Search found 2607 matches

by Rustsmith
Sun Sep 23, 2018 12:40 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to tweedy333

Sunday, September 23

Welcome to

tweedy333, who would love to get ideas from others who are suffering.

Please post a note telling us what you are doing for your RLS so that we can provide you with some ideas.
by Rustsmith
Sat Sep 22, 2018 1:15 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to bgrm84

Saturday, September 22

Welcome to

bgtm84, who has had luck with treating severe restless leg.

Please post a note telling us about how you have been treating your RLS and asking any questions that you have.
by Rustsmith
Sat Sep 22, 2018 1:11 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to Bruffie

Saturday, September 22 Welcome to Bruffie, who wants pass on information about an instant relief cream that he bought in France a couple of years ago. As an occasional sufferer of RLS, he finds that this "Kamol" cream gives relief/cure every time. Glad you found something that works for yo...
by Rustsmith
Fri Sep 21, 2018 9:49 pm
Forum: Just Joined?
Topic: An old member just returning
Replies: 3
Views: 37

Re: An old member just returning

Perry, the current max recommended dose of pramipexole for RLS is 0.5mg, so you are quite a bit beyond that. The other type of medication that is recommended for use with RLS these days is gabapentin, Horizant or Lyrica. These might be useful, but will not help you get off of the pramipexole. Quitti...
by Rustsmith
Fri Sep 21, 2018 6:02 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to gowacky

Friday, September 21

Welcome to

gowacky, who feels that life with RLS is miserable. Life when always deprived of enough sleep is very hard.

Please post a note telling us a bit about what you are doing to manage your RLS so that we might be able to offer some suggestions for improvement.
by Rustsmith
Fri Sep 21, 2018 2:16 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 416
Views: 96485

Re: Published Research - General Sleep and RLS (WED)

I looked at the paper and they made the point that RLS is more prevalent in women and that Parkinson's is more prevalent in men. They realized that this contradiction would have some sort of impact on their results, but could not do anything about it since their study cohort was all men. I was hopin...
by Rustsmith
Thu Sep 20, 2018 10:32 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to Mellie

Thursday, September 20 Welcome to Mellie, whose RLS keeps her from sleeping. She can't sit for very long, so airplane rides can be excruciating/embarrassing. Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions, which would include making airplane...
by Rustsmith
Thu Sep 20, 2018 1:12 am
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to szigmond

Wednesday, September 19 Welcome to szigmond, who is up most nights with RLS. Pramipexole helps some. Recently szigmond took a trip that required various air flights on 4 separate days-- usually RLS does not occur much in the day but each day szigmond had RLS on either the first or second flight or b...
by Rustsmith
Wed Sep 19, 2018 4:33 pm
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 343

Re: Medication causing Apathy?

At this point, I think that it is my doctor's intention that Tramadol is a temporary treatment. I see her again in January and I will not be surprised if she wants to switch me back to methadone at that time. But all that is really a guess on my part. As for dose, I do not see any reason why I would...
by Rustsmith
Wed Sep 19, 2018 2:36 pm
Forum: Prescription Medications
Topic: Tolerance issues in general
Replies: 8
Views: 139

Re: Tolerance issues in general

There should be a special category for you "EXTREME." In the paper by Dr William Ondo describing a patient that received DBS surgery because none of the treatments that they tried was working, he used the term "malignant" RLS. I gathered that her IRLSSG score was 40 before the s...
by Rustsmith
Tue Sep 18, 2018 7:41 pm
Forum: Just Joined?
Topic: Undiagnosed RLS
Replies: 4
Views: 63

Re: Undiagnosed RLS

The required dose of gabapentin is something that varies a lot between individuals. 300mg at bedtime can be enough for some people to fall asleep and others may require 900, 1200 or more. Often the recommendation is to start low and titrate up, but that is a decision that needs to be made by your do...
by Rustsmith
Tue Sep 18, 2018 4:13 am
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 343

Re: Medication causing Apathy?

Final update - I increased my dose of Tramadol ER yesterday and finally got a reasonable amount of sleep last night (6.5 hrs). I would have gotten more, but I just didn't feel tired at bedtime. Today, I feel good and have started enjoying the fact that I can experience happiness and other emotions a...
by Rustsmith
Tue Sep 18, 2018 3:10 am
Forum: Just Joined?
Topic: Undiagnosed RLS
Replies: 4
Views: 63

Re: Undiagnosed RLS

First, for some people, RLS is something that does not happen every night. One of the questions that is used to score the severity is how many nights per week that you experience it. The questions on the "official" diagnosis questionnaire can be found at http://irlssg.org/diagnostic-criter...
by Rustsmith
Mon Sep 17, 2018 11:39 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to dave851

Monday, September 17 Welcome to dave851, who has RLS with Periodic Leg Jerks. He has gone through the mill from Sinemet to Mirapex and now Lyrica. He needs to find the right dosage and "cocktail" that works for him. He hates evenings - can never relax. He hopes he can get some suggestions ...
by Rustsmith
Mon Sep 17, 2018 11:21 pm
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 469

Welcome to luciekitty04

Monday, September 17

Welcome to

luciekitty04, who is joining because she would like to get advice on her undiagnosed RLS.

Please post a note telling us about your symptoms and asking any questions that you have. We would love to be able to help you out.

Go to advanced search