Search found 1473 matches

by EeFall
Thu Jul 12, 2018 5:25 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Oh !! what happy happy joy indeed !! 7 hours sleep. I know that I haven't slept longer than 2 hours at a time, often had no sleep, and never had more that 5 hours fragmented sleep in at least 21 years. I can accurately date at least that far back in my sleep pattern because of a particular event. I...
by EeFall
Mon Jul 09, 2018 12:50 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I did go back up to 4 mg of Suboxone a day and had over 7 hours sleep last night. I had gotten myself down to 3mg about a year ago but I guess it turned out to not be a high enough dose in the long run. Happy happy joy joy :D
by EeFall
Fri Jul 06, 2018 7:52 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

It is strange but when I am yawning like crazy just before going to bed it means I probably won't be able to go to sleep. Last night that happened and I realized that the Suboxone was not working at all. I went and took another 1/3 extra of a 2mg sublingual stripe and ended up pacing for several hou...
by EeFall
Wed Jun 27, 2018 6:09 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

EeFall—I'm glad to hear there are still many things you enjoy in life and hope they continue to outweigh the negatives. I am now reading a book (which is several meditation books) by Marcus Aurelius an Emperor of Rome around the year 170. Even though it is some 1800+ years ago it is amazing how he ...
by EeFall
Thu Jun 21, 2018 6:26 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I’m just happy to be alive and fully retired. I’m sick of apologizing to idiots, even family members, who don’t understand how severe RLS has changed me - there are many things in life I enjoy and I just have to be able to enjoy being me.
by EeFall
Mon Jun 18, 2018 2:02 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Eefall - thank you for telling us how you are, we care how you are. As I write this in is 14.30 my time. I am standing doing a jig from one foot to the other... unable to get on with some paperwork because sitting down is impossible. Perhaps I will do some ironing until these symptoms hopefully set...
by EeFall
Mon Jun 18, 2018 2:00 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I'm so sorry that this awful syndrome has affected your life in such a traumatic way. It is a disastrous syndrome. We can't fully explain how it feels or how it impacts our lives. I have one suggestion and you may have already tried it but here goes. Talk to a licensed psychologist or counselor. We...
by EeFall
Mon Jun 18, 2018 3:13 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Thanks for the note. I am too curious about the universe to kill myself, sometimes I wish I wasn’t but I will ride the wave (life) to the end. It is just that it has turned out to be a lonely beach. At least I can still read, tend the garden, and watch movies. My wife has remained after 43 years, at...
by EeFall
Sun Jun 17, 2018 5:52 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43902

Re: Riding the Big One (RLS 24/7, Hanging Ten)

I created this thread 4 years ago and I have reallly crashed and burned this time. My son has given up on me so I won’t even be able to see my grandkids again. He doesn’t understand how RLS messes with me. I have tried to be normal but I’m not. If I was anymore introverted I would be living in a cav...
by EeFall
Fri May 11, 2018 5:00 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 23261

Re: What Severe RLS is Like

:lol: Since retirement 80% of ebooks and audio I read are downloaded from library, pretty cool and inexpensive. The Library ebooks actually go through amazon kindle. I am reading so much now like 6 books right now and hooked on a comic book series Valerian and Laureline SF. Haven’t read comics since...
by EeFall
Wed May 09, 2018 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom physiology
Replies: 16
Views: 985

Re: Kratom physiology

I take just Suboxone for RLS (after going through practically everything else over many years including methadone). I also take Kratom once in awhile now mostly to snap me out of depressive moods but it also helps my RLS. I keep a large supply that I purchased online in case I can no longer obtain o...
by EeFall
Wed May 09, 2018 6:36 pm
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 17
Views: 679

Re: Recent restrictions on length of opioid prescriptions

I recently went to my YEARLY appointment with my sleep doctor to renew my Suboxone for another year, but because of the pressure being put on doctors (the doctor told me this) he now wants to see me every 6 months to extend my prescription for Suboxone (buprenorphine which is an opioid). I have no i...
by EeFall
Wed May 09, 2018 6:27 pm
Forum: Augmentation
Topic: "drug holiday" from Mirapex
Replies: 14
Views: 719

Re: "drug holiday" from Mirapex

I also took pramipexole for 6 years and it worked really well until augmentation. The mistake I made (and my doctor) was trying to keep using it on and off for several years after that. If I could rewind time I would have called it good after six years and would have never used it again. There are m...
by EeFall
Wed May 09, 2018 6:15 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 23261

Re: What Severe RLS is Like

I see another 5 weeks have gone by since I have been on here. There is all kinds of things I could be doing but mostly work out in the yard getting the plants and yard looking nice. It makes me feel irritated about myself as I have the talent to do many things but apparently not the inclination to a...
by EeFall
Tue Apr 03, 2018 4:05 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 23261

Re: What Severe RLS is Like

Actually my wife found this Cow Thymus medicine and I was over whatever it was in a few days. This is the third time this stuff has worked on me to reduce the effects of getting sick. It worked on my wife even better, she was coming down with it yesterday and is already okay. She has us take it righ...

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