Search found 3688 matches

by Rustsmith
Wed Apr 01, 2020 6:08 pm
Forum: Just Joined?
Topic: APRIL 2020 - New Members
Replies: 0
Views: 11

APRIL 2020 - New Members

Wednesday, April 1 Welcome to Lf8188, who has suffered with RLS most of Lf's life and in now in the mid 50's and it seems to be getting worse. Lf is experiencing RLS in hands as well as legs and feet. It is a bother all day instead of just in the evening/night like it used to. Lf is hoping to learn ...
by Rustsmith
Mon Mar 30, 2020 9:28 pm
Forum: Just Joined?
Topic: Hello
Replies: 4
Views: 58

Re: Hello

Welcome blueberry0 A ferritin level of 58 is acceptable for the general population but is still rather low for those of us with RLS. The usual recommendations are that your ferritin should be at least 75 and preferably over 100. Increasing iron doesn't help everyone (like myself), but there are a la...
by Rustsmith
Sun Mar 29, 2020 9:18 pm
Forum: General Topics: RLS/WED
Topic: 54 years Dealing with RLS
Replies: 7
Views: 68

Re: 54 years Dealing with RLS

Robin, welcome to the discussion board. I wish that I could say that your story is unusual, but unfortunately it is one that many of us can relate to (except for the professional tennis player part!!). It is great that you finally found a doctor who "gets it" when it comes to treating both...
by Rustsmith
Sun Mar 29, 2020 6:15 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to blueberry0

Sunday, March 29

Welcome to

blueberry0, who started having RLS while dropping an anti depressant. She is trying to find out more info.

Anti-depressants are frequently problems when it comes to RLS. Please post a note telling us about your med so that we can offer you our comments.
by Rustsmith
Sun Mar 29, 2020 1:56 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to jehifiker

Sunday, March 29

Welcome to

jehifiker, whose RLS has caused hyperinsomnia, depression and dopamine agonist withdrawal syndrome.

Please post a note telling us about what you are currently taking to manage your RLS and asking any questions that you have so that we can try to help you out.
by Rustsmith
Sun Mar 29, 2020 1:10 am
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to Sparkler60

Saturday, March 28

Welcome to

Sparkler60, who has a genetic disposition to RLS.

Please post a note telling us about your symptoms and asking any questions that you have.
by Rustsmith
Thu Mar 26, 2020 11:13 pm
Forum: Prescription Medications
Topic: Oxycontin vs Methadone
Replies: 6
Views: 69

Re: Oxycontin vs Methadone

I appear to be very susceptible to side effects for a number of medications, including methadone. I didn't experience depression with methadone, I experienced severe apathy. The apathy didn't happen immediately but probably started growing about a year or more after I started. With apathy, I wasn't ...
by Rustsmith
Thu Mar 26, 2020 9:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin, 5-HTP, GABA &L-Theanine
Replies: 8
Views: 147

Re: Melatonin, 5-HTP, GABA &L-Theanine

But then, I've read somewhere that RLS patients have been incarcerated in psychiatric wards as recently as 50 years ago. It is still happening today. Just before Christmas I went to the ER because that is what my doctor's after hours instructions were. I was having a very bad night and knew that wi...
by Rustsmith
Thu Mar 26, 2020 2:58 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin, 5-HTP, GABA &L-Theanine
Replies: 8
Views: 147

Re: Melatonin, 5-HTP, GABA &L-Theanine

There are some who suggest that GABA can be beneficial for RLS. I tried taking it for a while and didn't find that it did anything one way or the other for me. As I understand it, on paper it might help, but there are many potential roadblocks between taking the pill, getting it through the stomach,...
by Rustsmith
Wed Mar 25, 2020 6:23 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to miuzernaym

Wednesday, March 25 Welcome to miuzernaym, whose RLS is not the only problem that he has been facing, nor has it been deemed the cause of his ongoing EDS. But the EDS that he has been battling with has caused a major downward spiral in all aspects of his life. If you will post a note telling us abou...
by Rustsmith
Wed Mar 25, 2020 2:58 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to davidstowers

Wednesday, March 25 Welcome to davidstowers, who has a feeling like electricity that shoots down his leg when he lays down. It's inconsistent and he doesn't see a pattern but thinks it must be RLS. Please post a note telling us a bit more about your symptoms (and when they occur) so that we can prov...
by Rustsmith
Mon Mar 23, 2020 1:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin increased with oral iron, now what?
Replies: 9
Views: 504

Re: Ferritin increased with oral iron, now what?

To add what Holland said, there is also quite a bit of research on iron deficient mice that ties BID to improper functioning of the adenosine receptors. Work at the NIH that was published at NIH two years ago then tied the problem with adenosine receptors to down regulation of both dopamine and glut...
by Rustsmith
Sat Mar 21, 2020 4:51 pm
Forum: Everything Else...just no RLS/WED!
Topic: Stay Safe!
Replies: 20
Views: 278

Re: Stay Safe!

mack, your message is fine. In the current environment, we all need to draw upon whatever we can to get through this situation and that is especially true of those of us who struggle with each and every night.
by Rustsmith
Fri Mar 20, 2020 10:23 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to Stanleyr54

Friday, March 20 Welcome to Stanleyr54, whose RLS is causing difficulty with sleep and is worsening with age. Both of those situations are common with RLS. Please post a note telling us what you are doing to manage your symptoms and asking any questions that you have so that we can try to offer you ...
by Rustsmith
Fri Mar 20, 2020 1:33 pm
Forum: Just Joined?
Topic: MARCH 2020 - New Members
Replies: 24
Views: 2228

Welcome to sallyjay

Friday, March 20 Welcome to sallyjay, who is really struggling with withdrawl from a dopamine agonist she was taking for 15 years. She is not getting restless legs during the day now, but is tormented every night and can barely sleep. She has had to take early retirement and is trying to live on a b...

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