Search found 30 matches

by JustKeepWalking82
Thu Sep 08, 2016 12:15 pm
Forum: Just Joined?
Topic: Referred to Stanford
Replies: 27
Views: 3438

Re: Referred to Stanford

I was on Tramadol for RLS for a little over four months. Although I haven't heard anything about augmentation with Tramadol, I do know for certain that it greatly lowers your seizure threshold which makes you much more likely to have seizures. This happened to me with it. I was in a parking lot at t...
by JustKeepWalking82
Thu Sep 08, 2016 12:15 pm
Forum: Prescription Medications
Topic: Dangers of Tramadol
Replies: 6
Views: 1132

Dangers of Tramadol

I was on Tramadol for RLS for a little over four months. Although I haven't heard anything about augmentation with Tramadol, I do know for certain that it greatly lowers your seizure threshold which makes you much more likely to have seizures. This happened to me with it. I was in a parking lot at t...
by JustKeepWalking82
Wed Sep 07, 2016 9:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom is working for me
Replies: 76
Views: 22406

Re: Kratom is working for me

Well, I just ordered some Kratom. I just hope I don't get arrested for purchasing it...
by JustKeepWalking82
Tue Aug 12, 2014 6:04 pm
Forum: Just Joined?
Topic: My Ferritin Levels
Replies: 3
Views: 785

My Ferritin Levels

Okay, I am confused . How in the hell does my ferritin go from 30 last year to 113 this year without taking ANY oral iron supplements and/or iron infusions? My symptoms have improved maybe 20% since last year when I got my ferritin checked last year, although it is hard to tell because my symptoms a...
by JustKeepWalking82
Wed Jul 16, 2014 7:01 am
Forum: Just Joined?
Topic: Am alone here or is there someone else also?
Replies: 14
Views: 2366

Re: Am alone here or is there someone else also?

Do you know what the strength of the Requip is or what the level of your ferritin level is? Unfortunately for me and a lot of others here, finding a doctor who understands WED is not easy. For some it takes years. Some of us have to teach our doctors about the disease and how to treat it, but you ha...
by JustKeepWalking82
Wed Jul 16, 2014 3:54 am
Forum: Just Joined?
Topic: Am alone here or is there someone else also?
Replies: 14
Views: 2366

Re: Am alone here or is there someone else also?

I rub the soles of my feet on my calves sometimes, too. I just saw my new primary care doc who is actually specialized in internal medicine. I augmented on the first dose of Requip, so I unfortunately don't have much experience with it for long term. What dose are you currently on for the Requip? Ha...
by JustKeepWalking82
Sat Jul 12, 2014 2:51 am
Forum: Prescription Medications
Topic: Nucynta cr, Tapentadol Hydrochloride --Anyone tried it?--
Replies: 7
Views: 2056

Re: Nucynta cr, Tapentadol Hydrochloride --Anyone tried it?-

I have been on the Nucynta- both the regular and the extended release. The extended release helped me for almost nine months.
by JustKeepWalking82
Fri Jul 11, 2014 5:33 pm
Forum: Just Joined?
Topic: RLS or FML?
Replies: 29
Views: 5960

Re: RLS or FML?

I am about to go crazy. My neurologist quit all of a sudden on me regarding the opioids and in so few words- myself. He didn't even tell me to my face. He had a nurse do it. My psychiatrist can't see me until the 18th because he was out of town for a week and can't prescribe pain meds, I quit the ca...
by JustKeepWalking82
Mon Jun 16, 2014 2:25 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Poppy seed tea - incredibly effective for me
Replies: 23
Views: 11523

Re: Poppy seed tea - incredibly effective for me

Are the poppy seeds that you drink the same as the ones in say the spice bottles by McCormick and J.R. Watkins? I am thinking about getting the ones in the J.R. Watkins bottle.
by JustKeepWalking82
Mon Aug 26, 2013 4:42 am
Forum: Just Joined?
Topic: RLS or FML?
Replies: 29
Views: 5960

Re: RLS or FML?

And they called to tell me that I was diagnosed with OSA instead of CSA which all of my other doctors say that it sounds like based on my symptoms. Looks like it is another un-hit Whack-a-Mole. Sigh...A company called Pulmonary RX called me as I was on my way to take my mom to get her Midline/Port/P...
by JustKeepWalking82
Sat Aug 24, 2013 5:38 am
Forum: Just Joined?
Topic: I would just like to vent and also ask some questions..
Replies: 15
Views: 2902

Re: I would just like to vent and also ask some questions..

Hi, Newly! Jul is right about staying positive and keep holding on. I am only 21 and have had bouts of RLS since I was about 15-16. Mine is all over my body and I do have to take pain killers for it because I usually have bad side effects from the other drugs for it. To answer your question, I do ha...
by JustKeepWalking82
Thu Aug 22, 2013 3:30 am
Forum: Everything Else...just no RLS!
Topic: Careless
Replies: 23
Views: 6151

Re: Careless

Really?! That sounds awesome! I am about a quarter Irish and have always wanted to visit. How do you like living in Northern Ireland?
by JustKeepWalking82
Thu Aug 22, 2013 3:29 am
Forum: Just Joined?
Topic: RLS or FML?
Replies: 29
Views: 5960

Re: RLS or FML?

Beth, the sleep study did reveal something. I have been experiencing CSA since probably Feb of 2012, but the first sleep study I had (May 2012) didn't show anything (I only got about 3 hours of sleep) except RLS and PLMs (which the neuro didn't even talk about treating. Poop Face.) However, this tim...
by JustKeepWalking82
Thu Aug 22, 2013 3:05 am
Forum: Everything Else...just no RLS!
Topic: Careless
Replies: 23
Views: 6151

Re: Careless

If only I had large feet. I am 21 (my birthday was on the 18th) and wear a 1 and a half in KIDS. I actually went to a shoemaker a couple of years ago in L.A. and got two pair of high heels and a pair of flats for 10,000. They weren't great, but he was reputable (the last customer he saw before me wa...
by JustKeepWalking82
Mon Aug 19, 2013 9:17 am
Forum: Just Joined?
Topic: Nice to find you. I have had RLS for forty five yrs
Replies: 69
Views: 11949

Re: Nice to find you. I have had RLS for forty five yrs

rthom, for books I would suggest The Out-of-Sync Child by Carol Stock Kranowitz. I did a quick search and hers seems to be the best/most reputable of the books concerning sensory defensiveness and sensory disorders. Also, since you still have the characteristics of someone with sensory defensiveness...