Restless Legs Syndrome (RLS) Discussion Board

Thursday, June 21 Welcome to Janet Sinsel, who has had RLS for 42 years and treatment with Vicodin has been the most successful. Both Requip and Mirapex have made her ill. Her doctor is having to stop prescribing opiates, and she doesn't think he is very knowledgeable about RLS. So, she wants inform...

During the Foundation webinar yesterday, Dr Bainbridge said that it appears that you need a little bit of THC for CBD to provide the optimal benefits. But she also pointed out that there is VERY little research right now and that everything tends to be anecdotal. If she is correct, that could explai...

Thursday, June 21 Welcome to David Markle, whose RLS was treated successfully for 10 years with Mirapex. Then came augmentation with severe symptoms leading to severe sleep deprivation. Please post a note telling us what you are currently doing to treat your RLS and asking any questions that you have.

What dose have you been taking and do you know your ferritin number? Usually when Mirapex stops working, it is due to augmentation. That is where a dopamine agonist stops helping and starts making your RLS worse. This is a condition that is specific to RLS. When this happens, you need to get off of ...

Wednesday, June 20 Welcome to Loonlady, who has had Rls for several years & it is getting much worse & harder to manage, so she needs correct & current drug management. Please post a note telling us about your current medications so that we can offer you some specific suggestions to disc...

Tuesday, June 19

Welcome to

Billj, who suffers from RLS every evening and hasn’t slept more than 5 hours a night for the last three months.

Please post a note telling us what you are currently doing to treat your RLS so that we can offer some suggestions to discuss with your doctor.

Tuesday, June 19

Welcome to

Alladin Sane, who is a long time sufferer of RLS who is wanting to know more.

Please post a note telling us about your symptoms, what you are currently doing to manage and asking any questions that you have so that we can add to what you know about RLS.

Your ferritin level needs to be over 75 and preferably over 100, especially while you were on Neupro because low ferritin has been correlated with reduced time until you augment. But with that said, some people have problems increasing their ferritin levels with oral iron, like your Slow Fe. Even wh...

Monday, June 18

Welcome to

WalkingDead, who has been afflicted with RLS for almost 30 years.

Please post a note telling us a bit about your symptoms, about how you manage them and asking any questions where we might be able to offer some suggestions for improvements.

EeFall, since you have been a suboxone research experiment of one for all these years, maybe it is time to talk with your doctor to see about trying dipyridamole. Judging from the experience of others on the board who have tried it, you probably couldn't get completely off of suboxone, but if the di...

Monday, June 18 Welcome to dmmmt, who has severe RLS starting every night from 2-3am until about noon next day. Please post a note telling us a bit about what you are currently doing to manage your RLS and asking any questions that you have so that we can suggest some things to discuss with your doc...

Monday, June 18 Welcome to mnfmn, who cannot sleep till 4 or 5 am then needs too rise at 8am for each day's journey. mnfmn feels tired and cranky cannot produce at work. Please post a note telling us what you are doing to manage your RLS. We would love to offer you some suggestions for improvement.

Monday, June 18 Welcome to JulHer1968, whose RLS seems to be dominating her life at present. She is 68 and in retrospect has probably had it all her life. Currently she is on opiates and pramipexole and is chronically sleep deprived. Only her husband and son understand she is in need of support. She...

Saturday, June 16 Welcome to Jberube, who has spent the last 8 days, 7nights in a severe RLS attack. 24/7 no sleep, constant craziness. She prays for help, information and peace of knowing she is Not Alone. You are absolutely not alone with this. Please post a note telling us what you have been taki...

Thursday, June 14 Welcome to Schrag, who asked to join while writing at a standing desk at 3:43am, legs tingling and no sleep in sight. Every month or so his symptoms worsen and he can't sleep at all for 2-3 nights. He has a good sleep expert, a neurologist, and a psychiatrist helping him figure thi...