Search found 3047 matches

by Rustsmith
Wed Apr 24, 2019 10:05 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Rosemary

Wednesday, April 24 Welcome to Rosemary, whose husband has RLS. He has tried many different things to help but nothing seems to work. He has had it for about 35 years. Please post a note telling us about any medications that he has tried and whether he has had the ferritin levels of his blood checke...
by Rustsmith
Wed Apr 24, 2019 4:33 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to bertolinnc

Wednesday, April 24 Welcome to bertolinnc, who has had RLS for many years, and is taking pramipexole to control it, which works fairly well. However there are some side effects. bertolinnc wants to join this discussion board to learn what other approaches people have used to help reduce symptoms/sid...
by Rustsmith
Wed Apr 24, 2019 1:18 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Cathy469

Wednesday, April 24 Welcome to Cathy469, who has severe restless leg. She can’t find a doctor who can help and doesn’t know what to do. If you will post a note telling us to give us an idea about where you are located, we can offer some suggestions about how you can find a doctor who can help. It ma...
by Rustsmith
Wed Apr 24, 2019 1:14 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to LollyG

Wednesday, April 24

Welcome to

LollyG, whose RLS effects mobility, sleep, moods and life.

Please post a note telling us what you are doing to manage your RLS and a bit about the severity of your symptoms. We would love to be able to help you improve your sleep, moods and life.
by Rustsmith
Wed Apr 24, 2019 1:11 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Amro

Wednesday, April 24 Welcome to Amro, who has severed PLMD and Amro's young child also has PLMD. This condition has caused considerable suffering and seems to have gotten worse with age (or on medication!). It's good to find a forum where other people understand the impact of RLS/PLMD on one's life. ...
by Rustsmith
Mon Apr 22, 2019 5:58 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to woodyw

Monday, April 22 Welcome to woodyw, who because of the involuntary movement of his legs and whole body, has insomnia, getting maybe 2-3 hrs. sleep a night. He takes a dopamine medication plus gabapentin which doesn't calm things down enough to fall asleep, so he is a night walker and exhausted durin...
by Rustsmith
Mon Apr 22, 2019 2:10 am
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Monnie

Sunday, April 21 Welcome to Monnie, who needs advice because RLS is getting worse and is therefore exhausted through lack of sleep. Please post a note telling us what you are currently doing to manage your symptoms (including the dose) so that we can offer you some specific suggestions to get more s...
by Rustsmith
Sun Apr 21, 2019 5:57 pm
Forum: Just Joined?
Topic: I'm new here!
Replies: 6
Views: 65

Re: I'm new here!

brossman, my story is very similar to yours, including all the failed medications and avoiding Lyrica. I augmented on pramipexole (at 0.5mg), then on Neupro (hit 4mg) and was put back onto pramipexole with permission to increase up to 1mg/day because I was in the process of moving and my doctor didn...
by Rustsmith
Sat Apr 20, 2019 7:03 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to brossman

Saturday, April 20 Welcome to brossman, who has had severe augmentation and impulse control disorder on pramipexole and is having difficulty weaning off of it onto a new medication. Please post a note telling about the dose of pramipexole that you are currently on as well as the new medication. Most...
by Rustsmith
Fri Apr 19, 2019 11:12 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 8
Views: 137

Re: Opiate (Methadone) & Sleep Quality

Did you notice any changes in the quality of your sleep after modifying the timing? Or, was it that you were able to fall asleep faster? My issue when I took it in the evening was that I wasn't going to fall asleep for many hours. I was wide awake at bedtime and going to bed at that time was only g...
by Rustsmith
Fri Apr 19, 2019 9:37 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Mozonious

Friday, April 19

Welcome to

Mozonious, who doesn’t sleep much and can’t sit and relax except during the day, so she is miserable.

Please post a note telling us what you are doing to manage your symptoms. We can probably offer some suggestions to improve your sleep and relaxation.
by Rustsmith
Fri Apr 19, 2019 4:12 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 13
Views: 92

Re: Foundation Webinar on Co-morbid conditions

Holland, as I indicated, this wouldn't be the first time that I was an outlier. To start, my normal BMI is about 19 and I have an inability to gain weight, not matter my diet. When I was first married, my wife thought that there was something wrong with her cooking because I was always raiding the r...
by Rustsmith
Fri Apr 19, 2019 1:53 pm
Forum: General Topics: RLS/WED
Topic: Foundation Webinar on Co-morbid conditions
Replies: 13
Views: 92

Re: Foundation Webinar on Co-morbid conditions

Holland, in that case, I am one of the really low probability outliers (which wouldn't be the first time). I started out with a ferritin level of 42 and started taking oral iron 3xday. When my ferritin got up to about 150, I dropped back to just 1xday. Over the next several years, my ferritin level ...
by Rustsmith
Thu Apr 18, 2019 11:31 pm
Forum: Just Joined?
Topic: APRIL 2019 - New Members
Replies: 34
Views: 317

Welcome to Kym

Thursday, April 18 Welcome to Kym, who has suffered severe RLS most Kym's life and is currently on 3 prescription meds. Kym is looking for ways to get off of them. If you find a way, please let us know :D. Many of us have severe to very severe RLS and are also on multiple medications. Please post a ...
by Rustsmith
Wed Apr 17, 2019 6:14 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 8
Views: 137

Re: Opiate (Methadone) & Sleep Quality

Several of us here experience a form of opioid induced insomnia that we generally refer to as "alerting". Because methadone has a long half life and only needs to be taken once a day, when I experienced this I changed the time that I would take it from bedtime to lunchtime. That way, the i...

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