Search found 4242 matches

by Rustsmith
Mon Jan 25, 2021 2:16 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Danielleneede

Monday, January 25 Welcome to Danielleneede, who only gets sleep 2 hours a night. She has had RLS for over 15 years and the last 5 have been the worst. Since insomnia is a major part of RLS, it is something that we all experience. If you will post a note telling us about what you are doing to contro...
by Rustsmith
Mon Jan 25, 2021 2:09 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to strinan1

Monday, January 25 Welcome to strinan1, who cannot sleep at night with out aid of medication and can only take every three days per doctor's order. Therefor strinan1 is up all night most nights and ugly during the day and is depressed and irritable and angry. None of the RLS meds has the restriction...
by Rustsmith
Mon Jan 25, 2021 3:58 am
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Sugar3plum

Sunday, January 24 Welcome to Sugar3plum, who has had RLS for years and has been taking pramipexole I mg 2 times a day. Normally it controls her RLS but lately it has gotten worse. She walked the floor all night Saturday night and has been taking extra vitamins because of Covid. At 2mg/day of pramip...
by Rustsmith
Sun Jan 24, 2021 10:36 pm
Forum: Just Joined?
Topic: Just joined
Replies: 2
Views: 25

Re: Just joined

Has your doctor checked your serum iron levels with ferritin being the most important? RLS is due to a deficiency of iron in the brain. But even if your ferritin level is over 100 (normal min is 20, so you need to know the number), some of us simply cannot get enough iron across the blood brain barr...
by Rustsmith
Sun Jan 24, 2021 2:46 pm
Forum: General Topics: RLS
Topic: Covid vac/RLS
Replies: 3
Views: 32

Re: Covid vac/RLS

I had the first Pfizer injection two weeks ago (second next Saturday). It didn't seem to have any effect, good or bad. Flu shots hurt more.
by Rustsmith
Sun Jan 24, 2021 2:44 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Jamie

Sunday, January 24 Welcome to Jamie, who has been dealing with RLS for 10+ years. Jamie is a physical therapist and has tried many treatments without success. Your failure is similar to that of most of our members. The only things that we find that work consistently are medications and temporary rel...
by Rustsmith
Sat Jan 23, 2021 11:36 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Karendee

Saturday, January 23 Welcome to Karendee, who is getting a horrible nights' sleep and is keeping her husband awake as well. She is exhausted and it recently happened while she was put out for a medical procedure and had to be held down. She is here for help and learning while she starts her medicine...
by Rustsmith
Thu Jan 21, 2021 6:50 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Juststumped

Thursday, January 21 Welcome to Juststumped, who has been suffering for past few years. She would like to see how others are coping, sharing information etc. She has tried different meds and is currently taking Horizant. It helps on and off but lately less often. Horizant and gabapentin do not work ...
by Rustsmith
Wed Jan 20, 2021 2:38 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Ank

Wednesday, January 20 Welcome to Ank, who can’t sleep and is looking for ways and advice to help with that. Ank's ankles and lower leg are kicking. An iron injection after 2 or 3 months with low dose of gabapentin worked for a few months, but no longer. Since the iron injection appears to have "worn...
by Rustsmith
Tue Jan 19, 2021 2:39 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Sal

Tuesday, January 19 Welcome to Sal, who is exhausted because of minimal and disjointed sleep. Sal's whole life is effected. Sal is anxious because the codeine that used to work doesn’t anymore. Sal's doc is prescribing methedone. So Sal asks if this a good choice? Methadone is the first choice opioi...
by Rustsmith
Mon Jan 18, 2021 11:39 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to WayneWayne

Monday, January 18 Welcome to WayneWayne, who has been diagnosed with RLS and Cramp Fasciculation Syndrome. For him, it's a sleep disorder with significant downside in multiple ways. According to the latest DSM-V diagnostic criteria, RLS is considered a sleep disorder. That is a major switch since i...
by Rustsmith
Mon Jan 18, 2021 8:51 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Cawilson7

Monday, January 18 Welcome to Cawilson7, whose RLS has been an issue since childhood although it didn’t have a name. RLS affects Cawilson's quality of sleep, depression, and ability to be understood. Even doctors usually understand RLS if they have it themselves. If you have any questions or would l...
by Rustsmith
Mon Jan 18, 2021 2:26 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to Chivers

Monday, January 18 Welcome to Chivers, whose RLS has affected every aspect of her life. She was diagnosed in 2002; but, had it for many years. it has gradually increased in intensity and makes it difficult to rest, sleep, enjoy visiting and attending sit down functions. In other words, she grins and...
by Rustsmith
Mon Jan 18, 2021 12:35 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 22
Views: 520

Re: going "cold turkey"

Although some people report that taking a magnesium supplement has helped their RLS, they are very limited in number and my impression is that many of them have mild RLS that is highly susceptible to the placebo effect. When the experts are asked this question during webinars or patient symposia, th...
by Rustsmith
Sun Jan 17, 2021 3:55 pm
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 527

Welcome to LindaO

Sunday, January 17 Welcome to LindaO, who has been describing symptoms for almost a year and they have been increasing to the point of waking her at night. It was confusing because it sometimes involves her hands as well. All she could say was they are her “creepies”. Iron supplements are helping an...