Search found 3859 matches

by Rustsmith
Tue Jul 14, 2020 1:36 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 145
Views: 51438

Re: Is your DA causing augmentation?

Have you heard of people getting good treatment there for RLS? If you mean one of the Foundation Quality Care Clinics, then the treatment there will be some of the best in the country. However, if you mean a sleep clinic that isn't a Quality Care Clinic (QCC), then the treatment will depend upon th...
by Rustsmith
Tue Jul 14, 2020 1:17 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Gandtbrown

Tuesday, July 14 Welcome to Gandtbrown, whose RLS is getting worse and the medicine is not helping. Often when RLS is getting worse and meds are no longer helping, the person is on a dopamine agonist (Mirapex, Requip or Neupro) and they are experiencing augmentation. We have an entire forum that dis...
by Rustsmith
Mon Jul 13, 2020 1:57 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 145
Views: 51438

Re: Is your DA causing augmentation?

Rebeccalee, one of the reasons why RLS can be worse during pregnancy has to do with your iron levels. Increasing total body iron (as measured by ferritin) that is low is the first form of treatment that is recommended for anyone's RLS. Iron levels often decrease during pregnancy because your body is...
by Rustsmith
Mon Jul 13, 2020 1:47 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Blaze13

Monday, July 13 Welcome to Blaze13, who stays awake every night jerking and tingling. RLS is miserable. Anyone with even moderate RLS can relate to a problem with nightly jerking and unusual sensations. If you have any questions, please post them in a note so that we can try to help you regain contr...
by Rustsmith
Mon Jul 13, 2020 2:34 am
Forum: Everything Else...just no RLS!
Topic: Biggest fear
Replies: 4
Views: 41

Re: Biggest fear

Deb, most of the women in my life have been through breast cancer surgery (wife, mother, mother-in-law, cousin, niece and even my grandfather). The surgery and the post treatment(s) are very specific these days and are tailored to your exact situation. My wife's surgery two years ago was much less d...
by Rustsmith
Sat Jul 11, 2020 7:03 pm
Forum: Just Joined?
Topic: Hopeful RLS wife
Replies: 7
Views: 62

Re: Hopeful RLS wife

There is an RLS Foundation Quality Care Clinic at Stanford. One of the professors there, Dr. Mark Buchfuhrer, is one of the leading RLS experts in the US and also has a private practice in the LA area (Downey). One of his specialties is treating patients that are severely augmented like your husband.
by Rustsmith
Sat Jul 11, 2020 4:54 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to loriR

Saturday, July 11 Welcome to loriR, whose husband has severe RLS and has been on a very strong medication for many years. His quality of life is affected by both the RLS and the side-effects of the medication. She would like to be able to help him by reaching out and being more educated. If you will...
by Rustsmith
Sat Jul 11, 2020 1:38 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 145
Views: 51438

Re: Is your DA causing augmentation?

Rebeccalee1991, in addition to what Qyx has suggested, do you know what your iron levels are like? RLS is caused by low iron in the brain but there are several reasons why this can happen. Many of us have low iron stores in our body (as measured by ferrritin levels in the blood). The first step in a...
by Rustsmith
Sat Jul 11, 2020 1:33 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Lmhaake

Saturday, July 11 Welcome to Lnhaake, who has severe RLS and it’s been nightly for 25 years. Medications work at times, but she still has many sleepless nights. Welcome to the group, if you are comfortable sharing posting a note telling us what meds you are taking, we may be able to suggest somethin...
by Rustsmith
Fri Jul 10, 2020 1:54 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to BAB97TIE

Friday, July 10 Welcome to BAB97TIE, who has not been able to sleep for more than 5 months, resulting in total exhaustion, low immunity and several illnesses. Please post a note telling us what you are taking to try to manage your RLS and insomnia. We can probably help, but need to know more before ...
by Rustsmith
Fri Jul 10, 2020 1:51 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Lynda

Friday, July 10 Welcome to Lynda, who hashad RLS for 40 years. She commenced medication last year but think she may have augmentation. She finds that she can’t concentrate on anything in the evening. The keys to augmentation are that your RLS seems to be getting worse, that it occurs earlier in the ...
by Rustsmith
Thu Jul 09, 2020 4:30 pm
Forum: Prescription Medications
Topic: Opioid withdrawal question
Replies: 6
Views: 71

Re: Opioid withdrawal question

Oxycodone has a half life of about 3 hrs, so if you are just taking it at bedtime, it would essentially be out of your system by morning. So it is unlikely that what you are experiencing is withdrawal. But you could be experiencing the early stages of RLS that isn't treated until you take the oxy ag...
by Rustsmith
Wed Jul 08, 2020 9:39 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to JLT06

Wednesday, July 8 Welcome to JLT06, who is hoping to gain more knowledge and find new ideas to treat RLS. JLT is currently decreasing medication due to augmentation and having a lot of difficulty with this, and is hesitant to try medication for this now. The problem mainly is no sleeping, very bad w...
by Rustsmith
Wed Jul 08, 2020 7:39 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Vancgirl

Wednesday, July 8 Welcome to Vancgirl, who has been living with RLS since she was a teenager, although it only really started to bother her in her 30's. Now in she is in the 60's, she is managing so far with gabapentin and leg rubs with A535. Hopefully this will continue to be enough. She has been a...
by Rustsmith
Wed Jul 08, 2020 5:31 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome to Pancake_muncher

Wednesday, July 8 Welcome to Pancake_muncher, who has mild RLS so far but wants to see how other people manage theirs. Most of the active members of the board have severe or very severe RLS, but we remember what it was like when it was mild. If you post a message with any questions that you have, we...