Search found 3159 matches

by Rustsmith
Wed Jun 19, 2019 2:40 pm
Forum: Prescription Medications
Topic: Opioids: sedate or stop movement?
Replies: 2
Views: 21

Re: Opioids: sedate or stop movement?

Not only do the opioids provide relief to movement symptoms directly rather than thru sedation, many of us experience the side effect of "alerting", where the opioid actually produces an insomnia like effect. For those of us who experience opioid induced insomnia, we have to take our meds ...
by Rustsmith
Tue Jun 18, 2019 1:57 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to lion1973

Tuesday, June 18 Welcome to lion1973, whose RLS has prevented lion from getting quality sleep for years. Medicines prescribed for RLS affect lion's voice -- coughing and raspy voice so lion can't take them. Please post a note telling us what meds that you have taken that cause issues with your voice...
by Rustsmith
Mon Jun 17, 2019 9:21 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to Phass

Monday, June 17 Welcome to Phass, who us up and down all night, which causes lack of sleep, so Phass needs to fine a new medication. Please post a note telling us what you are currently taking, what you have tried and asking any questions that you have. We should be able to offer you some suggestions.
by Rustsmith
Mon Jun 17, 2019 2:46 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to holmesd

Monday, June 17 Welcome to holmesd, who has suffered with RLS since 4-5 years old. It has been maddening at times. However, now it is a daily ordeal requiring medication. holmesd knows it is a matter of finding the right information to help. You have come to the right location for info on RLS. If yo...
by Rustsmith
Mon Jun 17, 2019 2:44 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to pwags

Monday, June 17

Welcome to

pwags, who is currently suffering with RLS that is not controlled by meds

Please post a note telling us about the meds so that we can offer some suggestions of changes that you can make that will reduce your suffering and get you more sleep.
by Rustsmith
Mon Jun 17, 2019 2:43 am
Forum: Prescription Medications
Topic: Dopamine question - even after all these years.
Replies: 5
Views: 99

Re: Dopamine question - even after all these years.

There have been studies done by groups such as Johns Hopkins that compare the fraction of patients who augment on different DAs over extended periods of time. There are probably a few "outliers" that can go for decades, but the majority of patients will have augmented on most of the variou...
by Rustsmith
Mon Jun 17, 2019 2:39 am
Forum: Prescription Medications
Topic: Oxycodone HCL--how much works for you?
Replies: 5
Views: 46

Re: Oxycodone HCL--how much works for you?

Oxycodone ER does not last as long as methadone, the half life is still only 4 to 6 hours compared to about 24 for methadone (methadone varies a lot between individuals). You should talk with your doctor about whether you need a second dose during the night or whether changing to a longer half life ...
by Rustsmith
Mon Jun 17, 2019 2:35 am
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to pika

Sunday, June 16 Welcome to pika, who twenty years ago had to go out on (temporary) disability from a teaching job as pika was falling asleep at the wheel driving home, and too to be able teach well. Getting diagnosed was a long rocky road as the school district sent pika to a psychiatrist! Eventuall...
by Rustsmith
Sun Jun 16, 2019 3:56 pm
Forum: Prescription Medications
Topic: Oxycodone HCL--how much works for you?
Replies: 5
Views: 46

Re: Oxycodone HCL--how much works for you?

I used to be a competition class runner and I never saw that any of my meds or RLS really had much effect. As for your oxy, it is only effective for a few hours, which would explain why it doesn't get you through the night. When given for pain, it often has to be taken at least four times a day. Tha...
by Rustsmith
Sun Jun 16, 2019 2:13 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to woodywvt

Sunday, June 16 Welcome to woodywvt, who has had RLS most of jis 78 years. Went into severe augmentation in mid 2018. Thru Karla at RLS Foundation hooked up with Dr. J. Winkelman. After getting up to 2700 mg gabapentin with no relief, went to methadone. 21/2 mg - no effect. 5 mg effective for about ...
by Rustsmith
Fri Jun 14, 2019 10:18 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to djm755

Friday, June 14

Welcome to

djm755, who was diagnosed with RLS in 1984, has severe RLS every day and every night and has been taking medications of every kind since 1984.

Please post a note and let us know what we might be able to do to help.
by Rustsmith
Fri Jun 14, 2019 7:03 pm
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 24
Views: 310

Re: Weaning off medications

JulHer1968, remember that those with opiates use disorder are also taking a much higher dose of methadone that you are. I stopped taking methadone last fall cold turkey from 5mg. I didn't really notice that much in the way of opioid withdrawal, but the gabapentin and 0.25mg pramipexole that I was ta...
by Rustsmith
Fri Jun 14, 2019 4:41 pm
Forum: Augmentation
Topic: Suicidal thoughts
Replies: 19
Views: 486

Re: Suicidal thoughts

Bridgercan, I too am susceptible to both organic and medication driven depression. I am fortunate that my wife is very supportive and understanding of my RLS. She also has a chronic neurological condition, so she has an idea of what I am going through and my RLS has given me greater appreciation of ...
by Rustsmith
Fri Jun 14, 2019 3:27 am
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to Flaspohler

Thursday, June 13

Welcome to

Flaspohler, who has had RLS most of Flaspohler's life, but worsening about 2000. Interruption of sleep is major issue even with meds.

Please post a note telling us about the meds that you are taking and have tried so that we can offer some suggestions to get more sleep.
by Rustsmith
Thu Jun 13, 2019 10:07 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 30
Views: 267

Welcome to jackie83

Thursday, June 13 Welcome to jackie83, who has a severe case of RLS. She has tried all kinds of medicine and has had it for years. Hers is the worst case her Dr has seen. Please post a note telling us about the meds that you have tired. Many of us also have severe or very severe RLS and have found t...

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