Search found 2755 matches

by Rustsmith
Thu Dec 13, 2018 7:50 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 73
Views: 1806

Re: Back Surgery and RLS plus spasms

Wonderful news. At this point, even if you cannot get completely off of the meds, you are still so much better than before. Makes me a bit envious :D
by Rustsmith
Thu Dec 13, 2018 4:51 pm
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to bslemmer

Thursday, December 13

Welcome to

bslemmer, who has had restless legs for years and as it is getting worse with age. Hoping to find some way to get sleep.

Please post a note telling us what you are doing to manage your RLS so that we can offer you some specific suggestions to improve your sleep.
by Rustsmith
Thu Dec 13, 2018 3:22 pm
Forum: Prescription Medications
Topic: Opiates and Non-Texas Prescribers
Replies: 1
Views: 14

Re: Opiates and Non-Texas Prescribers

Two weeks is a very short time to find a doctor AND to get a new patient appointment. When I moved to Colorado from Houston, it took four months to get an appointment with an RLS specialist. There are two different approaches that you can use. My first suggestion would be to call the RLS Foundation ...
by Rustsmith
Thu Dec 13, 2018 5:08 am
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to Andie733

Wednesday, December 12 Welcome to Andie733, who has been suffering with RLS for about 8 years. It's having a major impact on all aspects of her life. She wants to be part of a community of people who understand living with RLS. Unfortunately we all understand about living with RLS. Please post a not...
by Rustsmith
Wed Dec 12, 2018 1:34 am
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to Vincent

Tuesday, December 11 Welcome to Vincent, who dreads going to bed at night. What drug cocktail to try tonight to try to prevent the inevitable? We all understand that dread. Please post a note telling us about the meds and the combination that you are using. Perhaps we can offer some suggestions for ...
by Rustsmith
Tue Dec 11, 2018 8:35 pm
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to torch81

Tuesday, December 11 Welcome to torch81, who works in the military and can't stand without moving. His wife has a hard time sleeping next to him when he kicks a lot so it has put a lot of stress in the home as well work. There are medications that can help relieve some of the symptoms that you are e...
by Rustsmith
Mon Dec 10, 2018 5:14 pm
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to Beverdp

Monday, December 10 Welcome to Beverdp, who has had RLS for years and it seems to be getting worse. It is very unpleasant every evening. Please post a note telling us about what you are doing to manage your RLS and asking any questions that you have about it. We would love to be able to help you imp...
by Rustsmith
Mon Dec 10, 2018 2:57 pm
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to zeefy

Monday, December 10 Welcome to zeefy, who suffers from RLS and needs to talk about it and get ideas for how to lessen the sensations. zeefy can't sleep at night and that is creating misery. Please post a note telling us about your current treatment and symptoms so that we can offer some suggestions ...
by Rustsmith
Sun Dec 09, 2018 6:51 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 127
Views: 29736

Re: Is your DA causing augmentation?

Eileen, I wish that you hadn't needed to find us but I am glad that you did. I also wish that you tale of woe wasn't unusual, but it is one that many of us have been through ourselves. Obviously you need to find a doctor who is capable and willing to treat your RLS. One option is to travel to one of...
by Rustsmith
Sat Dec 08, 2018 9:21 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 3
Views: 42

Re: Using Trail Camera to observe RLS

I don't even try to monitor deep sleep. I was placed on a CPAP machine when I was first diagnosed with RLS because I also have a form of sleep apnea called UARS. CPAP isn't recognized as a treatment for UARS, but then nothing else is. But one of the advantages of the CPAP is that it records the tim...
by Rustsmith
Sat Dec 08, 2018 9:18 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 7
Views: 794

Re: Attempting to get off Ropinirole - again

looking at the map I am disappointed to see how FEW Foundation Quality Care Centers are in existence Part of the problem is that there are so few doctors who are well enough versed in the treatment of RLS to become Quality Care Centers. The other issue is that there are doctors out there (mine is o...
by Rustsmith
Sat Dec 08, 2018 3:07 pm
Forum: Just Joined?
Topic: DECEMBER 2018 - NEW MEMBERS
Replies: 16
Views: 198

Welcome to sleeplessEileen

Saturday, December 8 Welcome to sleeplessEileen, whose RLS is slowly killing her. She is consumed with fear of a future filled with torture that she believes will one day kill her. She is so sad to lose her life, her children, friends and family because of this illness. The saddest part to her is th...
by Rustsmith
Fri Dec 07, 2018 11:31 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 7
Views: 794

Re: Attempting to get off Ropinirole - again

I've been trying to get off Ropinirole for 4 years, also unsuccessfully. It seems to be the only thing that works. I am currently experiencing augmentation symptoms. I really think that doctors don't understand/know how to treat this disease. Getting off of ropinirole requires finding a doctor who ...
by Rustsmith
Fri Dec 07, 2018 3:55 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 14
Views: 898

Re: Experience with Injectafer?

Holland, hope this trend continues and that you are able to back down on some of your meds. What a wonderful thought. I wish I was a candidate, but sadly I am not since my ferritin level is over 600 and that did not ease my symptoms at all.
by Rustsmith
Thu Dec 06, 2018 8:32 pm
Forum: Just Joined?
Topic: New to this group
Replies: 6
Views: 102

Re: New to this group

The maximum recommended dose of pramipexole to treat RLS these days is 0.25mg/day. At a combined total of 1.5mg/day and with the symptoms that you describe, you are almost certainly experiencing augmentation, which is a side effect that is specific to RLS. Take a look at our forum on Augmentation to...

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