Search found 685 matches

by QyX
Sun Jul 05, 2020 3:17 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin (2nd attempt)
Replies: 9
Views: 739

Re: Melatonin (2nd attempt)

I just said that it is unlikely, not that it doesn't work at all.

Based on everything that we know, Melatonin is a well known RLS trigger, especially in higher doses.

That of course does not mean that it may work for some RLS patients.
by QyX
Sat Jul 04, 2020 10:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin (2nd attempt)
Replies: 9
Views: 739

Re: Melatonin (2nd attempt)

To complete this: now I know why Melatonin (sometimes) works for me. It is because I do have a 2nd chronic sleep disorder called Non-24-Hour Sleep/Wake Disorder or short Non-24 or simply N24. Melatonin and melatonin receptor agonists are one of the most important treatment options for chronic circad...
by QyX
Sat Jul 04, 2020 7:55 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

I've been told by my doctor that there is no risk in lung damage when a proper medical grade vaporiser is used. The way the device works is that it heats up the flowers between 185°C and 215°C and then goes through a small cooling tower, so that the resulting "smoke" is mild and easy to inhalte. Som...
by QyX
Fri Jul 03, 2020 6:14 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

I do have light therapy glasses now. It is a device called "Luminette". Additionally, I think I will get regular glasses that will filter blue lights so that I can control my exposure to blue light as much as possible. Not every non24 case can be treated successfully. It is a minority where treatmen...
by QyX
Thu Jul 02, 2020 5:00 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

So the exact diagnosis would be: "Non-24-Hour Sleep/Wake Disorder or Non-24 or just N24. It is rare, very rare: only 0,03% of the population are affected by this and the overwhelming majority of these people are blind. Here is some more information: https://www.circadiansleepdisorders.org/docs/N24-Q...
by QyX
Tue Jun 30, 2020 7:45 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 40
Views: 1410

Re: I'm finally getting an infusion

Okay, so in this context, I am pretty optimistic that you will be able to solve those problems and take less Hydromorphone once you have started using some Cannabis. In my experience it is quite remarkable in what ways Cannabis can boost the analgesic properties of opioids.
by QyX
Mon Jun 29, 2020 8:27 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

Okay, I have news. I figured it out and sadly, it is bad. But there also is hope. I am also pretty sure that the information I uncovered will also help a lot of other RLS patients, especially those with ADHD / ADD as a comorbidity. Incorporating minor updates (ICSD-3, 2014),[33] the diagnostic crite...
by QyX
Mon Jun 29, 2020 8:02 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 40
Views: 1410

Re: I'm finally getting an infusion

Do these symptoms you are currently experiencing respond to the Hydromorphone? You know, Hydromorphone was the first opioid I took long-term for more than 6 months. Initially I started with Oxycodone and then switched Hydro because Oxy was so stimulating for me and causing insomnia. I found Hydromor...
by QyX
Mon Jun 29, 2020 11:52 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

I roughly use 15 - 20 mg CBD per day. Sometimes I just take it during the day, on other days I split the dose and take some in the afternoon and some at night. The reasons why I use CBD are: it it helps avoiding building up a tolerance against THC, it can improve sleep quality by increasing REM slee...
by QyX
Fri Jun 26, 2020 10:08 am
Forum: Prescription Medications
Topic: Stopping Gabapentin
Replies: 4
Views: 48

Re: Stopping Gabapentin

Why not just take Gabapentin / Horizant again when it worked well for RLS?

Why did you get off it in the first place? Where the drugs prescribed for RLS or some other condition?
by QyX
Tue Jun 23, 2020 2:28 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

So I continue to experience some absolutely bizarre and wild stuff on iron tablets. It now reached a point where I am actually concerned what a potential i.V. infusion would do to me. Here is what happened: Last time I went to the pharmacy I picked up two different kind of iron tablets. The normal, ...
by QyX
Mon Jun 22, 2020 11:56 pm
Forum: Prescription Medications
Topic: Side effects from all opioids
Replies: 14
Views: 569

Re: Side effects from all opioids

7,5 mg of Oxycodone is still such a low dose for RLS. Is it possible to try a higher dose like 10 - 15 to see if your sleep improves? At your current dose, your tolerance is still so low (relatively speaking) that it is not worth creating some complicated rotation system. When you have one drug that...
by QyX
Sat Jun 20, 2020 2:51 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 171
Views: 7344

Re: Cannabis

So I just looked around you can simply order online in Canada. They seem to ship to all addresses within Canada: https://cannabismo.org/ or here: https://greensociety.io/ There are many more but not all of them ship nationwide but there are quite a few who do. So when you have chosen one shop, I cou...
by QyX
Fri Jun 19, 2020 3:56 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 11
Views: 225

Re: Spinal stimulation?

Okay, so regarding iron: the iron deficiency RLS patients have is in the brain / central nervous system. Standard blood tests can't reveal the iron deficiency in the brain nor is there any other method to test for brain iron in a living person. I've had normal iron blood levels all my life and still...
by QyX
Fri Jun 19, 2020 10:33 am
Forum: Augmentation
Topic: tomorrow I am going to vent about rls
Replies: 4
Views: 197

Re: tomorrow I am going to vent about rls

Have you tried Kratom before? You can order it online legally and it kind of works like a medium potent opioid and can offer significant RLS relief until you have a doctor who can prescribe conventional opioids. You are most likely augmenting on the Mirapex. With 1,5 mg, your dose is way too high an...