Search found 128 matches

by oceanwalker
Fri Jan 10, 2014 8:57 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

hello Rustsmith and ty for your helpful reply. Well I can tell you that I would never ever receive an infusion. Things seem different here in Canada with the docotors. They just don't understand. Honestly I have a good doc but I know an infusion is out of the Q He even stated that 10 is low but 20 i...
by oceanwalker
Fri Jan 10, 2014 8:46 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

okay Sue Sue i have Restful Legs (product)
is this the same as the Calm Legs?? thank you
by oceanwalker
Fri Jan 10, 2014 8:31 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

I have heard of the calm legs Sue Sue and ty I will try it:) Now I just had my iron checked and it's 10 so very very low indeed. I am taking a lot of iron supplements Totally understand the *food binges* Sue Sue I too have these and most depressing . Polar Bear I totally understand your concern. I t...
by oceanwalker
Thu Jan 09, 2014 1:11 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Again ...Thanks Polar Bear! Yes; agreed..occasionally as you stated. Well like I said so far so ok I don't know if I am augmenting. Perhaps?? As I said I do get some WED activity in the late afternoon prior to 6pm (that's when I take my mirapex) and even some activity afterwards. (as it takes time t...
by oceanwalker
Thu Jan 09, 2014 4:49 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

thanks so much Ann:)
by oceanwalker
Thu Jan 09, 2014 2:27 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Hi Beth and thanks for the good luck I believe I need it I am taking 2x300mg of Ferrous Fumarate Iron Yes; lol I noticed *Popeye's spinach* didn't work with me I take 1.5 tablets of the 0.25MG of the mirapex (so that's one and a half tablet I have some WDL's action in the afternoon and some here and...
by oceanwalker
Tue Dec 31, 2013 1:12 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Thank you so very much Polar Bear:-)
Happy New Year to you all!!!
by oceanwalker
Mon Dec 30, 2013 6:16 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Hi Beth... I am unsure if I am augmenting.
So far the 1.5 mirapex is working with the dilaudid, and the rest.

But! i was a t the doc's this am and my ferritin test came back at 10

On iron supplements now
by oceanwalker
Sat Dec 21, 2013 4:06 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Ahh thank you so so much Beth
Thank you all for your information and your input!!!!!!
It's been and still is a tough road.
At this time I am at a standstill but it's ok.
Something will *give* in the near future.
One day at a time.

Sincerely,
OceanWalker
by oceanwalker
Wed Dec 18, 2013 1:43 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Hi Beth I just wondered if you ever received my PM ? Thank You

OceanWalker
by oceanwalker
Mon Dec 16, 2013 1:29 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

aww thank you Beth and thank you Steve and many thanks to all. Again I sit in tears. But! I try and I try (like we all do). I suppose we need to do our parts in this struggle to achieve recognition. I tell ya ..I am kinda down and out over all. But I won't give up and I am so so happy that my doc's ...
by oceanwalker
Sun Dec 15, 2013 4:38 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Hi all and sorry I didn't post sooner..been under the weather. Well the Vancouver based neurologist only specializes in headaches now..np. But my doctor's totally amazing now and is working with me. I take one and a quarter of mirapex coupled with the dilaudid at night and it's working. I do have so...
by oceanwalker
Mon Dec 09, 2013 4:44 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Forgot to state that there's a neurologist I saw many many years ago. A Dr G. Robinson. A no nonscence doctor who many years ago suggested I use a high amount of codeine at night prior to bed. This worked for me for a while. He was the only doctor who seemed sincere and who actually had knowledge of...
by oceanwalker
Mon Dec 09, 2013 4:27 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

I don't know how much to thank you all for this information. The WED's are getting really bad again. I understand what you are saying about the cocktail/combo of meds Polar Bear. I too am taking rivotril,codeine (small amounts) and dilaudid in the evening along with a low dosage of mirapex. Perhaps ...
by oceanwalker
Sun Dec 08, 2013 2:35 pm
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 24482

Re: Need Support

Many Many Thanks Polar Bear and Ann (Viewsaskview) for this pertinent information. I am going to see my doc (primary care giver) tomorrow am. Sure hope he does comply. And again Thank You so so much for everything!! Been looking for hotels/motels/etc around the are. Any suggestions? I so appreciate ...