Search found 4377 matches

by Rustsmith
Tue Apr 20, 2021 9:03 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to Elaine

Tuesday, April 20 Welcome to Elaine, who has just been diagnosed and wants to learn more about RLS. We are sorry that you need us but glad that you found us. We would be happy to help answer any questions that you have. All that you need to do is to post a note with your questions and we will do our...
by Rustsmith
Tue Apr 20, 2021 3:42 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to WideBody

Tuesday, April 20 Welcome to WideBody, who RLS IS life. WideBody has to deal with it every time WideBody tries to rest. Every time. WideBody wants it to end and wants to find non-pharmacological solutions. There are not many non-pharmacological ways to treat RLS. You can find a description of some t...
by Rustsmith
Tue Apr 20, 2021 1:14 pm
Forum: Just Joined?
Topic: RLS behind knee caps New to forum
Replies: 3
Views: 62

Re: RLS behind knee caps New to forum

Is there something that would work better. The opioid that is frequently the first choice is methadone, which is very inexpensive. It is preferred because it has a mild effect on the dopamine receptors and is a 1/day medication due to its long half life. The normal starting dose of 5mg works for ma...
by Rustsmith
Mon Apr 19, 2021 7:58 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to RAA

Monday, April 19 Welcome to RAA, who has had RLS all her life. She is currently being treated at Mayo, in Rochester MN. She wants to be able to keep up with the latest RLS news, as she does not live close to Mayo. It will be good to hear what challenges others experience. Welcome to the group. You c...
by Rustsmith
Mon Apr 19, 2021 7:31 pm
Forum: Just Joined?
Topic: Venous Insufficiency
Replies: 1
Views: 19

Venous Insufficiency

Charles, I moved your note into a new discussion thread so that others can find it more easily. If you will type "venous insufficiency" into the search box at the top of this page, you will find a number of past postings on the topic. After seeing your note, I did a bit of searching. The RLS Foundat...
by Rustsmith
Mon Apr 19, 2021 3:24 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to Mary 6820

Sunday, April 18 Welcome to Mary 6820, who saw a doctor for the first time about the crawly feeling behind my knees she was 19; she is now 75 years old and has the worst symptoms since she started on meds in her 40's. She was stable on Mirapex for 10 + years but it stopped working 3 months ago. She ...
by Rustsmith
Sat Apr 17, 2021 5:11 am
Forum: Prescription Medications
Topic: Iron Infusion - When Will Insurance Pay?
Replies: 7
Views: 131

Re: Iron Infusion - When Will Insurance Pay?

This may be a bit of too much information, but if you just look at the bar charts in this paper you will see how Injectifer (iron carboxymaltose) is better for RLS. Some of the other products do better for treating anemia, which is what hematologists are more familiar with and so they may "prefer" t...
by Rustsmith
Fri Apr 16, 2021 2:40 pm
Forum: Prescription Medications
Topic: Pramipexole versus Lyrica/pregabalin? Or gabapentin?
Replies: 5
Views: 51

Re: Pramipexole versus Lyrica/pregabalin? Or gabapentin?

You are correct that Lyrica/pregabalin comes in capsule form instead of the tablets for pramipexole. In studies, the most effective pregabalin dose for RLS ranged from 35 to 120 mg/day. I suspect that your doctor would follow the standard procedure for gabapentin, which is to start at the lowest dos...
by Rustsmith
Fri Apr 16, 2021 3:56 am
Forum: Prescription Medications
Topic: Pramipexole versus Lyrica/pregabalin? Or gabapentin?
Replies: 5
Views: 51

Re: Pramipexole versus Lyrica/pregabalin? Or gabapentin?

Pregabalin is similar to gabapentin, but has a distinct advantage in that it does not suffer from the dosing variabilities of gabapentin. Gabapentin is only adsorbed by a short length of the intestines and so sometimes you get most of the dose and sometimes you do not. This limitation is what lead t...
by Rustsmith
Wed Apr 14, 2021 3:04 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to WarriorC

Wednesday, April 14

Welcome to

WarriorC, who has debilitating RLS and would love to connect via Zoom with Warrior's tribe!

The discussion board system is not set up to be able to find people via Zoom. However, if someone would like to exchange info with you via our PM system, that would work.
by Rustsmith
Mon Apr 12, 2021 12:59 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to Gumboots

Monday, April 12 Welcome to Gumboots, whose RLS effects his daily life and is now so intense it is even in his legs, arms, shoulders, back and neck. Are you currently taking a dopamine agonist (pramipexole, ropinerole or rotigatine)? If you are, then your symptoms point toward augmentation. If not, ...
by Rustsmith
Mon Apr 12, 2021 1:57 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to kgmoore2187

Sunday, April 11 Welcome to kgmoore2187, who developed severe pricking sensations and leg jerks about 4 years ago. kgmoore experienced this all day long but it is worse at night when at rest. kgmoore is young, 33, so getting doctors to believe the severity of the symptoms and impact on life was hard...
by Rustsmith
Mon Apr 12, 2021 12:25 am
Forum: Augmentation
Topic: Pit of despair.
Replies: 6
Views: 101

Re: Pit of despair.

Potential Methadone conflicts have not come up, but I will be sure to ask. Deb and I both use a CPAP machine (I have UARS and Deb has central apnea) and we both live at elevation in the Rockies. I also take gabapentin, which is a central nervous system depressant like all of the opioids. Every time...
by Rustsmith
Sun Apr 11, 2021 7:29 pm
Forum: Augmentation
Topic: Pit of despair.
Replies: 6
Views: 101

Re: Pit of despair.

frickets, you cannot understand how incredibly lucky you are to have found these new doctors. The plan that they have you on is far better than most people get when trying to come down off a very high dose of pramipexole. Stopping too quickly runs the risk of developing dopamine agonist withdrawal s...
by Rustsmith
Sun Apr 11, 2021 3:05 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 20
Views: 233

Welcome to Janis

Saturday, April 10 Welcome to Janis, whose RLS has affected her ability to sleep. It has caused considerable stress in her relationships and her quality of life. We would love to be able to help you regain control of your life. If you are willing to post a message telling us what you are currently d...