Search found 1494 matches

by EeFall
Mon Oct 07, 2019 6:54 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 725
Views: 51059

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I'm posting this in General Topics: WED/RLS because this topic is about being a surfer and riding the biggest wave in existence. The surfer being a person with severe RLS who has it 24/7 without medication and the struggles of not falling off the wave. The wave being our lives because we arent' jus...
by EeFall
Tue Aug 27, 2019 3:21 am
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 8
Views: 218

Re: Naltrexone for RLS?

Thanks for the info everyone. I see now it would not work at all for my RLS. One good thing happened awhile back as my doc changed my two 2 mg dose to one 4 mg dose which is the same thing but for some reason over $100 a month cheaper. At least it still works for me. I just wish there were not so ma...
by EeFall
Fri Aug 09, 2019 5:28 pm
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 8
Views: 218

Naltrexone for RLS?

As the longtime visitors to this site may remember I have been using Suboxone for RLS for about 7 years now. After taking around 25 other medications that all eventually stopped working either by themselves or several different drugs daily, (a cocktail I think it is referred as). I take 1mg 4 times ...
by EeFall
Mon Mar 25, 2019 7:51 pm
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 211

Re: Anxious

All my other meds stopped working so it is not a big surprise that Suboxone may be messing with me also. I think it has been about 6 years, nothing has lasted that long except Mirapex and of course that became a nightmare.
by EeFall
Thu Mar 21, 2019 3:11 pm
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 211

Re: Anxious

stjohnh, Awesome reply. Thanks for the info. I will look into Injectafer. EeFall, It sounds like you are having panic attacks. AFAIK this is not caused by RLS, but lack of sleep might make it worse. I don't know if Suboxone can cause panic attacks. Best to see your doc and ask if this might be panic...
by EeFall
Thu Mar 21, 2019 2:09 am
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 211

Anxious

I am at home by myself and I was working on this project to create a hummingbird and print it off on a 3D printer. Now I quit doing it as I became anxious, frustrated, my body feels like it is scared and afraid and I feel like yelling and screaming. I don't understand why this is happening other tha...
by EeFall
Wed Feb 20, 2019 3:06 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 694

Re: Update, Funny but True

At work today I forgot to take 9:30 am meds then noon meds. By 1 pm I was hyper and getting a little crazy in the mind. I just can’t miss Suboxone or I get anxious, irritable, paranoid, stressed. Really I can’t put it into words but it is terrible. So then I took both doses and by the time I got hom...
by EeFall
Wed Jan 16, 2019 1:52 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 694

Re: Update, Funny but True

Thank you for your replies. I haven't been on here for awhile. I have now been working for almost 3 weeks. My sleeping is extremely bad. I am lucky to get 3 hours sleep a night, and not all at the same time. I get up for work at 4:45 am. Many nights I will go to bed at 8 or 9 pm and fall asleep for ...
by EeFall
Sun Dec 02, 2018 6:50 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 694

Re: Update, Funny but True

Well done, you wondered how you would manage financially in retirement, just shows we never know what is around the corner. Fortunately if you decide that you prefer to be not working, you now know that you can manage. I wonder if your son was to read some case histories of folks with RLS would he ...
by EeFall
Sun Dec 02, 2018 6:39 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 694

Re: Update, Funny but True

Funny how things like that happen. Glad you received the ridiculous wage! I feel for you regarding your son. It must be heartbreaking for you. Thanks. Looks like I will start work in a little over a week. Sort of a strange Christmas present. I feel like the old guy in the Home Alone movie but their...
by EeFall
Thu Nov 29, 2018 3:00 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 694

Update, Funny but True

So I retired about 1 1/2 years ago and now I have gotten a new job from a company I worked for years ago. I made a point of asking for a ridiculous wage up front so no company would actually hire me as I like not working. They are going to pay me what I wanted. Yikes! Be careful what you wish for I ...
by EeFall
Thu Oct 18, 2018 5:14 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 1427

Re: For Anyone Who Thinks RLS is a Joke

Don’t think cutting down on Suboxone will work, even not taking a quarter of my Suboxone I start freaking out after 4 hours. Oh well.
by EeFall
Mon Oct 15, 2018 4:46 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 1427

Re: For Anyone Who Thinks RLS is a Joke

My appointment with the doctor to continue my prescription for Suboxone was different this time. I had to give a urine sample. I viewed the results online and it was a drug test. I also had to fill out several pages regarding if I were drinking, taking drugs, and mood questions. My sleep doctor said...
by EeFall
Sun Oct 14, 2018 8:04 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 1427

Re: For Anyone Who Thinks RLS is a Joke

You have a point there about falling, I will have to workout a way not to injure myself. I can't even count the number of times I have fallen asleep on my feet and slammed into a wall though, but as one gets older I can see how that could become very dangerous. At one point when I was getting off of...
by EeFall
Sun Oct 14, 2018 7:53 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 15
Views: 1427

Re: For Anyone Who Thinks RLS is a Joke

JimmyLegs44, Exactly what I am talking about and I am happy to hear it is working for you. I've already gotten most all of my relatives hating me and I know it has a lot to do with the Suboxone I take. I took Lyrica also, at one point I was taking 5 medications at the same time for RLS. Augmented on...

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