Search found 3360 matches

by Rustsmith
Sun Sep 15, 2019 9:40 pm
Forum: Prescription Medications
Topic: Clarify IV Iron recommendation please
Replies: 3
Views: 14

Re: Clarify IV Iron recommendation please

Last question first - the benefits of iron IV's is not permanent. The time they are effective varies between individuals and I suspect some will provide their experience. You can expect many months of help, but not permanent. Also, there are no "cures" for RLS at this point. As for addicti...
by Rustsmith
Sun Sep 15, 2019 3:33 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to veralynj

Sunday, September 15 Welcome to veralynj, whose mother and grandmother had RLS all their lives, currently her siblings and children have it as well. While she takes medication, her symptoms have worsened considerably. She is doing any research she can to help with this issue, since hasn't had a day ...
by Rustsmith
Sun Sep 15, 2019 2:15 pm
Forum: Prescription Medications
Topic: Switching from ropinirole to pramipexole/mirapex Starting dosage?
Replies: 2
Views: 21

Re: Switching from ropinirole to pramipexole/mirapex Starting dosage?

Since you were found you needed 1mg of ropinirole, then you may need to switch to 0.25mg of pramipexole. Both are the max recommended dose for treating RLS, so you should not go any higher with the dose. It might seem to help (assuming no more side effects) but eventually stopping will only be that ...
by Rustsmith
Sun Sep 15, 2019 12:00 am
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to Slanecd

Saturday, September 14

Welcome to

SlaneCD, who has had RLS for a year and it’s awful.

If you will post a note telling us what you are doing for your RLS, we can probably suggest some things that will help.
by Rustsmith
Sat Sep 14, 2019 11:58 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to 24/7RLS

Saturday, September 14 Welcome to 24/6RLS, whose RLS makes it difficult to sit still at work and also to have an active social life. She wakes up with it and has it during the day every day of her life. Please post a note telling us what you are doing to manage your RLS. We may be able to suggest so...
by Rustsmith
Fri Sep 13, 2019 10:54 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

Beth, I am glad that you were able to get the infusion even though it cost a fortune. And the fact that you got the visit with Ann and had the super bike experience makes the trip even better. I have mixed feelings about what to think about whether the infusion helps you. On the one hand, I would re...
by Rustsmith
Fri Sep 13, 2019 10:49 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3912

Re: Attempting to get off Ropinirole - again

I have to agree with all of the comments above. Obviously it isn't good practice to lie or withhold information from your physician. However, if your doctor is so obviously ignorant and you cannot change, then what he doesn't know won't hurt you. Obviously he has no idea of what you have been going ...
by Rustsmith
Fri Sep 13, 2019 1:09 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to MikeS

Friday, September 13 Welcome to MikeS, who suffers from RLS and has questions, and wants to discuss this with others with similar conditions. Please post a note with any questions that you have, and be sure to tell us what you are currently doing to manage your symptoms so that we will know how to f...
by Rustsmith
Thu Sep 12, 2019 8:06 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to cdcff1212

Thursday, September 12 Welcome to cdcff1212, who is looking to learn from others who also suffer. At times cdcff1212 has to try to stand and sleep. It's hard sometimes to work and especially hard to sleep. Please post a note telling us what you are doing (other than standing to sleep) to manage your...
by Rustsmith
Thu Sep 12, 2019 7:44 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to MonkNYC

Thursday, September 12 Welcome to MonkNYC, who says that from what he has read, he doesn't seem to have too serious a case. Apparently he moves about a lot while asleep, but gabapentin has meant that his legs rarely go into spasms while he is awake, the way they used to. Right now he is very curious...
by Rustsmith
Thu Sep 12, 2019 2:54 am
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to dirtfan1

Wednesday, September 11 Welcome to dirtfan1, who hates this condition.....he is severely depressed due to lack of sleep, has no energy during the day and is taking medication that he has become immune to. Please post a note telling us about the medication and your dose. We can possibly suggest some ...
by Rustsmith
Wed Sep 11, 2019 8:53 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to obliv1

Wednesday, September 11

Welcome to

obliv1, who wants to share something that helped with mild RLS.

Please post a note to tell us what has helped you.
by Rustsmith
Wed Sep 11, 2019 7:40 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

yawny, one of the questions that you asked that Holland did not touch on was if the IRLSSG is a reputable group. The answer is an emphatic Yes! The IRLSSG is a group that is made up of the RLS experts and researchers from both the US and Europe. The committee's documents are the consensus findings o...
by Rustsmith
Wed Sep 11, 2019 4:09 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to Adler1966

Wednesday, September 11 Welcome to Adler1966, who has been experiencing RLS for about 6 months now and is attempting to manage it through natural remedies; seeing a NP; acupuncture, CBD oil, amino acids, Epsom salt baths and various sprays and creams. Very uncomfortable sensations, etc. to say the l...
by Rustsmith
Mon Sep 09, 2019 6:42 pm
Forum: Just Joined?
Topic: SEPTEMBER 2019 - New Members
Replies: 14
Views: 184

Welcome to ngt561

Monday, September 9 Welcome to ngt561, who is a young 67 year old female and RLS has ruled her life and what she can do daily for 30+ years. Doctors, friends and family do not understand the exhaustion that comes from dealing with this monster that sneaks into your daily lifestyle, dictating what yo...

Go to advanced search