Search found 52 matches

by srgraves01
Thu Feb 01, 2018 8:01 am
Forum: General Topics: RLS/WED
Topic: Ice Cream
Replies: 13
Views: 232

Re: Ice Cream

I believe it is a trigger for me. It is also a weakness. I am not sure if it is the sugar or something else in it. But is seems to make things worse. It is also not good for my weight.
by srgraves01
Thu Feb 01, 2018 7:19 am
Forum: Prescription Medications
Topic: Med resistant RLS
Replies: 21
Views: 1910

Re: Med resistant RLS

by ViewsAskew » Mon Jun 12, 2017 10:33 am srgraves01 wrote: I had the same problem. My wife who is a nurse suggested I consult a pain management specialist. I took some literature from this website to educate them and they have been treating me since then. Hope you can solve your problem. Steve View...
by srgraves01
Thu Feb 01, 2018 7:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: allergy nasal spray question
Replies: 3
Views: 414

Re: allergy nasal spray question

All of those nasal steroids bother me and make my RLS worse. I have tried several, including flonase.
by srgraves01
Sun Jan 28, 2018 1:05 pm
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 9
Views: 178

Re: Mental RLS triggers

Stress or any kind of disruption triggers it for me. If I am uninterrupted, I can sometimes go to sleep. But these disruptions throw me off and it can take a lot of using the foam roller and other techniques to get me back to a place where I can try again.
by srgraves01
Mon Dec 04, 2017 6:26 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 42
Views: 15304

Re: Latest on TENS Unit Use for Nighttime Symptoms

I tried a tens unit a couple of years ago. Perhaps I didn't use it correctly. I had read somewhere that what I should do is place each electrode at the beginning and end of a tight area. This did help some. But the problem was that I have so many tight areas on my legs and hips especially that it wa...
by srgraves01
Tue Nov 21, 2017 10:27 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 306
Views: 16812

Re: What Severe RLS is Like

Hi EeFall, I saw in some of your posts that you sometimes have problems with itching. I also am on suboxone and have itching problems. My wife is a nurse and she said it was probably an allergic reaction. I now take a Claritin about a half hour before the suboxone and the itching is greatly reduced....
by srgraves01
Fri Nov 17, 2017 7:31 pm
Forum: Prescription Medications
Topic: Suboxone mixed results
Replies: 7
Views: 429

Re: Suboxone mixed results

Thanks badnights. Good observation Leggo_my_legs. Going down to half a dose worked. I had some nausea. I had actually been trying to decrease my tolerance for medication by only taking it once a week for about 5 weeks. After another six days I took another half dose and it worked again. So now I nee...
by srgraves01
Thu Nov 09, 2017 3:14 am
Forum: Augmentation
Topic: Augmentation - Delaying the Inevitable?
Replies: 20
Views: 3162

Re: Augmentation - Delaying the Inevitable?

If you want to switch to something, I am not sure Kratom is the best choice. Kratom seems to work like an opioid which works in a similar way to a Dopamine Antagonist. I remember seeing that opioids and DAs worked in a similar way in one of the RLS presentations. To truly get a break I would suggest...
by srgraves01
Thu Nov 09, 2017 1:29 am
Forum: Prescription Medications
Topic: Suboxone mixed results
Replies: 7
Views: 429

Re: Suboxone mixed results

Yes. That is my hope. I want to try to go as long as I can before trying it again. I have been taking it for a little over three months. I had to try different ways of taking it to see what worked best. At first I threw up because I took a pill two days in a row. After that I threw up sometimes in t...
by srgraves01
Wed Nov 08, 2017 8:36 pm
Forum: Physical Treatments
Topic: Power Plate
Replies: 28
Views: 2226

Re: Power Plate

For instructions on how to do an exercise, how to do stretching or how to do a particular position on the power plate, I definitely prefer a video.
by srgraves01
Sat Nov 04, 2017 10:31 pm
Forum: Prescription Medications
Topic: Suboxone mixed results
Replies: 7
Views: 429

Suboxone mixed results

I switched to suboxone 2mg. It has seemed to help the day I take it and the next day. It has a very long half life. But I have to wait a few days before taking it again. I am that way with pretty much any medication -- I get used to them very quickly. I have gradually been having more and more of a ...
by srgraves01
Sat Nov 04, 2017 10:12 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: fresh coconut
Replies: 6
Views: 1530

Re: fresh coconut

I wish I could get access to fresh coconut milk where I live. I have tried the canned coconut milk and it has been helpful. But I have gotten to the point where I can no longer tolerate the taste. I have a strong aversion to it; even the better quality coconut milks are a big struggle to drink. The ...
by srgraves01
Sat Nov 04, 2017 9:54 pm
Forum: General Topics: RLS/WED
Topic: Experimental treatment for Parkinson's disease - stimulating spinal cord
Replies: 4
Views: 404

Re: Experimental treatment for Parkinson's disease - stimulating spinal cord

Previously, Parkinson's was primarily treated in the brain with the deep brain stimulation as you mentioned. This new treatment focuses on the spinal cord. It may be that once signals get to the spinal cord, that some of the differences between different diseases becomes less relevant. It would also...
by srgraves01
Sat Nov 04, 2017 8:25 am
Forum: General Topics: RLS/WED
Topic: Experimental treatment for Parkinson's disease - stimulating spinal cord
Replies: 4
Views: 404

Experimental treatment for Parkinson's disease - stimulating spinal cord

Some new research on Parkinson's disease using experimental treatment using Parkinson's disease uses electrical stimulation to the spinal cord. I found a video that showed some successful treatment in mice. I saw another one a few weeks ago that showed successful treatment in humans but I couldn't f...
by srgraves01
Tue Aug 15, 2017 8:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Sourcing kratom- organic if possible / how to dose
Replies: 14
Views: 2360

Re: Sourcing kratom- organic if possible / how to dose

Kratom did not work for me. It made me agitated. I have gone through augmentation and that may be part of the problem. Morphine does the same thing to me.

Steve

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