Search found 1873 matches

by Rustsmith
Wed Sep 20, 2017 11:24 pm
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to randolfrls

Wednesday, September 20 Welcome to randolfrls, who has had RLS for about 30 years, but in the last 5, it has become much worse and is negatively impacting life in every way - work, personal, health, diet, etc. He has been trying various drugs: mirapex, gabapentin, tramadol, lyrica... but always augm...
by Rustsmith
Tue Sep 19, 2017 1:14 pm
Forum: General Topics: RLS/WED
Topic: Hyper Alertness
Replies: 15
Views: 49

Re: Hyper Alertness

My doctor suggested that I take the methadone earlier in the day so that the alertness issue has faded prior to bedtime, so I take it at lunch. The long half life of methadone insures that it is still working on my RLS movements at bedtime, but that initial alert period has faded by then. Of course,...
by Rustsmith
Mon Sep 18, 2017 7:08 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 38
Views: 4120

Re: RLS, Depression and Anti-depressants

Last year after I recovered from my deep, near suicidal, depression, my RLS doctor chewed me out for not going to the ER to get help. When I told her that if I had, they would have given my an anti-depressant that would have put my RLS into overdrive. I will always remember her reply, "better t...
by Rustsmith
Mon Sep 18, 2017 7:03 pm
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 21
Views: 111

Re: Moving Mayhem

As a runner, plantars is a near constant companion. The only thing I ever found that provided help was a splint that I would wear at night. The idea was that if you could keep the foot from dropping while you sleep, that the tendon heals in the normal walking position and therefore doesn't get re-in...
by Rustsmith
Mon Sep 18, 2017 12:54 pm
Forum: Prescription Medications
Topic: lorazepam and RLS
Replies: 11
Views: 82

Re: lorazepam and RLS

The only one of the classical anti-depressants that is RLS friendly is bupropion (Wellbutrin). However, even the RLS experts agree that it is better to treat the depression first and have you walking around all night with severe RLS than to have a seriously depressed patient with your RLS under cont...
by Rustsmith
Thu Sep 14, 2017 4:19 pm
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to Coco-Cola Man

Thursday, September 14

Welcome to

Coca-Cola Man, who has lived with RLS many years and has been on several different meds.

We look forward to hearing from you about you different meds and you experiences with managing your RLS.
by Rustsmith
Thu Sep 14, 2017 3:53 pm
Forum: Help for Relationships
Topic: Lonliness
Replies: 90
Views: 13051

Re: Lonliness

PB, one of my hobbies is genealogy and my personal family lines include both highland Scots and what is called Scots-Irish in the US and Ulster Scots in the UK. The Scots-Irish had a huge impact on shaping the US. After the American Revolution, a British officer reported to Parliament that it wasn't...
by Rustsmith
Thu Sep 14, 2017 12:36 pm
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to rp77

Thursday, September 14

Welcome to

rp77, who has suffered from extreme sleep deprivation and struggles to find a medication that works and has acceptable side effects.

Please post a note telling us a bit about your RLS and the medications that you have tried.
by Rustsmith
Wed Sep 13, 2017 6:01 pm
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to Ari

Wednesday, September 13 Welcome to Ari, whose RLS has been the worst affliction of his life! For 23 years his legs have felt like ants are crawling inside them. Luckily, he now has a nurse practitioner who also has RLS and they collaborate on it well. You cannot understand how lucky you are to have ...
by Rustsmith
Wed Sep 13, 2017 1:04 pm
Forum: Augmentation
Topic: Getting off of Requip due to augmentation
Replies: 22
Views: 200

Re: Getting off of Requip due to augmentation

Ladyslider, if you are a member of the Foundation, their latest magazine "Nightwalkers" has an excellent article titled "RLS Patients Must Continue to Have Access to Opioids". It would be an excellent thing to share with your doctor if her concerns are limited to issues of causin...
by Rustsmith
Wed Sep 13, 2017 2:32 am
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to Corinne

Tuesday, September 12 Welcome to Corinne, who has had RLS since a very young and as she is getting older it seems to be worse. It's painful, she can't sleep and is on 2 medications Unfortunately, most of us experience a worsening of symptoms with age. Please post a note telling us about you meds and...
by Rustsmith
Wed Sep 13, 2017 2:30 am
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to Laura W

Tuesday, September 12

Welcome to

Laura W, who has gleaned so much helpful information about WED and may have some comments or questions about her experiences with WED.

We look forward to seeing your post with your comments and questions.
by Rustsmith
Tue Sep 12, 2017 2:46 pm
Forum: General Topics: RLS/WED
Topic: Neupro patch map
Replies: 1
Views: 46

Re: Neupro patch map

I used the patch for 15 months, until I augmented on it. My experience was a bit different in that I found that it caused irritation at most spots on my torso but not on my arms and legs. I used a modification of the manufacturer's suggested application map where I simply deleted the spots on my sto...
by Rustsmith
Tue Sep 12, 2017 2:38 pm
Forum: Just Joined?
Topic: SEPTEMBER 2017 - NEW MEMBERS
Replies: 20
Views: 270

Welcome to skeezecks02

Tuesday, September 12 Welcome to skeezecks02, who has had RLS for skeezzecks02's entire life. skeezeck01used to take quinine sulfate decades ago and that has worked the best, has caused bruised legs trying to pound out the spasm and wonders if others do the same. Pounding on legs is a common practic...
by Rustsmith
Mon Sep 11, 2017 7:45 pm
Forum: Augmentation
Topic: Seeking sleep months after going off Mirapex
Replies: 10
Views: 151

Re: Seeking sleep months after going off Mirapex

Part of the reason why we moved to Colorado was so that both my wife and I could get access to MMJ. She has MS and we had been closely watching all of the research in the UK that involved the evaluation of Sativex for MS patients. When we came for a visit the first time, one of our first stops was a...

Go to advanced search