Search found 82 matches

by srgraves01
Mon Apr 15, 2019 9:25 am
Forum: Augmentation
Topic: Suicidal thoughts
Replies: 14
Views: 372

Re: Suicidal thoughts

I had checked my original comment and saw no additional ones so I quit checking for a while. Thanks for all of your advice and expressions of support. DebBluebird, I am so sorry to hear of your situation. I have found that some of my worst times were when I was taking Lyrica, or Neurontin. Dr. B sai...
by srgraves01
Thu Apr 11, 2019 5:10 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 70
Views: 19286

Re: Wahls diet for WED? Trying it.

Sorry to hear about your difficulties. Somethimes it seems like RLS is an opponent in a chess match. And you make a move that helps you out; then the RLS makes a move that messes you up again. I just saw Dr. B today for the first time and I am very optimistic. I suggest you ask Ann about him. Steve
by srgraves01
Mon Mar 18, 2019 4:52 am
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 9
Views: 919

Re: Very Sad

Sorry, I am kind of late here. But I almost never look at this part of the forum. I would also like to express my condolences for you son in law. Best wishes to you and your family.

Steve
by srgraves01
Sun Mar 10, 2019 5:46 am
Forum: Augmentation
Topic: Suicidal thoughts
Replies: 14
Views: 372

Suicidal thoughts

I listened with great interest to the recorded webinar on Opioids and RLS today. One of the things I found especially interesting was his survey on how people, who I believe have gone through augmentation, were helped by opioids to have a reduction in suicidal thoughts. I think his measure was the n...
by srgraves01
Sun Mar 10, 2019 5:35 am
Forum: Augmentation
Topic: Vibration helped me through the drug holiday
Replies: 5
Views: 403

Re: Vibration helped me through the drug holiday

This is what I use the power plate for. A couple of years ago I took a drug holiday for a month because I was taking Mirapex for the second time; the second time I was also taking hydromorphone. I still use it while taking my medications because they don't completely do the job. Unfortunately, my co...
by srgraves01
Sat Mar 09, 2019 2:49 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: desiccated liver powder
Replies: 9
Views: 468

Re: desiccated liver powder

Sorry, it recommends a glass or stainless steel container. I had to order a stainless steel bucket off of the internet because I didn't have anything that was big enough. I am not sure why plastic is not good enough. But I decided since I paid about $70 for this stuff I should follow their instructi...
by srgraves01
Wed Mar 06, 2019 7:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: desiccated liver powder
Replies: 9
Views: 468

Re: desiccated liver powder

Magnesium chloride can be purchased at https://livingthegoodlifenaturally.com/online-store/ This version comes as a solution. A friend talked me into purchasing this. I have not tried it yet. It recommends using a glass or metal container if soaking your feet. There is a long video on their website ...
by srgraves01
Thu Feb 07, 2019 5:18 am
Forum: Prescription Medications
Topic: Hydrocodone vs. oxycodone
Replies: 4
Views: 111

Re: Hydrocodone vs. oxycodone

I have been taking 15 mg Vicodin daily at 8 pm for 9 years along with .25 of Mirapex to control retractable RLS. I wonder if it would be better to switch to oxycodone to avoid all of the acetominaphin in the Vicodin. Any advice? Or is a different opiate a better choice? Acetaminophen when taken lon...
by srgraves01
Mon Jan 28, 2019 4:18 am
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 12
Views: 477

Re: Is anyone having a successful 'drug free' experience?

I went on a keto diet and I was drug free for about 4 months. But then my symptoms returned. It sounds like you are already eating a keto dinner. I also have used several forms of massage to loosen up tight muscles. I am able to reduce the amount of medication I need because of this.
by srgraves01
Sat Jan 26, 2019 8:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 25
Views: 653

Re: Iron supplementation & Constipation

Polar Bear wrote:I take 150mg codeine daily and have done so for several years. I have never suffered from constipation.
Started iron tablets last week, lets hope they don't be the straw that starts the constipation. I do drink a great deal of water.

Does your codeine come with or without acetaminiphen?
by srgraves01
Thu Jan 24, 2019 8:17 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 10
Views: 484

Re: Nerve Tension

ViewsAskew wrote:
The problem is that we cannot tell if these are some progression or multiple issues occurring. Pain, numbness, and cramps are all things that occur with great frequency without RLS, too. Not saying it isn't, just as I don't think we can say it is.


I agree.
by srgraves01
Thu Jan 24, 2019 8:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 25
Views: 653

Re: Iron supplementation & Constipation

Steve, When you discussed your experience with methadone, I was surprised to see that you took it around noon. My experience with RLS meds is that they are typically taken about 1-3 hours before bedtime. I was thinking of discussing taking methadone with my pain specialist. Is taking methadone this ...
by srgraves01
Thu Jan 24, 2019 8:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 1991

Re: Iron Patches

I have been using the iron patches for a couple of weeks. But I have not had yet had any tests to see what effects they have had on my ferritin in levels. The discussion above seems to be somewhat inconclusive on their efficacy. I would be very interested to know if anyone has taken them and had suc...
by srgraves01
Thu Jan 10, 2019 8:15 pm
Forum: General Topics: RLS/WED
Topic: Characteristics of PLMD/PLMs
Replies: 10
Views: 285

Re: Characteristics of PLMD/PLMs

My wife has told me that for years I would sometimes kick her so she had to put pillows between herself and I (I am grateful for such a patient woman). I also sometimes kick the wall. After augmentation I have had more movements in my hips and back. I remember a post by another member who described ...
by srgraves01
Sat Dec 22, 2018 7:51 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 10
Views: 484

Re: Nerve Tension

Ann, Having multiple disease processes as part of RLS is a real possibility. One other possible way of looking at this is that some of these symptoms occur with a greater progression of the disease. I have had RLS for almost 40 years. I have only had pain in the last 5 years or so. I have only exper...

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