Search found 2348 matches

by Rustsmith
Thu May 24, 2018 4:24 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 0
Views: 6

RLS Foundation hosting a Patient Symposium

For those of you who are not members of the Foundation, you should know that they are hosting a Patient Symposium in San Diego, CA in September. There will be presentations on a number of RLS topics and many of the big names in research and treatment of RLS will be there. Here is your chance to meet...
by Rustsmith
Thu May 24, 2018 3:07 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 26
Views: 659

Re: Methadone and Gabapentin no longer working well

Deb, glad to hear that things went well in Denver. I have to admit that I was a bit nervous about how your appointment would go after singing her praises to you. So, I am glad that she has suggested some new things for you to try. As for email contact with her, I have learned that I need to be patie...
by Rustsmith
Thu May 24, 2018 1:20 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to AlonsoDil

Thursday, May 24 Welcome to AlonsoDil, who couldn't do the desk job he had held for 10 years after his restless legs syndrome problem got worse. He just couldn't sit still at a desk for 8 hours a day. Please post a note telling us what you are doing to manage your RLS and asking any questions that y...
by Rustsmith
Thu May 24, 2018 1:14 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Choosing a dispensary
Replies: 2
Views: 19

Re: Choosing a dispensary

Finding a dispensary is sort of like finding a good doctor. You simply have to visit one to find out if you like them. The staff at each one that I have visited here in Colorado have been knowledgeable and friendly, but I have to admit that I like one of them better than the others. This is due to t...
by Rustsmith
Wed May 23, 2018 11:39 pm
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 17
Views: 1111

Re: Next Foundation Webinar - Opioid Advocacy

I got a followup email from the district director for my congressman this afternoon as a followup to our meeting on Monday. He had forwarded the Foundation information as well as his comments to their staff in DC. His email said that the DC staff had reached out to multiple Congressional committees ...
by Rustsmith
Wed May 23, 2018 6:27 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to Borzoibabe

Wednesday, May 23 Welcome to Borzoibabe, who finds that when she can't sit or sleep it makes her so frustrated and exhausted and she can't explain what it feels like. It's an endless number of hours in a day when you are up all night and can't rest or even sit down. Please post a note telling what w...
by Rustsmith
Wed May 23, 2018 5:37 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to MIA

Wednesday, May 23 Welcome to MIA, who has RLS and is looking for information on how to manage. She has not been able to tolerate the medications for this so now looking to see how others manage RLS with/without medication. Please post a note telling us about the medications that you have tried since...
by Rustsmith
Tue May 22, 2018 9:04 pm
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 17
Views: 1111

Re: Next Foundation Webinar - Opioid Advocacy

I signed up to participate in the Foundation's RLS Advocacy program. The folks at HMCW (Health and Medicine Counsel of Washington) in DC provided me with instructions about how to contact my various Congressional representatives's local offices to set up a meeting as well as documents that I could u...
by Rustsmith
Tue May 22, 2018 4:10 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 21
Views: 126

Re: Desperate

KDJM, it is exceedingly unfortunate that depression is something that seems to go hand-in-hand with severe RLS. Many of us struggle with it, even when our RLS is mostly controlled. As Holland said, many of us with the severe form of this disease have moved from using a single medication to relying u...
by Rustsmith
Mon May 21, 2018 9:33 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to SCSmith1977

Monday, May 21 Welcome to SCSmith1977, who has had RLS for a long time and only found out what it was through a sleep study in 2013. SCSmith has been taking gabapentin to control the symptoms and within the last 6 months it has worsened to include the arms and legs during the daytime as well, not ju...
by Rustsmith
Mon May 21, 2018 12:57 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to Adaysfullhouse

Monday, May 21

Welcome to

Adaysfullhouse, whose RLS causes misery at night, when trying to take naps or on long car rides!!

Please post a note telling us what you are doing to manage the symptoms so that we can offer you some suggestions for improvement.
by Rustsmith
Sun May 20, 2018 11:02 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to Marshanurse

Sunday, May 20 Welcome to Marshanurse, whose RLS is causing her to lose sleep which in turn causes her production and concentration at work to be below expectations. She is feeling tired and don't want to do much on her weekends off. Please post a note telling us what you are currently doing to mana...
by Rustsmith
Sun May 20, 2018 11:00 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to Flamingoer

Sunday, May 20 Welcome to Flamingoer, who has suffered with leg pain at night for a lifetime as well as having had problems with feel rested. Flamingoer is currently trying to deal with these symptoms without prescribed medications and needs help!! Please post a note telling us what you have tried a...
by Rustsmith
Sun May 20, 2018 2:39 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to Foxwell8

Sunday, May 20

Welcome to

Foxwell8, who has an urge to move legs all day and night-especially reading,watching TV ,starting to sleep.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions to better manage your need to move.
by Rustsmith
Sat May 19, 2018 8:44 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 28
Views: 466

Welcome to moose

Saturday, May 19 Welcome to moose, whose RLS affects her everyday and prevents her from relaxing until she takes medication in the evenings. Please post a note telling us about your medication so that we may be able to offer you some suggestions to discuss with your doctor for improving your situati...

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