Search found 75 matches

by srgraves01
Thu Feb 07, 2019 5:18 am
Forum: Prescription Medications
Topic: Hydrocodone vs. oxycodone
Replies: 4
Views: 63

Re: Hydrocodone vs. oxycodone

I have been taking 15 mg Vicodin daily at 8 pm for 9 years along with .25 of Mirapex to control retractable RLS. I wonder if it would be better to switch to oxycodone to avoid all of the acetominaphin in the Vicodin. Any advice? Or is a different opiate a better choice? Acetaminophen when taken lon...
by srgraves01
Mon Jan 28, 2019 4:18 am
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 12
Views: 309

Re: Is anyone having a successful 'drug free' experience?

I went on a keto diet and I was drug free for about 4 months. But then my symptoms returned. It sounds like you are already eating a keto dinner. I also have used several forms of massage to loosen up tight muscles. I am able to reduce the amount of medication I need because of this.
by srgraves01
Sat Jan 26, 2019 8:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 25
Views: 581

Re: Iron supplementation & Constipation

Polar Bear wrote:I take 150mg codeine daily and have done so for several years. I have never suffered from constipation.
Started iron tablets last week, lets hope they don't be the straw that starts the constipation. I do drink a great deal of water.

Does your codeine come with or without acetaminiphen?
by srgraves01
Thu Jan 24, 2019 8:17 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 10
Views: 447

Re: Nerve Tension

ViewsAskew wrote:
The problem is that we cannot tell if these are some progression or multiple issues occurring. Pain, numbness, and cramps are all things that occur with great frequency without RLS, too. Not saying it isn't, just as I don't think we can say it is.


I agree.
by srgraves01
Thu Jan 24, 2019 8:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 25
Views: 581

Re: Iron supplementation & Constipation

Steve, When you discussed your experience with methadone, I was surprised to see that you took it around noon. My experience with RLS meds is that they are typically taken about 1-3 hours before bedtime. I was thinking of discussing taking methadone with my pain specialist. Is taking methadone this ...
by srgraves01
Thu Jan 24, 2019 8:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 1916

Re: Iron Patches

I have been using the iron patches for a couple of weeks. But I have not had yet had any tests to see what effects they have had on my ferritin in levels. The discussion above seems to be somewhat inconclusive on their efficacy. I would be very interested to know if anyone has taken them and had suc...
by srgraves01
Thu Jan 10, 2019 8:15 pm
Forum: General Topics: RLS/WED
Topic: Characteristics of PLMD/PLMs
Replies: 10
Views: 277

Re: Characteristics of PLMD/PLMs

My wife has told me that for years I would sometimes kick her so she had to put pillows between herself and I (I am grateful for such a patient woman). I also sometimes kick the wall. After augmentation I have had more movements in my hips and back. I remember a post by another member who described ...
by srgraves01
Sat Dec 22, 2018 7:51 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 10
Views: 447

Re: Nerve Tension

Ann, Having multiple disease processes as part of RLS is a real possibility. One other possible way of looking at this is that some of these symptoms occur with a greater progression of the disease. I have had RLS for almost 40 years. I have only had pain in the last 5 years or so. I have only exper...
by srgraves01
Sat Dec 22, 2018 7:28 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 10
Views: 447

Re: Nerve Tension

But doesn't nerve tension also cause muscle tension? Also, could you explain nerve flossing?

Thanks
by srgraves01
Sat Dec 15, 2018 11:01 pm
Forum: Prescription Medications
Topic: What else should I be trying? I'm at a loss.
Replies: 11
Views: 221

Re: What else should I be trying? I'm at a loss.

I would suggest a strategy of finding two meds and alternate between them. For example find an opioid that works and if Xanax worked for you, you could use that as your second med. Taking one or more drug holidays can help you reduce the dose you need to take. Also try to use other methods such as f...
by srgraves01
Tue Sep 11, 2018 5:58 am
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 865

Re: dipyridamole

Steve, The paper describing the use of dipyridamole used test subjects that had mild RLS. My experience and the experience of Rachel (legsbestill) is that for people with moderate and severe RLS that dipyridamole doesn’t replace the regular medicines that you used to control your symptoms. What it ...
by srgraves01
Mon Sep 10, 2018 11:49 pm
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 865

Re: dipyridamole

stjohnh wrote:Steve, when you are trying the dipyridamole, were you also taking your regular medications, no other medications, partial doses of your medications?


Part of the time I was taking medications and part of the time I was taking a holiday of a couple of days.

Steve
by srgraves01
Mon Sep 10, 2018 8:53 pm
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 865

Re: dipyridamole

.I am sorry to report that dipyridamole had little if any positive effects for me. I started taking 100mg. I experienced the side effects of feeling bad like I was getting sick. This subsided after a.few days and I increased.the dose to 125mg. I again experienced these side effects; but this time th...
by srgraves01
Wed Aug 29, 2018 11:15 pm
Forum: Prescription Medications
Topic: dipyridamole
Replies: 15
Views: 865

Re: dipyridamole

Thanks for all of your encouragement and advice. I was able to get some and took my first dose of 100 mg yesterday. I will let you know how it goes.
by srgraves01
Thu Aug 23, 2018 7:19 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2041

Re: RLS Foundation hosting a Patient Symposium

*egraves01* when I have to be in the one place for a length of time e.g. international flight... I double dose my meds. Not telling anyone else it's the way to go, just that it's what I do. I visualise people standing, sitting while jiggling, walking on the spot etc. and noone will mind. Thanks for...

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