Search found 2718 matches

by Rustsmith
Tue Nov 20, 2018 2:25 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to strobee

Tuesday, November 20 Welcome to strobee, whose RLS has affected life in numerous ways. strobee is unable to sit and watch TV in the evening without having to stand up and walk around. Sleeping is a complete disaster........about an hour after falling asleep strobee is wakened by RLS and has to get u...
by Rustsmith
Tue Nov 20, 2018 2:21 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to Cinderella

Tuesday, November 20 Welcome to Cinderella, whose RLS has stolen her restful sleep but finds it to be worse during the day rather than the night! It's bad at night too! Please post a note telling us what you are doing to manage your RLS. If you are taking a medication, please tell us what you are ta...
by Rustsmith
Tue Nov 20, 2018 2:18 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to Crazylegs26

Tuesday, November 20 Welcome to Crazylegs26, who went from having RLS at night, almost daily to having a raging, unstoppable, insanity causing case of all day everyday RLS with it affecting her entire body. She doesn't have health insurance and desperately needs help to end the nightly river dancing...
by Rustsmith
Fri Nov 16, 2018 2:08 pm
Forum: Prescription Medications
Topic: Methadone And Insomnia
Replies: 3
Views: 45

Re: Methadone And Insomnia

Quite possibly what you are experiencing is a side effect of some opioids that most of us call "alerting". When I was on methadone, I only took it once a day. My doctor recommended that I take it at bedtime, but I wasn't able to sleep that night. So, I moved the time that I took it to lunc...
by Rustsmith
Thu Nov 15, 2018 10:44 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to dscott151

Thursday, November 15 Welcome to dscott151, who has had RLS for many years, has tried several drugs and has had augmentation with them. Today the best treatment is Oxycodone but still have some really bad nights. It is now also during the day sometimes and in dscott's back also. The worst thing is g...
by Rustsmith
Thu Nov 15, 2018 5:06 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to SxSueMn

Thursday, November 15

Welcome to

SxSueMn, who suffers with spinal stenosis and takes ropinirole 2x/day.

Please post a note telling us if you have a diagnosis of RLS, how much ropinirole you are taking and asking any questions that you have. We would love to be able to help you out.
by Rustsmith
Thu Nov 15, 2018 3:38 am
Forum: Augmentation
Topic: DA’s - If Augmentation from one, from all?
Replies: 2
Views: 116

Re: DA’s - If Augmentation from one, from all?

Once you have augmented on one dopamine agonist, you will augment more quickly on another. Sinemet is the fastest acting DA and also causes augmentation the fastest. You MIGHT get away for a couple of months on the Neupro patch simply because it releases the medication over a 24 hr period instead of...
by Rustsmith
Wed Nov 14, 2018 10:36 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to browneyesblue

Wednesday, November 14 Welcome to browneyesblue, who has had RLS all browneye's lifetime and it is now uncontrollable. All the available drugs have been maxed out, so browneyes is at the end of the rope! Please post a note telling us which meds you have maxed out. The experience of our members is th...
by Rustsmith
Wed Nov 14, 2018 4:20 am
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to jp190

Tuesday, November 13 Welcome to jp190, who has had RLS for over 10 years but is having more trouble recently. jp190 has not started "RLS" meds but uses Xanax 1 mg qhs, but wants to make changes and so would like to hear what others have tried. You name it, one of us has tried it. But if yo...
by Rustsmith
Wed Nov 14, 2018 4:18 am
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to Jcg64

Tuesday, November 13 Welcome to Jcg64, who has suffered from severe RLS/PLM most of Jcg's life. The only treatment that has worked is oxycodone. Jcg would like to learn what others are doing to cope with this disability and possibly try other methods to control the pain/disorder. Feel free to look a...
by Rustsmith
Wed Nov 14, 2018 4:15 am
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to keitha

Tuesday, November 13 Welcome to keitha, who has suffered from RLS for the past 25 years and feels like it is suffering in silence because everyone around has no idea what it is like. The insomnia caused by this disease has created numerous problems in keitha's life. You have found a group who unders...
by Rustsmith
Tue Nov 13, 2018 4:53 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to pmoran

Tuesday, November 13 Welcome to pmoran, who has had restless legs for over 20 years. pmoran is having issues with augmentation in that symptoms now start in the morning and continue throughout the day and now include the arms. pmoran is having trouble with anxiety and would appreciate being part of ...
by Rustsmith
Tue Nov 13, 2018 4:49 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to bjoyful

Tuesday, November 13 Welcome to bejoyful, who has been suffering with restless legs for over 15 years and so is not sleeping much and has a hard time even going to sleep because of legs. Please post a note telling us what you are doing to manage your RLS and asking any questions you have so that we ...
by Rustsmith
Tue Nov 13, 2018 2:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin
Replies: 6
Views: 149

Re: Melatonin

Sleepless, there was an article in Nightwalkers about a year ago that discussed the use of Melatonin for RLS. The article came to the same conclusion that melatonin did not help and often is an RLS trigger. My experience is sleep aids is similar to that of Polar Bear. I tried every prescription hypn...
by Rustsmith
Mon Nov 12, 2018 10:56 pm
Forum: Just Joined?
Topic: NOVEMBER 2018 NEW MEMBERS
Replies: 27
Views: 1164

Welcome to Malia

Monday, November 12 Welcome to Malia, who has had RLS for approximately 50 years. It started out slowly and built until now she experiences it almost every night. Even with medication, she doesn't sleep well or very long so she's constantly tired. This disease is very, very difficult to explain to s...

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