC have put out articles admitting that the "one size fits all" for prescribing opioids has done immeasurable harm. And the comments after the article have many examples. None for RLS yet. Perhaps someone who has their opioids that were working ...
by jul2873
Tue Apr 09, 2019 5:20 pm
Forum: Prescription Medications
Topic: Gabapentin withdraw symptoms
Replies: 34
Views: 647

Re: Gabapentin withdraw symptoms

Gabapentin didn't work for me, but I did have significant withdrawal symptoms when I gave up on it. Finally I had to taper really slowly--cutting the pills in half, and then in fourths. I may even have had to go to eighths. Can't remember.
by jul2873
Thu Mar 14, 2019 12:13 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Hyland's Restful Legs
Replies: 5
Views: 441

Re: Hyland's Restful Legs

Before my RLS got so bad, I used to use this. It usually helped some. Now that the RLS has gotten much worse it doesn't usually work well at all.
by jul2873
Mon Mar 04, 2019 4:46 pm
Forum: Prescription Medications
Topic: Super interesting connection between opioids and cannabis...
Replies: 13
Views: 347

Re: Super interesting connection between opioids and cannabis...

Yes, very interesting. There is also a considerable body of anecdotes saying that kratom has helped people get off of opioids. And kratom does not make you high.

I'm so glad we have this new research. Maybe, sooner or later, we can com up with good long term treatments for RLS.
by jul2873
Mon Feb 18, 2019 2:38 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 8
Views: 468

Re: Dr. Gundry's supplement

When I first started with kratom I took 1/2 tsp. as needed--usually every 2-4 hours at night sometimes once during the afternoon if I wanted to nap. As the years passed I developed some tolerance, and now take 1 tsp. or maybe a little more instead of 1/2 tsp. I don't keep a careful track. Pretty muc...
by jul2873
Sun Feb 17, 2019 5:42 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 8
Views: 468

Re: Dr. Gundry's supplement

Thanks, Beth. This is very helpful. For some reason, it still seems to be controlling my RLS. I still get a fair amount of pain from the knee replacement, but I am not recognizing any RLS symptoms at the present. But, as I said, I am still taking some kratom for pain relief, so I can't be sure yet. ...
by jul2873
Fri Feb 15, 2019 1:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 8
Views: 468

Dr. Gundry's supplement

I've just had something unexpected happen. I ordered something called Gundry MD Total Restore Gut Lining Support Blend 90 Capsules from Amazon: https://smile.amazon.com/Gundry-Restore-Lining-Support-Capsules/dp/B07G6624KR/ref=sr_1_9?crid=3KKQ7Y3WM8PK5&keywords=gundry+md+total+restore&qid=155...
by jul2873
Fri Jan 11, 2019 3:54 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 382

Re: What DA to take

Thanks, Beth. I appreciate your concern, and that was certainly my original plan. The first two days, while I was taking .25 ms. of ropinirole I was also tapering off of kratom, and my symptoms were covered pretty well. Then I went to .5 ropinirole, with no kratom, and my symptoms weren't covered at...
by jul2873
Tue Jan 08, 2019 6:35 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 382

Re: What DA to take

Thanks to everyone for the good advice. My primary care prescribed ropinirole--.25 ms. once at night for the first two nights, and then .50 at night. So last night I took the .25 pill. The RLS was slightly muted but not gone by any means. So finally I took a little kratom with the idea that legsbest...
by jul2873
Mon Jan 07, 2019 5:03 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 382

Re: What DA to take

Thanks, Steve. I read on some discussion board last night that since kratom affects the mu receptors, you build up a bit of a tolerance to opioids, which an anesthesiologist needs to know about. So I called the clinic doing the surgery and explained my issue to a nurse. She had an anesthesiologist c...
by jul2873
Mon Jan 07, 2019 12:13 am
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 382

What DA to take

I am scheduled for a knee replacement next week, and have been told to stop taking kratom. `I've explained to various medical people (cardiologist, primary care, physical therapist, etc.) that I take it to control the symptoms of RLS and ask what I could take instead of kratom. No one has any idea; ...
by jul2873
Sat Dec 08, 2018 7:12 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 636

Re: Update, Funny but True

Eefall, just a note to say how sorry I am about the estrangement with your son. With me, the good news is that I am very close to my adult children. The bad news is that they understand since both of my daughters (not yet my son) also have RLS, although not yet as bad as mine. They are just about wh...

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