Search found 2510 matches

by Rustsmith
Wed Aug 15, 2018 4:17 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to paulande

Wednesday, August 15

Welcome to

paulande, whose RLS is so bad, she is having a hard time functioning as she is so tired all the time.

Please post a note telling us what you are doing to manage your RLS. We may be able to offer some suggestions that will allow you to get some more rest.
by Rustsmith
Wed Aug 15, 2018 12:50 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to marvelisticme

Wednesday, August 15 Welcome to marvelisticme, who has suffered with RLS for 40 years. marvelisticme can't sit for long, nor sleep well and knows there must be something that will helpto find sleep! Please post a note telling us what you are currently doing to manage your RLS so that we can offer so...
by Rustsmith
Wed Aug 15, 2018 12:46 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to TwinkleStar

Wednesday, August 15

Welcome to

TwinkleStar, who daughter has been diagnosed in RLS. She also suffers tremors (jitterings) probably related.

Please post a note telling us a bit more about your daughter (age, current treatment, etc) so that we can offer some suggestions to you.
by Rustsmith
Tue Aug 14, 2018 10:45 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 132

Re: weather

Betty, in 2012 we took back to back cruises out of Dover in August (during the London Olympics). The first week we went up the Norwegian coast, which was spectacularly beautiful. The second week was a tour of the British Isles, including the Channel Isles, Ireland and then two days in Edinburgh. It ...
by Rustsmith
Tue Aug 14, 2018 8:17 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 5
Views: 45

Re: Neupro

vkelley, welcome to the group. You are in great hands with Dr Ondo. He was the first RLS specialist that I saw after a disastrous series of neurologists. I still have great confidence in his advice and would still be one of his patients if we hadn't moved from The Woodlands to Colorado. For the size...
by Rustsmith
Tue Aug 14, 2018 4:52 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to Alexandramm

Tuesday, August 14 Welcome to Alexandramm, who needs suggestions for non-drug help. Take a look through our forum on Non-Prescription medications to get an idea of your options. And please post a note telling us about your RLS and what you have been doing so that we can offer some specific suggestio...
by Rustsmith
Tue Aug 14, 2018 1:06 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to vkelley

Tuesday, August 14 Welcome to vkelley, who has suffered with severe RLS for the last two years. She has a constant need to move her legs and it affects her sleep, which in turn affects her ability to focus during the day. Treatment thus far has been ineffective. Please post a note telling us what tr...
by Rustsmith
Mon Aug 13, 2018 6:27 pm
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 309

Re: What med cocktail works for you??

Shari, the time that it takes THC to work depends upon the mode of delivery. Smoking (not recommended) or vaping provides an impact that is almost immediate, but it also wears off rather quickly. Tinctures that are placed under the tongue can take a few minutes to work, but last longer. Edibles can ...
by Rustsmith
Mon Aug 13, 2018 6:10 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to lmason

Monday, August 13 Welcome to lmason, who unfortunately has this disease and would prefer not to take medication for it. She is currently or Ropinirole and would love to come off of it. She is also slightly anemic. Please post a note telling us about your anemia (ferritin level if you know it) and yo...
by Rustsmith
Mon Aug 13, 2018 6:06 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to Evansrj

Monday, August 13 Welcome to Evansrj, who has had symptoms of RLS since youth but they would go away after 2/3 days. Evansrj is now going on about 1 month with little relief from medication and so hopes to find alternative solutions through board. Please post a note telling us a bit about your curre...
by Rustsmith
Sun Aug 12, 2018 5:54 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 132

Re: weather

I live in an area of Colorado that is high desert. Our normal daily high temperatures for July and August are over 100F, but the nights are around 65 because it is so dry. But this summer we only had one week of normally hot weather. the rest has been in the low 90s. Our problem has been almost no r...
by Rustsmith
Sun Aug 12, 2018 2:00 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to Motorhome

Sunday, August 12 Welcome to Motorhome, who cannot set and read a book. She has the worst case the doctors say they have ever seen. she can't sit still. Your RLS sounds like what many of us experience, so "you are not alone". Please post a note telling us what your doctors have you doing t...
by Rustsmith
Sat Aug 11, 2018 12:36 am
Forum: Prescription Medications
Topic: New on Requip - question
Replies: 4
Views: 74

Re: New on Requip - question

Em, welcome to the board, glad you found us and also happy to hear that you got a good night's sleep with Requip. Most of us started out with a dopamine agonist (DA), usually either Requip or Mirapex, and they worked great for a while. For those of us with severe RLS, this meant taking it daily. The...
by Rustsmith
Fri Aug 10, 2018 3:08 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to Emmy5

Friday, August 10 Welcome to Emmy5, who has RLS and is interested in learning more about it. It started with her 1st pregnancy and she thought it was just her. She started to read about it and realized she was not alone. She has typical symptoms- worse at night, awful on late night flights or car ri...
by Rustsmith
Thu Aug 09, 2018 10:44 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 16
Views: 197

Welcome to MayDay58

Thursday, August 9

Welcome to

MayDay58, who has suffered from RLS for years and is hoping for some new ideas for treatment.

Please post a note giving us an idea of the things that you have tried so that we can offer any new ideas that we have.

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