Search found 1524 matches

by EeFall
Sat Oct 03, 2020 5:17 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

EeFall .... Glad to hear from you and that you are now on Medicare. Good luck. I used my Medicare card for first time today to get a flu shot. Actually the reason I am up and about. I woke up with a really sore left arm that is throbbing and was wondering what the heck it was and realized my wife h...
by EeFall
Thu Oct 01, 2020 5:40 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I’m still kicking. It has been over 3 months since I have been here. One thing that has changed is I’m on Medicare now. A 3 months supply is now sent to me every 3 months and it only costs $12 for 3 months of generic Suboxone. I was paying $140 to $300+ a month for it. Generic does not seem to work ...
by EeFall
Sat Jun 20, 2020 7:00 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I guess I can't say "welcome back" without it sounding bad :D I'm glad you had a month of relatively little grief, and I hope tonight's grief goes away and doesn't return! Half the time I don't know what day it is but then being retired it doesn't really matter :lol: I did sleep 5 1/2 hours last ni...
by EeFall
Sat Jun 20, 2020 7:21 am
Forum: Augmentation
Topic: tomorrow I am going to vent about rls
Replies: 4
Views: 306

Re: tomorrow I am going to vent about rls

I have turned 84 and my legs are worse then ever/ I have no where to go, the doctors know nothing. They just say double the mariapex and I was taking 1.5 three times a day. that is not right. I am getting to the point that I just want to die. I use to be a happy person now all I want to do is feel ...
by EeFall
Sat Jun 20, 2020 7:13 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Wow, very good ! Isn't it amazing to be so ecstatic over one good night. It always feels so good. Then I pray for a second night. Wow, I have been away from this site for a month. My RLS is like tossing dice, you never know if you are going to crap out or get lucky. Let's see, it is past midnight a...
by EeFall
Sat Jun 20, 2020 6:44 am
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 23
Views: 4731

Re: For Anyone Who Thinks RLS is a Joke

Hey EeFall, I just read your first post again and now see your post from April this year that shows, that you were not able to improve your RLS much. Can you make a list with all the drugs & therapies you have tried already? Also regarding this anger thing: so Buprenorphine does stimulate different...
by EeFall
Sat Apr 18, 2020 1:08 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I had a normal nights sleep. I feel like I should be dancing around in circles and shouting YES at the top of my lungs.

:clap: :crazy: :lol:
by EeFall
Sat Apr 18, 2020 12:57 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 23
Views: 4731

Re: For Anyone Who Thinks RLS is a Joke

Why is the alarm going off so early? Sometimes that's about the time I'm able to sleep. Then sleep until noon. I've also thought about what it would be like not to be taking meds. It would be an end of life situation. A person is only able to stay awake for a month before you die. I don't think I'd...
by EeFall
Sun Apr 12, 2020 10:09 am
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 23
Views: 4731

Re: For Anyone Who Thinks RLS is a Joke

Around and around we go - I go round and round and always back to that one main fact, I have this dang severe RLS and its never going to change. I don't want to take meds but I do want to live, if I don't take my meds I'm not really living. The other reality is that we are never static beings. We sp...
by EeFall
Sun Apr 12, 2020 9:21 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

We went to bed after 10 pm this evening and that is when I discovered I had forgotten to take my 8 pm dose of buprenorphine (Suboxone). By then I was already getting restless so said goodnight to my wife and went back to the living room. It is now 2:20 am yikes. We have Alexa programmed to tell me w...
by EeFall
Sun Apr 12, 2020 9:12 am
Forum: Prescription Medications
Topic: Side effects from all opioids
Replies: 14
Views: 824

Re: Side effects from all opioids

I have taken Suboxone for many years and before that methadone and combinations of other drugs including gabapentin for RLS. Once in awhile I become depressed and take Kratom which works incredibly fast to snap me out of it. Years ago I took Remeron (mirtazapine) which worked too but I had to take i...
by EeFall
Wed Apr 08, 2020 7:49 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

The prescription delivery was free but then the guy who delivered it at the door at about 9 pm was 60 plus years old himself and I could tell he had a hectic day so gave him a $5 tip which he appreciated. I felt for him, he shouldn't be out in the pandemic like that. My mother fell 6 times total and...
by EeFall
Mon Mar 30, 2020 7:01 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I went to bed at 9 pm and woke at 11 pm with RLS symptoms of having to move around and feeling uncomfortable. I just don't get it. Maybe it is like all the other meds that stopped working, maybe buprenorphine is failing too. Mirapex lasted about 6 or 7 years, then I started having problems with it. ...
by EeFall
Sat Mar 28, 2020 12:45 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Polar Bear wrote:I am also building a stash.
Also have a kratom stash in case of world shattering emergency but I still can’t get my mind around this pandemic- it actually happened.
by EeFall
Sat Mar 28, 2020 12:43 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 775
Views: 60931

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I feel so grateful for my stash. you never know what you might be limited. Glad you have one. Maybe this is just a blip. Hopefully. My wife had me go to bed at 6:30 pm last night as had zero sleep night before. I was pretty out of it lol. Woke up after 8.5 hours of sleep and feel awesome so maybe i...