Search found 1459 matches

by EeFall
Tue Apr 03, 2018 4:05 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Actually my wife found this Cow Thymus medicine and I was over whatever it was in a few days. This is the third time this stuff has worked on me to reduce the effects of getting sick. It worked on my wife even better, she was coming down with it yesterday and is already okay. She has us take it righ...
by EeFall
Fri Mar 30, 2018 11:11 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Dang I think I am coming down with flu, I am stopping St John’s Wort in case it is from it. Just took my temperature though and it is up 2 degrees. I sure hope it is not flu as we were having family here for Easter. I may have to just stay in bedroom while they are here. The year before we both got ...
by EeFall
Fri Mar 30, 2018 4:23 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

One thing the 1000mg a day St John’s Wort seems to be doing is taking away my appetite, either that or I am coming down with something. Also seems to make me feel warmer. Not sure if I feel much better but then it could take awhile. I almost never loose my appetite which is strange. 2 nights ago I f...
by EeFall
Tue Mar 27, 2018 4:16 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

I haven't used St John's Wort but have read about it from time to time and am aware that it can cause various interactions with other medications. I dare say you have found these interactions as you have investigated it's use. Please be careful. I will be careful. It may not even do anything but th...
by EeFall
Sun Mar 25, 2018 6:54 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

I investigated the interactions more on web and it says it may lesson strength of Suboxone. I’m going to get some though as I am taking only 75% of my prescription now, so I could take the other 25% if it weakens it. If it takes more than that then I will stop taking St John’s Wort (by the way it ha...
by EeFall
Sun Mar 25, 2018 3:40 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

How about St Johns Wort for depression? I searched on St Johns Wort on here and it does come up a few times but then few people take Suboxone like I do for RLS. Difficult to find anything on web about interactions. I am going to take it unless anyone has some negative feedback on using it. Thanks in...
by EeFall
Sat Mar 24, 2018 7:18 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Not possible to see doc sooner unfortunately.

Interesting thought about which reality is real.

Exercise does help me and have not done much lately, maybe I will work on it lol.

Seems many of us RLS people have depression too, not surprising, take care.
by EeFall
Thu Mar 22, 2018 7:54 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Hey thanks everyone. I am going to a new general practitioner doctor in about a month. Our insurance has changed and so all are doctors are changing. Although I am going to my old sleep doctor, found out yesterday it will be $250 to see him once a year to continue getting Suboxone, not bad. Actually...
by EeFall
Thu Mar 22, 2018 4:49 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Several months have gone by since coming here. I have had a lot on my mind. Extremely sad. Some ways I am really healthy but other ways I feel defeated. Nothing will really get better and I just have to try to live with it. I try to hide out by reading and or listening to audio books. Movies too but...
by EeFall
Sat Jan 06, 2018 8:56 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

We have an Amazon Echo and alarms are set for my meds but even then I shut off alarm sometimes and get distracted. Later I find out the hard way I haven’t taken them lol. I seem to be doing well. I have lost 45 pounds and in 34 waist pants and medium shirts which has not happened in this century :D ...
by EeFall
Sun Dec 17, 2017 7:04 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

I have had vertigo on and off for about 15 years. The first time was the worst - woke up feeling a bit off, rolled over and then fell out of bed from the extreme dizziness. Vomited in the elevator - in a high rise and was trying to get to the hospital - and in the cab (the whole ride). Good heavens...
by EeFall
Mon Dec 11, 2017 6:48 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Could it be inner ear ? Don’t know but I’m okay today. Weirdest physical thing to ever happen to me, thought I must be dying when it happened. Hopefully it will never happen again. Online it mentions crystals moving around within inner ear but have no idea, could have many causes. It was just so fa...
by EeFall
Mon Dec 11, 2017 12:59 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

A new horror happened last night. Laying in bed in a hotel room I turned over and had vertigo like I didn't think would even be possible. It was like I was in a plane going down out of control. I actually started screaming and my wife turned on light. Finally I turned over slowly and while it didn't...
by EeFall
Mon Dec 11, 2017 12:45 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 325
Views: 19833

Re: What Severe RLS is Like

Polar Bear wrote:Thank you Ann.

Yes, sounds like a very caring brother. Amazing really considering all the threads on here where no one ever seems to listen about RLS. He should get an award or something.
by EeFall
Mon Dec 11, 2017 12:34 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 2128

Re: Is it Only Me ?

EeFall, so beautiful where you are. We made brief inroads into Washington State and along the Columbia Gorge when going to the Maryhill Museum of Art. In an afternoon travelling through lush greenery and then having our picnic in near desert conditions in Washington (and noting the watch out for sn...

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