Search found 2874 matches

by Rustsmith
Sat Feb 16, 2019 9:52 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to girlsxfive

Saturday, February 16 Welcome to girlsxfive, who has insomnia and is drugged all the time, so quality of life is not good. Please post a note telling us what you are taking and the dose. There is no reason to feel drugged all the time, so we should be able to suggest something that you can discuss w...
by Rustsmith
Sat Feb 16, 2019 4:12 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Jrivory

Saturday, February 16

Welcome to

Jrivory, who has a family member who has suffered with RLS for decades.

Please feel free to post a note asking any questions that you have. We would love to be able to help your family out.
by Rustsmith
Sat Feb 16, 2019 3:45 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Dirk

Friday, February 15 Welcome to Dirk, who as a child, around 10 years old, he would would go with his family to our community’s annual high school musical. This was torture and he always had to excuse himself and walk the dark empty hallways of the school while the show went on. Now in his mid 50s he...
by Rustsmith
Fri Feb 15, 2019 9:11 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Bh.phxmech

Friday, February 15 Welcome to Bh.phxmech, who has had RLS since childhood. It effects sleep and is worsening with age. Legs went from constant movement and tingly sensation to just out right pain. Please post a note telling us what you are doing to manage your RLS. We may be able to offer some sugg...
by Rustsmith
Fri Feb 15, 2019 6:45 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Jools

Friday, February 15 Welcome to Jools, who had her 1st symptoms during her second pregnancy. She was on DAs for 15 years and suffered terrible augmentation and horrendous withdrawal. RLS still affects her every single day despite opioid meds. She is angry that it is not taken seriously by the medical...
by Rustsmith
Fri Feb 15, 2019 6:15 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Resa

Friday, February 15 Welcome to Resa, who has faced limitations on what entertainment and events she can enjoy because of the disruption of RLS. She does not sleep well and is unable to tolerate long plane rides. Please post a note telling us what you are doing to manage your RLS and asking any quest...
by Rustsmith
Fri Feb 15, 2019 3:14 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to beachGolfer

Friday, February 15 Welcome to BeachGolfer, who feels that RLS has taken over her life though, thankfully, she only has symptoms at night. She is currently weaning from Mirapex with the use of Percocet. Fortunately, she has a very supportive neurologist and husband. You are very lucky to have the su...
by Rustsmith
Fri Feb 15, 2019 3:11 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to dickandjane

Friday, February 15 Welcome to dickandjane, who can't sit through theatre, fly on planes, or even relax at home for more than an hour without constantly moving legs. dickandjane doesn't have problems at night, but in experiencing the above, drives everyone me nuts with all the squirming. Please post...
by Rustsmith
Fri Feb 15, 2019 3:06 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 73

Re: Neupro Cost

Stainless, Horizant is the drug that is a modification of gabapentin. Neupro is sort of a time release dopamine agonist, so in that regard it is similar to Mirapex ER and Requip ER. Unfortunately, all four of the brand name drugs (Neupro, Horizant, Mirapex ER and Requip ER) are super expensive. In f...
by Rustsmith
Thu Feb 14, 2019 11:48 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to Carmax17

Thursday, February 14 Welcome to Carmax17, whose chronic RLS has made life miserable. It has resulted in major depression along with other factors. Please post a note telling us what you are currently doing to manage your RLS and depression so that we can offer some suggestions for improving your si...
by Rustsmith
Thu Feb 14, 2019 10:07 pm
Forum: Just Joined?
Topic: Introducing myself
Replies: 4
Views: 50

Re: Introducing myself

redshoes, I'm glad that you found us but sorry that you need to be here. Your neurologist took the step that many of them initially take following augmentation on your first dopamine agonist. Their thinking is that shifting to a longer acting dopamine agonist will alleviate some of the problems with...
by Rustsmith
Thu Feb 14, 2019 8:29 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to helvio34

Thursday, February 14 Welcome to helvio34, who has been suffering with RLS for a long time, in fact a lifetime, and has been using a lot of medical treatments. If you will post a note telling us about your symptoms and your current treatments, we may be able to provide some suggestions for improveme...
by Rustsmith
Thu Feb 14, 2019 3:02 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 35
Views: 285

Welcome to redshoes

Wednesday, February 13 Welcome to redshoes, has had RLS for decades and has been on 2.5 ropinirole for over 15 yrs. Before medication, she would wake her husband by kicking. Terrible sleep. Even with medication, she avoids all evening activity, concerts, theater, performances, because of needing to ...
by Rustsmith
Tue Feb 12, 2019 11:59 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 10
Views: 73

Re: Neupro Cost

It maxed out my insurance monthly co-pay for the 15 months that I used it, before I augmented on it as well. The only benefit that I feel that I got out of it was that during the days that I had them on my shoulders, the patches were visible when I ran . The patch would invariably prompt a question ...
by Rustsmith
Tue Feb 12, 2019 11:53 pm
Forum: Help for Relationships
Topic: I'm tired of fighting
Replies: 8
Views: 89

Re: I'm tired of fighting

The opioids quickly address the RLS and PLMD, just like a dopamine agonist probably did when you first tried one. But opioids do not cause augmentation and most of us stay on the same low dose for years without any need to increase the dose. Opioids help with sleep for some and aggravate the situati...

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