Search found 1502 matches

by EeFall
Thu Jan 23, 2020 7:54 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

So just so I understand it correct: when you are on your normal dose, you don't experience any RLS symptoms? I can almost always feel, that something is terribly wrong with my legs. Yes, since starting on Suboxone about 7 years ago it takes away my RLS feeling. I had to experiment though on dosage ...
by EeFall
Mon Jan 20, 2020 6:24 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Because I am naturally hyperactive and restless the only way I can know for sure that I do still have RLS is if I find I can’t sit down at all. I am now at 3.5 mg rather than 4 mg and still okay but a few years ago I got down to 2 or 2.5 mg until I couldn’t sit or stop moving. I did lower much faste...
by EeFall
Fri Jan 17, 2020 8:50 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I can't hardly believe it but I slept about 7.5 hours last night despite lowing my Buprenorphine by 3/8 mg. Total normal dose is 4 mg. In 2 days I will be starting at 3.5 mg per day. I am trying to keep positive in the hope that RLS has gone away. I am looking forward to a day when I am down to no m...
by EeFall
Tue Jan 14, 2020 10:15 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

debbluebird wrote:
I'm hoping that your RLS has gotten better. I think it's a good experiment. I hope you can decrease the Buprenorphine. You never know unless you try.


I think I got the idea from you years ago to try to get off meds once in awhile to see if RLS has gone away by itself. So far so good.
by EeFall
Tue Jan 14, 2020 10:11 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Basically, as long as you take Buprenorphine, you won't be able to determine how effective Kratom will be for RLS. I see what you mean. Since taking Buprenorphine I no longer get what I would call a high from Kratom but for some reason it makes a bad day good for me. I wonder if there isn’t somethi...
by EeFall
Fri Jan 10, 2020 5:22 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

EeFall, I am very sorry to disappoint but Kratom will most likely not work for you because you are taking Buprenorphine. Buprenorphine partially antagonises opioid receptors since Buprenorphine is a partial agonist / antagonist on the opioid receptors and not a full agonist like almost all other op...
by EeFall
Fri Jan 03, 2020 6:48 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I feel for you. I'm so sorry and like Ann, angry too. I hope you find another way. Thanks guys for your posts, all of you. As it turns out my doctor did transfer the prescription to another pharmacy and I actually purchased it for $40 less and right away rather than waiting to pick it up on the 15t...
by EeFall
Thu Dec 26, 2019 8:11 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

So on Christmas Eve I get a call from sleep doctors office that my pharmacy won’t fill my Suboxone prescription because of some new law about addiction and they said I needed to see some doctor from some list. After several calls my sleep doc agreed to send it to a different pharmacy but I won’t kno...
by EeFall
Mon Oct 07, 2019 6:54 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 743
Views: 52637

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I'm posting this in General Topics: WED/RLS because this topic is about being a surfer and riding the biggest wave in existence. The surfer being a person with severe RLS who has it 24/7 without medication and the struggles of not falling off the wave. The wave being our lives because we arent' jus...
by EeFall
Tue Aug 27, 2019 3:21 am
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 10
Views: 379

Re: Naltrexone for RLS?

Thanks for the info everyone. I see now it would not work at all for my RLS. One good thing happened awhile back as my doc changed my two 2 mg dose to one 4 mg dose which is the same thing but for some reason over $100 a month cheaper. At least it still works for me. I just wish there were not so ma...
by EeFall
Fri Aug 09, 2019 5:28 pm
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 10
Views: 379

Naltrexone for RLS?

As the longtime visitors to this site may remember I have been using Suboxone for RLS for about 7 years now. After taking around 25 other medications that all eventually stopped working either by themselves or several different drugs daily, (a cocktail I think it is referred as). I take 1mg 4 times ...
by EeFall
Mon Mar 25, 2019 7:51 pm
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 355

Re: Anxious

All my other meds stopped working so it is not a big surprise that Suboxone may be messing with me also. I think it has been about 6 years, nothing has lasted that long except Mirapex and of course that became a nightmare.
by EeFall
Thu Mar 21, 2019 3:11 pm
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 355

Re: Anxious

stjohnh, Awesome reply. Thanks for the info. I will look into Injectafer. EeFall, It sounds like you are having panic attacks. AFAIK this is not caused by RLS, but lack of sleep might make it worse. I don't know if Suboxone can cause panic attacks. Best to see your doc and ask if this might be panic...
by EeFall
Thu Mar 21, 2019 2:09 am
Forum: General Topics: RLS/WED
Topic: Anxious
Replies: 8
Views: 355

Anxious

I am at home by myself and I was working on this project to create a hummingbird and print it off on a 3D printer. Now I quit doing it as I became anxious, frustrated, my body feels like it is scared and afraid and I feel like yelling and screaming. I don't understand why this is happening other tha...
by EeFall
Wed Feb 20, 2019 3:06 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 11
Views: 844

Re: Update, Funny but True

At work today I forgot to take 9:30 am meds then noon meds. By 1 pm I was hyper and getting a little crazy in the mind. I just can’t miss Suboxone or I get anxious, irritable, paranoid, stressed. Really I can’t put it into words but it is terrible. So then I took both doses and by the time I got hom...

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