Search found 25 matches

by KDecker1612
Sun Sep 15, 2019 4:12 pm
Forum: Just Joined?
Topic: I've returned!
Replies: 4
Views: 181

Re: I've returned!

Awesome! I'm finding this new way of eating is not as boring as I thought it would be. It's especially rewarding when I make something that my husband also loves. He's lost about 10lbs! I will definitely keep you posted:)
by KDecker1612
Thu Aug 29, 2019 7:47 pm
Forum: Just Joined?
Topic: I've returned!
Replies: 4
Views: 181

I've returned!

Hello everyone. I can't believe it's been two years since I posted! I had a pretty good run with a lessening of symptoms but now it's getting worse again. Some of you might remember, I tried to start a live chat site. Sill wish I could make that work but it's a tough nut to crack. For those who don'...
by KDecker1612
Thu Aug 29, 2019 7:28 pm
Forum: Just Joined?
Topic: How do you hold down a job?
Replies: 15
Views: 521

Re: How do you hold down a job?

I opted to work from home. I am a employee though I do not have benefits. I can work a maximum of 29 hours but I decide when those hours will be. That flexibility is very helpful. I'm poor but at least I am able to keep working. Some weeks it's hard to even get close to 29 hours but usually I get in...
by KDecker1612
Wed Sep 17, 2014 2:43 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1755

Re: WED/RLS Chat Room Now Open!

The chat room is open 24/7. We currently have just 3 of us using it..I hope more of you will check it out. Often there is only one of us on at a time, so it functions similar to a board....but there has been one live conversation. If you'd like to join, just send me a pm with an email address and I ...
by KDecker1612
Tue Aug 26, 2014 6:46 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1755

Re: WED/RLS Chat Room Now Open!

Hi everyone. I know it's hit or miss, but at least it's available. If you are having a rough time, day or night, regardless of what time zone, you can always check in and see if anyone else is logged in. I have been on vacation for 10 days so I haven't been on, but I'm back now and will be checking ...
by KDecker1612
Thu Jul 24, 2014 2:33 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1755

WED/RLS Chat Room Now Open!

Hi all :) I have started a chat room for us. It is not on this site, though that will hopefully be coming in the next few months. In the meantime, I hope you'll visit my chat room! Just let me know you are interested and I will send you an invite. I will respond as quickly as I can, but I can't be o...
by KDecker1612
Fri Jul 18, 2014 12:22 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Re: Chat Room

Views and PB: That sounds great! I can just do the free version if it's only going to be for a few months. I doubt we'd have more than 10 users on at a time anyway, at least not at first. Thanks for the info :) It may take a bit of work to start and monitor it, but I think it's worth it. Have a grea...
by KDecker1612
Thu Jul 17, 2014 5:20 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Re: Chat Room

Ok, I'll check back. Thanks! :D
by KDecker1612
Thu Jul 17, 2014 4:51 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Re: Chat Room

Great! I know you are a moderator. Do I need anyone specific's permission to post the link?
by KDecker1612
Thu Jul 17, 2014 2:33 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Re: Chat Room

Hangouts isn't going to work. If I create a website chat room of my own, will I be able to share the link on here? What I'm envisioning is a sticky topic with the rules and instructions of how to apply to join. I will have a special email set up for it. A user would submit a request, supplying infor...
by KDecker1612
Thu Jul 17, 2014 1:46 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Re: Chat Room

Thanks for the responses! I haven't used Hangouts, but I will look into it. I think it would be a great resource for all of us. You never know when that need to commiserate with someone who truly understands will strike!
by KDecker1612
Wed Jul 16, 2014 1:58 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1213

Chat Room

Hi everyone. I was wondering about the chat room. Apparently it is no longer functioning. Last night when I was trying to find something to focus on to help alleviate my symptoms, I came on here hoping there was a chat room. I resorted to leaving a post on this forum, bemoaning my situation. I'm ver...
by KDecker1612
Wed Jul 16, 2014 1:42 pm
Forum: General Topics: RLS/WED
Topic: Paying for my fun :(
Replies: 4
Views: 724

Re: Paying for my fun :(

Oh, yeah, all those goodies make life more miserable - except sometimes late night sex seems to help. Not always though, it's a crap shoot. Worth the risk though, lol! I finally passed out about 2:30am. Wasn't very happy when I was awakened at 6am. I didn't even hear the alarm, my boyfriend got up a...
by KDecker1612
Wed Jul 16, 2014 5:38 am
Forum: General Topics: RLS/WED
Topic: Paying for my fun :(
Replies: 4
Views: 724

Paying for my fun :(

Went out tonight to a nice mexican restaurant, had a wonderful dinner and excellent conversation with friends. I indulged in a margarita. I'm paying for it now, awake at 1:30am with jumpy legs. Sigh. Can't get away with one little drink and a couple of hours sitting down. Stupid legs!!!!! Ok, rant o...
by KDecker1612
Wed Jul 09, 2014 5:56 pm
Forum: Just Joined?
Topic: Severe RLS/WED for over 20 years
Replies: 3
Views: 662

Re: Severe RLS/WED for over 20 years

Thanks for the advice! I have an appointment with my doctor today and have printed out a bunch of information from the member's only site. I had a fasting blooddraw about a month ago, I'll ask if my ferritin levels were checked. I shudder at the thought of going off the pramipexole, but realize I ma...

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