Restless Legs Syndrome (RLS) Discussion Board

Thanks ALL!! for this feed back;) So, could you please tell me if I just email Dr. B? and then set up the appt.?? Sorry I am so duh in this matter. I live in BC Canada and I believe Dr. B's in California? Thank you all for your help to date. (oh btw I don't have to pay for medical here..only a small...

ahh Yes Polar Bear ty ty thank you!! I did actually go there...but did believe I was wrong. LOL No worries. Yes; I did give my doctor everything. I did not inundate him..but I gave him the information in pamphlet form as given to me from the foundation. I thought instead of printing all the pages of...

oh geez Polar Bear now I am confused?? Where do I find this? Sorry for my ignorance.
(but I had used many different approaches)
I as well gave him all the pamphlets etc and information re: WED/RLS

I totally understand and agree with what you said Polar Bear!! Am starting to get towards the end of my rope..although not quite there yet cos it's not 24/7 yet. No I am not planning on it being...but hmm we shall see. Totally don't understand why some doctors don't understand. It's okay to give add...

OKay I shouldn't be posting in 2 places I apologize. Been Posting in *Nice to Find You I have had RLS for 45 Years* So I will just stick to here in *NEED SUPPORT* Hello...well the flutters are over and the full blown WED/RLS is back at night ... At night and not 24/7 yet. I Pray and Pray it stays aw...

Time has just flown by and I had a good respite from the WED/RLS It's back full blown at night ...but not 24/7 After all the educuation the doctors still don't see it the way we do. I cannot get into a sleep disorder clinic cos I need a referral and due to a W/L of 2 or so years ...there's no hope a...

Hello...well the flutters are over and the full blown WED/RLS is back at night ... At night and not 24/7 yet. I Pray and Pray it stays away.... and yes Beth it is sad that we need to educate everyone but we do!! One of the doctors (who is awesome) after I showed him the information RE: WED/RLS state...

Right and thank you for your input
Sometimes it just happens.
We shall see and I am Praying:)

All the Best:)

Sincerely,
OceanWalker

Well hello there all and I am so so Praying that my respite from WED/RLS is NOT over.. but!!! the past few days I had some flutters and then last night boom the big one. It started.... and I almost cried. But!!! I walked around some and eventually it left. I actually went to sleep. It's been a Bless...

Thank you Ann and so sorry this is soo late. I did not notice it sorry. Again thank you !!! For today ..still in respite with the WED/RLS Taking my mirapex (lowest dose) every day. I Pray to God each and every day for having a WED/RLS holiday. Praying for one more day free of WED/RLS and for everyon...

Thank you so so much Polar Bear.
It's just so so weird that ..that happens when one is ill.
As you stated..you didn't have a hint of WED/RLS for the whole 24 hours.
Take Care and will keep you all posted when I get back ...
Sincerely, Oceanwalker

Hello and Thanks Eefall and Badnights (Beth) Well ... Well..it's been a while since I had posted. Since last month sometime I did become very ill with cold/flu and in the interim NO WED/RLS. I had heard of this before but hmm found it difficult to believe. Now since no activity for a long while I Pr...

That's so so wonderful .
I so wish my doctor would chat with him.
Do I just ask my doctor ? or ? how does this work?
Thanks all !
...Oceanwalker

Hello Beth and Hello Polar Bear... much to perhaps everyone's horror (strong word lol) I did finally give in on trying Mirapex. Just another DA but I do need to give it a try. If this bails...I will again go off of it the same way I did with Ropinirole. I understand once any DA doesn't work...others...

Hello RThom and ty so much for that doctor's name. I will surely look into this this evening. Dear Ann ..yes you are correct! I did this on my own and had NO idea it would take 2-3weeks. Well my doctor's really not up on all of this. I use 2mg dilaudid (short acting) I use 1 at 7am 1 at 12 noon 1 at...