Search found 2344 matches

by Rustsmith
Wed May 23, 2018 11:39 pm
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 17
Views: 1104

Re: Next Foundation Webinar - Opioid Advocacy

I got a followup email from the district director for my congressman this afternoon as a followup to our meeting on Monday. He had forwarded the Foundation information as well as his comments to their staff in DC. His email said that the DC staff had reached out to multiple Congressional committees ...
by Rustsmith
Wed May 23, 2018 6:27 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to Borzoibabe

Wednesday, May 23 Welcome to Borzoibabe, who finds that when she can't sit or sleep it makes her so frustrated and exhausted and she can't explain what it feels like. It's an endless number of hours in a day when you are up all night and can't rest or even sit down. Please post a note telling what w...
by Rustsmith
Wed May 23, 2018 5:37 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to MIA

Wednesday, May 23 Welcome to MIA, who has RLS and is looking for information on how to manage. She has not been able to tolerate the medications for this so now looking to see how others manage RLS with/without medication. Please post a note telling us about the medications that you have tried since...
by Rustsmith
Tue May 22, 2018 9:04 pm
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 17
Views: 1104

Re: Next Foundation Webinar - Opioid Advocacy

I signed up to participate in the Foundation's RLS Advocacy program. The folks at HMCW (Health and Medicine Counsel of Washington) in DC provided me with instructions about how to contact my various Congressional representatives's local offices to set up a meeting as well as documents that I could u...
by Rustsmith
Tue May 22, 2018 4:10 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 17
Views: 100

Re: Desperate

KDJM, it is exceedingly unfortunate that depression is something that seems to go hand-in-hand with severe RLS. Many of us struggle with it, even when our RLS is mostly controlled. As Holland said, many of us with the severe form of this disease have moved from using a single medication to relying u...
by Rustsmith
Mon May 21, 2018 9:33 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to SCSmith1977

Monday, May 21 Welcome to SCSmith1977, who has had RLS for a long time and only found out what it was through a sleep study in 2013. SCSmith has been taking gabapentin to control the symptoms and within the last 6 months it has worsened to include the arms and legs during the daytime as well, not ju...
by Rustsmith
Mon May 21, 2018 12:57 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to Adaysfullhouse

Monday, May 21

Welcome to

Adaysfullhouse, whose RLS causes misery at night, when trying to take naps or on long car rides!!

Please post a note telling us what you are doing to manage the symptoms so that we can offer you some suggestions for improvement.
by Rustsmith
Sun May 20, 2018 11:02 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to Marshanurse

Sunday, May 20 Welcome to Marshanurse, whose RLS is causing her to lose sleep which in turn causes her production and concentration at work to be below expectations. She is feeling tired and don't want to do much on her weekends off. Please post a note telling us what you are currently doing to mana...
by Rustsmith
Sun May 20, 2018 11:00 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to Flamingoer

Sunday, May 20 Welcome to Flamingoer, who has suffered with leg pain at night for a lifetime as well as having had problems with feel rested. Flamingoer is currently trying to deal with these symptoms without prescribed medications and needs help!! Please post a note telling us what you have tried a...
by Rustsmith
Sun May 20, 2018 2:39 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to Foxwell8

Sunday, May 20

Welcome to

Foxwell8, who has an urge to move legs all day and night-especially reading,watching TV ,starting to sleep.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions to better manage your need to move.
by Rustsmith
Sat May 19, 2018 8:44 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to moose

Saturday, May 19 Welcome to moose, whose RLS affects her everyday and prevents her from relaxing until she takes medication in the evenings. Please post a note telling us about your medication so that we may be able to offer you some suggestions to discuss with your doctor for improving your situati...
by Rustsmith
Sat May 19, 2018 4:43 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to elsif

Saturday, May 19 Welcome to elsif, who is 27 and on 4mg of ropinerol to combat increased frequency of RLS while on antidepressants. RLS has gotten worse since and he is on the max dose apparently, so he us in augmentation. He has had RLS since infancy. His mom, her twin brother, and his grandma have...
by Rustsmith
Sat May 19, 2018 12:22 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 215

Re: Recent restrictions on length of opioid prescriptions

That is exactly the reason for the question. You might even consider asking about "refractory RLS". If the answer is something like "what is that", it gives you an idea that at least the nurse isn't up to speed with post augmentation RLS.
by Rustsmith
Fri May 18, 2018 11:13 pm
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 215

Re: Recent restrictions on length of opioid prescriptions

mudslide, I will let others with experience with interstate prescriptions answer your question. I have a couple of suggestions for you to consider. 1) Once you know the name of the neurologist, call the office and ask to speak with a nurse. Ask the nurse if the doctor is familiar with treating augme...
by Rustsmith
Fri May 18, 2018 12:35 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 452

Welcome to drFred

Friday, May 18 Welcome to drFred, who has RLS and nothing seems to help. He is trying to connect with others who have RLS and is looking for suggestions and help in dealing with it. You have come to the right place to connect with others who have RLS. Please post a note telling us about what you hav...

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