Restless Legs Syndrome (RLS) Discussion Board

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Monday, June 16

Welcome to

StriveSeekFind, who Has had RLS all his life. He was on Requip or Mirapex for 5-7 yrs or longer and that made his symptoms much worse. DAs also caused other terrible side effects. He is on methadone now which has worked extremely well, but he thinks he has developed ...

An option that you might want to explore would be to get an appointment either with Dr John Winkelman at Mass. General Hospital in Boston or Dr Brian Khoo at Yale in New Haven, CT. Both run RLS Foundation Quality Care Clinics and both are also familiar with treating people who are also suffering ...

I just read a manuscript that has been submitted for publication by Stefan Clemans, William Ondo and Walter Paulus that is proposing a new theory about the cause of RLS and augmentation. The paper has not been published yet. I received a copy from Dr Clemans via ResearchGate. However, you can find a ...

Wednesday, June 11

Welcome to

okstate1212, who has RLS and is looking for a solution to help treat the symptoms.

One of the best sources of information about treating RLS can be found in the document that the link in my signature points to. It is a Mayo Clinic publication that was authored by ...

There is research that is still going on (or at least it was until recently). Most of the work following Dr Ferre's work that identified the connection between iron and the adenosine receptors has focused on the mechanism of iron transport across the blood-brain barrier. It turns out that the ...

Friday, June 6

Welcome to

Jhm111, whose RLS affects sleep as well as personal finances.

If you have any questions or would like suggestions to improve the control of your RLS, just post a message that tells us a bit more and we will do what we can.

We need to keep in mind the statement that "we are all an experiment of one" when it comes to managing our RLS. RLS symptoms can range from mild to very severe (one paper even referred to a patient whose IRLSSG score was 39/40 as malignant RLS).

When it comes to RLS medications, about the only ...

Wednesday, June 4

Welcome to

goodyg5, who I has been an RLS sufferer since childhood. Symptoms have spiked with age and maybe someone in the forum will suggest a treatment that goodyg5 hasn't yet tried that may prove effective.

The normally recommended treatments can be found in the Mayo Clinic ...

Although developing opioid tolerance is not common with RLS, it does happen. Sometimes just switching to a different opioid is all that is required to regain control. Others have found that they need a short drug holiday (a few days to a week) and that they regain control when they start back up ...

Tuesday, June 3

Welcome to

dogmom623, who has had worsening RLS (mainly left leg) for about 3 years. Her father had it for years. It causes her great difficulty in falling asleep about half of the time, although once she is asleep, it does not wake her up.

Is your doctor currently treating your ...

Tuesday, June 3

Welcome to

Violetjune, who is "addicted"to Ropinirole. She has been in augmentation for years and is to the point of having restless arms, symptoms in the morning and afternoon.The thought of a night without the drug is terrifying. Even the couple of hours of waiting for the drug ...

Tuesday, June 3

Welcome to

Delighted, whose RLS keeps her from sleeping most nights, thus she is extremely tired all the time and has a hard time going places at night.

Are you currently doing anything to treat your RLS? Do you know your ferritin number? There are plenty of suggestions that we ...

Although the RLS name indicates that it is a syndrome, that is a holdover from decades ago. About 15 years ago, there was an attempt by many international RLS organizations to change the name to Willis-Ekbom Disease because the experts recognized that is is not a syndrome but a disease because they ...

When you say that a lack of ferritin would result in a lack of oxygen, you are confusing the role of hemoglobin and ferritin. When iron is initially absorbed into the body, it is used to form hemoglobin, which is the red blood cells that carry oxygen throughout the body. Hemoglobin contains four ...