Search found 5580 matches

by Rustsmith
Wed Mar 27, 2024 4:07 pm
Forum: Just Joined?
Topic: Head roll
Replies: 24
Views: 701

Re: Head roll

My biggest challenges are convincing my Dr. how effective these meds have been but his concern will always be about creating an addict. The next time you see your doctor, provide a copy of this document which was written specifically to educate doctors like yours that opioids are appropriate for RL...
by Rustsmith
Wed Mar 27, 2024 3:58 pm
Forum: Just Joined?
Topic: New Member
Replies: 1
Views: 20

Re: New Member

Welcome to the group. If you read through a number of our discussions, you will see that many of us have failed the dopamine agonists through augmentation and that iron therapy and gabapentin/Horizant/Lyrica did not work for us. Most of these members are either taking oxycontin ER, methadone or bupr...
by Rustsmith
Wed Mar 27, 2024 12:40 am
Forum: Just Joined?
Topic: March 2024
Replies: 23
Views: 948

Welcome to Swamiail

Tuesday, March 26 Welcome to Swamiail, who have been diagnosed with Peripheral Neuropathy and suffers from RLS every night. She also has leg cramping. It is ruining her life. Has your doctor prescribed either gabapentin or Lyrica for the neuropathy and/or RLS. Those meds generally help with both con...
by Rustsmith
Tue Mar 26, 2024 10:37 pm
Forum: Just Joined?
Topic: March 2024
Replies: 23
Views: 948

Welcome to Ragnar

Tuesday, March 26 Welcome to Ragnar, who has chronic RLS that is getting worse as he gets older (64). It is becoming very disrupting as he has 2 - 3 days with RLS all night and even occurring during the day when it gets really bad. The options for medications are not very effective and he has tried ...
by Rustsmith
Tue Mar 26, 2024 12:22 am
Forum: Just Joined?
Topic: March 2024
Replies: 23
Views: 948

Welcome to dmarney

Monday, March 25 Welcome to dmarney, who is going through DAWS. So life is a mess! There are two conditions that are frequently referred to as DAWS. The more common and less severe (but still extremely difficult) is withdrawal from any of the dopamine agonist meds, usually due to augmentation. This ...
by Rustsmith
Thu Mar 21, 2024 10:42 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation
Replies: 11
Views: 254

Re: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation

Possibly due to a wrong target of the interventions. We are drifting off topic, but that was exactly one of the points that the article made. For too long, everyone studied ambloid plaques because that is what Dr Alzheimer first observed. They even observed that post mortem studies found that many ...
by Rustsmith
Thu Mar 21, 2024 10:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation
Replies: 11
Views: 254

Re: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation

Earlier today, I was reading a summary of research into Alzheimers that was intended for the general population. They discussed an inflammation theory for Alzheimers and mentioned how hard it is to get anti-inflammatory agents across the blood-brain barrier. They said that three groups were currentl...
by Rustsmith
Thu Mar 21, 2024 6:38 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation
Replies: 11
Views: 254

Re: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation

Sorry for the delayed response. Microsoft had my desktop computer tied up for half of the day yesterday doing updates so it took some time to be able to dig my way out so that I could get access to my university library account. I was able to get a full copy of the paper by Weinstock, et al. and fou...
by Rustsmith
Wed Mar 20, 2024 4:42 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

That is wonderful news. You definitely found a keeper with that neuro and hopefully your PM will be willing to switch you to oxy ER since regular oxy is working well for you. As for the description of the feeling, I tell people that language describes a shared experience and that only other RLS pati...
by Rustsmith
Thu Mar 14, 2024 8:35 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nationally-recognized sleep expert suggests that RLS is a meaningful BIOMARKER for serious disease
Replies: 2
Views: 121

Re: Nationally-recognized sleep expert suggests that RLS is a meaningful BIOMARKER for serious disease

Because I had never seen Dr Auerbach's name mentioned before, I did some digging. His only publication on RLS is the one that is cited at the end of the editorial that your link points to. That publication was co-written with Dr Walters at Vanderbilt, who is a well known RLS doctor/researcher. Dr. A...
by Rustsmith
Thu Mar 14, 2024 3:01 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

I hope that you have better luck with the pain doctor than I had. When my GP was retiring, she gave me a referral to a pain management doctor. I made an appointment and a few days before the appointment, I received an email from the staff telling me that my appointment had been canceled because the ...
by Rustsmith
Wed Mar 13, 2024 10:16 pm
Forum: Prescription Medications
Topic: REQUIP DOSING GUIDELINES
Replies: 3
Views: 110

Re: REQUIP DOSING GUIDELINES

Buchfuhrers book (that I believe to be one of the best resources on drugs out there) even recommends 1mg/d as maximum. Dr Buchfuhrer has always recommended lower doses for all of the dopamine agonists than the other experts, but apparently some of the other doctors push for guidelines that are clos...
by Rustsmith
Wed Mar 13, 2024 4:14 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Use of Potassium Citrate for RLS
Replies: 6
Views: 5764

Re: Use of Potassium Citrate for RLS

One more red flag is that the posting author, and probably the other authors, is a fellow trainee at a third world school. That alone doesn't make the study bad, but it does raise questions since many of the poorest quality studies come from schools in third world countries that no one has ever hear...
by Rustsmith
Wed Mar 13, 2024 12:00 am
Forum: Just Joined?
Topic: March 2024
Replies: 23
Views: 948

Welcome to tryall

Tuesday, March 12

Welcome to

tryall, whose RLS causes extreme sleep disturbances and extreme tiredness throughout day.

Are you currently treating your RLS and has your doctor tested your ferritin level? If you have any questions, feel free to post a message so that we can try to help you.
by Rustsmith
Mon Mar 11, 2024 11:50 pm
Forum: General Topics: RLS
Topic: dysautonomia
Replies: 3
Views: 150

Re: dysautonomia

I was diagnosed with some of the symptoms of dysautonomia but not enough of the to get that diagnosis.