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by Rustsmith
Fri Nov 17, 2017 11:17 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to dboy

Friday, November 17 Welcome to dboy, who has had RLS for several years, but got worse after a couple of surgeries last year. dboy has tried to narrow down what causes it but nothing that has been cut out of diet or lifestyle has made a difference. After you have a chance to take a look around, pleas...
by Rustsmith
Fri Nov 17, 2017 5:53 pm
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 0
Views: 4

Next Foundation Webinar - Opioid Advocacy

The next Foundation webinar will be held on December 5 at 3PM Eastern time. The topic will be "Advocacy and Policy Implications from the Opioid Crisis". Participation in the live webinar is available to everyone (i.e. only webinar recordings are restricted to Foundation members). To regist...
by Rustsmith
Fri Nov 17, 2017 1:56 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to Keepwellusa

Friday, November 17 Welcome to Keepwellusa, who suffers with restless legs syndrome and it spread to the hands and arm. Are you currently taking anything for your RLS? Spreading from the legs to the arms is one of the criteria for augmentation due to dopamine agonists. Please post a note telling us ...
by Rustsmith
Thu Nov 16, 2017 5:29 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to DrWill2010

Thursday, November 16 Welcome to DrWill2010, who has RLS that has progressed to daytime symptoms in the trunk as well as legs. He is an emergency medicine physician and wishes to continue to support efforts against this terrible disease. Please post a note telling us what you are doing to manage you...
by Rustsmith
Thu Nov 16, 2017 2:04 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to Chudleigh

Thursday, November 16 Welcome to Chudleigh, whose RLS has negatively impacted her ability to make/keep commitments in volunteering and social invitations. She never knows whether she will get adequate sleep to do those things or be too exhausted to venture out of the house. Please take a look around...
by Rustsmith
Thu Nov 16, 2017 1:20 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 35
Views: 248

Re: New to Site; hello to all

Never smoked, so at 49 - not wanting to start now. One of the most effective ways to get the sedation effects of marijuana is as an edible. I have had mild asthma for many years, so there is no way that I am going be smoking anything (except for foods :) ). I am able to legally purchase marijuana c...
by Rustsmith
Wed Nov 15, 2017 8:29 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to Koontzd

Wednesday, November 15 Welcome to Koontzd, who has been suffering with RLS for the past year. It is getting worse to the point of keeping her partner awake. She is looking for advice, support, information, etc. Please post a note telling us about your symptoms, what you are currently doing to manage...
by Rustsmith
Wed Nov 15, 2017 4:33 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to EFOUR

Wednesday, November 15 Welcome to EFOUR, who has suffered with RLS (including limb movements) for over 40 years. It has a profound affect on quality of life (sleep, travel, life without medications is unbearable). EFOUR would like to keep abreast of studies and to participate in those studies when a...
by Rustsmith
Wed Nov 15, 2017 1:49 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 67

Re: random rant about a doctor

For the hypoxia, the best source of information was the Foundation webinar titled "Iron, Hypoxy and RLS" presented by two researchers at Penn State Univ on Oct 14, 2016.
by Rustsmith
Wed Nov 15, 2017 3:29 am
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to ynonneyohe

Tuesday, November 14

Welcome to

yvonneyohe, who lived & functioned for 32 years with this condition. Nighttime was sheer torture and in the daytime she was a zombie.

Please post a note telling us what you are doing to manage your RLS and asking any questions you have.
by Rustsmith
Tue Nov 14, 2017 9:34 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to jackmac

Tuesday, November 14

Welcome to

jackmac, who has RLS and would like to learn from others and share his findings.

Please feel free to post a note telling us about your RLS, what you do to manage it and asking any questions that you have.
by Rustsmith
Tue Nov 14, 2017 9:24 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to MikeD

Tuesday, November 14 Welcome to MikeD, who has had RLS for several years. He primarily uses Rx and supplement therapies but is trying to learn and do better with diet and exercise. He would say he is at the moderate level (on Rx's) to severe level (without meds). Please feel free to post a note tell...
by Rustsmith
Tue Nov 14, 2017 4:49 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to marshals

Tuesday, November 14

Welcome to

marshals, who is a researcher for RLS and has a study to share that might benefit many people in this support group.

Please post a note telling us about your study, we are always receptive to something that helps.
by Rustsmith
Mon Nov 13, 2017 11:15 pm
Forum: Just Joined?
Topic: NOVEMBER 2017 - NEW MEMBERS
Replies: 31
Views: 186

Welcome to sachemfoo

Monday, November 13 Welcome to sachemfoo, who after spending the past 20+ years (I'm in my mid-40s) chronically tired, struggling to concentrate and to remember things, finally had a sleep study and was found to have PLMD (~120 movements/hour; 42 arousals/hour). It was initially exciting to have a d...
by Rustsmith
Mon Nov 13, 2017 7:28 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 67

Re: random rant about a doctor

Sorry, I don't remember that survey at all, so there is a good chance that it was about the time that I was diagnosed and first joined the board. Hopefully Betty will remember.

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