Search found 22 matches

by KDecker1612
Wed Sep 17, 2014 2:43 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1718

Re: WED/RLS Chat Room Now Open!

The chat room is open 24/7. We currently have just 3 of us using it..I hope more of you will check it out. Often there is only one of us on at a time, so it functions similar to a board....but there has been one live conversation. If you'd like to join, just send me a pm with an email address and I ...
by KDecker1612
Tue Aug 26, 2014 6:46 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1718

Re: WED/RLS Chat Room Now Open!

Hi everyone. I know it's hit or miss, but at least it's available. If you are having a rough time, day or night, regardless of what time zone, you can always check in and see if anyone else is logged in. I have been on vacation for 10 days so I haven't been on, but I'm back now and will be checking ...
by KDecker1612
Thu Jul 24, 2014 2:33 pm
Forum: General Topics: RLS/WED
Topic: WED/RLS Chat Room Now Open!
Replies: 12
Views: 1718

WED/RLS Chat Room Now Open!

Hi all :) I have started a chat room for us. It is not on this site, though that will hopefully be coming in the next few months. In the meantime, I hope you'll visit my chat room! Just let me know you are interested and I will send you an invite. I will respond as quickly as I can, but I can't be o...
by KDecker1612
Fri Jul 18, 2014 12:22 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Re: Chat Room

Views and PB: That sounds great! I can just do the free version if it's only going to be for a few months. I doubt we'd have more than 10 users on at a time anyway, at least not at first. Thanks for the info :) It may take a bit of work to start and monitor it, but I think it's worth it. Have a grea...
by KDecker1612
Thu Jul 17, 2014 5:20 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Re: Chat Room

Ok, I'll check back. Thanks! :D
by KDecker1612
Thu Jul 17, 2014 4:51 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Re: Chat Room

Great! I know you are a moderator. Do I need anyone specific's permission to post the link?
by KDecker1612
Thu Jul 17, 2014 2:33 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Re: Chat Room

Hangouts isn't going to work. If I create a website chat room of my own, will I be able to share the link on here? What I'm envisioning is a sticky topic with the rules and instructions of how to apply to join. I will have a special email set up for it. A user would submit a request, supplying infor...
by KDecker1612
Thu Jul 17, 2014 1:46 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Re: Chat Room

Thanks for the responses! I haven't used Hangouts, but I will look into it. I think it would be a great resource for all of us. You never know when that need to commiserate with someone who truly understands will strike!
by KDecker1612
Wed Jul 16, 2014 1:58 pm
Forum: General Topics: RLS/WED
Topic: Chat Room
Replies: 12
Views: 1173

Chat Room

Hi everyone. I was wondering about the chat room. Apparently it is no longer functioning. Last night when I was trying to find something to focus on to help alleviate my symptoms, I came on here hoping there was a chat room. I resorted to leaving a post on this forum, bemoaning my situation. I'm ver...
by KDecker1612
Wed Jul 16, 2014 1:42 pm
Forum: General Topics: RLS/WED
Topic: Paying for my fun :(
Replies: 4
Views: 704

Re: Paying for my fun :(

Oh, yeah, all those goodies make life more miserable - except sometimes late night sex seems to help. Not always though, it's a crap shoot. Worth the risk though, lol! I finally passed out about 2:30am. Wasn't very happy when I was awakened at 6am. I didn't even hear the alarm, my boyfriend got up a...
by KDecker1612
Wed Jul 16, 2014 5:38 am
Forum: General Topics: RLS/WED
Topic: Paying for my fun :(
Replies: 4
Views: 704

Paying for my fun :(

Went out tonight to a nice mexican restaurant, had a wonderful dinner and excellent conversation with friends. I indulged in a margarita. I'm paying for it now, awake at 1:30am with jumpy legs. Sigh. Can't get away with one little drink and a couple of hours sitting down. Stupid legs!!!!! Ok, rant o...
by KDecker1612
Wed Jul 09, 2014 5:56 pm
Forum: Just Joined?
Topic: Severe RLS/WED for over 20 years
Replies: 3
Views: 646

Re: Severe RLS/WED for over 20 years

Thanks for the advice! I have an appointment with my doctor today and have printed out a bunch of information from the member's only site. I had a fasting blooddraw about a month ago, I'll ask if my ferritin levels were checked. I shudder at the thought of going off the pramipexole, but realize I ma...
by KDecker1612
Wed Jul 09, 2014 12:56 pm
Forum: Just Joined?
Topic: Severe RLS/WED for over 20 years
Replies: 3
Views: 646

Severe RLS/WED for over 20 years

I was diagnosed in my mid 20's. My doctor sent me to a sleep specialist who prescribed Mirapex. It was miraculous! The miracle lasted for years for me, though I was gradually increasing my dose. By the time I hit my late 30's, I was at maximum dose of Mirapex, taking 1800mg gabapentin and Klonopin (...
by KDecker1612
Wed Jul 09, 2014 12:29 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 18867

Re: Newly Approved Device - available in US

I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only f...
by KDecker1612
Tue Jul 08, 2014 1:41 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 18867

Re: Newly Approved Device - available in US

I am in the severe category and it would not work for me. Using a vibrating massager anywhere on me can trigger my legs. I've often dreamed of a device that could provide a deep muscle massage - it would have the large balls inside that rotate and press into the muscle, like a massage chair, only fo...

Go to advanced search