Search found 22 matches

by karalea
Tue Jul 14, 2015 8:10 pm
Forum: Prescription Medications
Topic: Botox
Replies: 3
Views: 324

Botox

I am not sure if I am starting this topic in the right place. I had hoped that I would see it as soon as I came to the site since I am holding out a lot of hope for this after having been on just about every medication/combination of medications prescribed for this miserable disease. I have asked my...
by karalea
Thu Nov 14, 2013 3:37 pm
Forum: Prescription Medications
Topic: hearing loss, ringing in the ears, palpitations
Replies: 1
Views: 475

hearing loss, ringing in the ears, palpitations

Just curious as to whether anyone has experienced any symptoms of loss of hearing, ringing in the ears or palpitations related to meds. I have had ringing in my ears and ? decreased hearing. I don't know if is because of the meds or because I am hyper-aware of how my body is functioning because I am...
by karalea
Thu Nov 14, 2013 2:59 pm
Forum: Prescription Medications
Topic: MD's, side effects, venting; warning-long post
Replies: 8
Views: 1167

Re: MD's, side effects, venting; warning-long post

Aveerik, I contacted the physician that has been prescribing me the meds and insisted that he see me. I am starting to taper off the meds and feel a bit better about things. The Oxcarbazapine has been decreased. I am now off the Ketamine and am tapering the Amantadine. My head feels so much clearer ...
by karalea
Tue Nov 12, 2013 4:02 pm
Forum: Prescription Medications
Topic: YAY - We Needed This Study
Replies: 9
Views: 1575

Re: YAY - We Needed This Study

Thanks so much Corrie for posting this! I have an MD apt today and will bring this info to him. I would think he could prescribe the Oxycodone LA (if there is one) and the Naloxone seperately. I wonder of this would work with any of the other LA Opiods if the Oxycodone is not tolerable. It's also gr...
by karalea
Tue Nov 12, 2013 12:43 am
Forum: Prescription Medications
Topic: Taking 8 meds just for RLS and related insomnia
Replies: 22
Views: 2829

Re: Taking 8 meds just for RLS and related insomnia

Thanks everyone for your responses. You have all given me some great advice and support. Sorry that I am delayed in responding. I re-visited again yesterday after not having been on here for awhile. I have been trying to go with the flow and remain positive by distracting myself with other things. Y...
by karalea
Mon Nov 11, 2013 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: RLS and the "New" Genetics
Replies: 2
Views: 2375

Re: RLS and the "New" Genetics

Wow, that is a very interesting article. I will keep up on all the interventions to take for inflammation. Thanks for the link!
by karalea
Mon Nov 11, 2013 5:34 pm
Forum: Prescription Medications
Topic: Daxitrol and Kavinace; urine biochem testing
Replies: 1
Views: 517

Daxitrol and Kavinace; urine biochem testing

I went to a holistic MD in the summer who did urine neuro-chemistry testing on me. I got a call today from his office and was informed that I had chemical abnormalities which I was aware of since I got the results in the mail. I showed the results to my neurologist who did not seem to give much cred...
by karalea
Mon Nov 11, 2013 5:10 pm
Forum: Prescription Medications
Topic: MD's, side effects, venting; warning-long post
Replies: 8
Views: 1167

Re: MD's, side effects, venting; warning-long post

Thanks Polarbear and ViewsAskew for your responses. How depressing to think that my life will be like this from now on. ViewsAskew, I agree with you at this point. I have decided to come off the meds I am on and go back to the Mirapex. I was hoping that my body would adjust and that I could go back ...
by karalea
Mon Nov 11, 2013 2:25 am
Forum: Prescription Medications
Topic: MD's, side effects, venting; warning-long post
Replies: 8
Views: 1167

MD's, side effects, venting; warning-long post

I have written up my long drawn out saga one or 2 times on other threads. Long story short, have had RLS since age of 37, now, 52. Was on Mirapex/Requip for years with gradually increasing doses until I had to stop taking these drugs this past April due to a compulsive eating problem which caused we...
by karalea
Mon Oct 14, 2013 4:05 pm
Forum: Prescription Medications
Topic: Considering the possibility of going back on Mirapex
Replies: 3
Views: 724

Considering the possibility of going back on Mirapex

Hi everyone, I recently posted about the fact that I am taking about 8 meds for RLS. The med regime is working to relieve pain but I find that I get tired very early in the day (around 4pm) and I require very much sleep, including a 2 hour nap. I feel good in the morning if I have had up to 10-13 ho...
by karalea
Mon Oct 14, 2013 3:34 pm
Forum: Prescription Medications
Topic: Is it all in the mind?
Replies: 5
Views: 805

Re: Is it all in the mind?

Wow, Mistral27, you have triggered a very interesting conversation! Despite the fact that RLS has complicated my life in a very miserable way, I find the science behind every disease very fascinating!
by karalea
Thu Oct 03, 2013 5:03 pm
Forum: Prescription Medications
Topic: Taking 8 meds just for RLS and related insomnia
Replies: 22
Views: 2829

Re: Taking 8 meds just for RLS and related insomnia

Thank you Aveerik, Chipmunk and debbluebird for your replies. Aveerik,how long have you been on Suboxone? Do you know whether that would be a problem with someone that has sleep apnea. My Dr says that it is an opiate so he is hesitant to put me on it. I thought it was not an opiate but worked on the...
by karalea
Wed Oct 02, 2013 5:28 pm
Forum: Prescription Medications
Topic: Taking 8 meds just for RLS and related insomnia
Replies: 22
Views: 2829

Re: Taking 8 meds just for RLS and related insomnia

Thank you Views Askew and QyX for the additional thoughts. I am so discouraged and fed up with all the different meds that I have tried especially because it has been within such a short time that I am situationaly depressed and would not even be able to tell if I had a chemically related depression...
by karalea
Tue Oct 01, 2013 2:02 pm
Forum: Prescription Medications
Topic: Taking 8 meds just for RLS and related insomnia
Replies: 22
Views: 2829

Re: Taking 8 meds just for RLS and related insomnia

Thank you everyone for your replies. Let me expand a bit more. I started this whole mess with severe insomnia at about the age of 18. I could go 3 days with maybe 4 hours of sleep all the while being so exhausted I couldn't function. As a result my moods were all over the place. One could easily thi...
by karalea
Tue Oct 01, 2013 3:14 am
Forum: Prescription Medications
Topic: Taking 8 meds just for RLS and related insomnia
Replies: 22
Views: 2829

Taking 8 meds just for RLS and related insomnia

Hello, I need to vent. In April I learned from a new primary care physician that I started going to that the 60lb weight gain that I have experienced over the last few years was related to the increasing doses of Mirapex and Requip that I have taken for many years. The meds caused me to compulsively...

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