Search found 2110 matches

by Rustsmith
Wed Jan 24, 2018 1:34 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 13
Views: 106

Re: Progress with my local doctor?

My next move is to go back to what I have been doing for the past 2 years, which is making the 200 mile round trip to Denver every quarter to see my doctor there and pick up my next prescription. However, this may work out in the long run. After I posted my note this afternoon, I got a call from one...
by Rustsmith
Wed Jan 24, 2018 1:30 am
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to seanh

Tuesday, January 23 Welcome to seanh, who suffers from by RLS, by having trouble sleeping and shaking his legs. seanh recently started to take medication and is looking for remedies. After you get a chance to look around, please post a note telling us about your medication and asking any questions t...
by Rustsmith
Tue Jan 23, 2018 9:51 pm
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 13
Views: 106

Re: Progress with my local doctor?

Went to the appointment with my GP this morning. :evil: The clinic insisted that I sign their opioid contract without any modifications. Although my doctor admitted that there were several totally incorrect statements, such as "I understand that I have a chronic pain problem" and "I u...
by Rustsmith
Tue Jan 23, 2018 6:47 pm
Forum: Augmentation
Topic: Tramadol while tapering Sinemet
Replies: 2
Views: 10

Re: Tramadol while tapering Sinemet

Yes, Tramadol is considered an opioid. However, it is on Schedule IV where many of the others are on Schedule 2. That means that although it is still an opioid, your doctor might be more willing to prescribe it than something like methadone.
by Rustsmith
Tue Jan 23, 2018 4:19 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Wecome to toubadoct

Tuesday, January 23 Welcome to toubadoct, who has tried any number of meds for RLS but opioids work best without nasty side-effects. Trouble is that docs are afraid to prescribe them...but you all know that already. And toubadoct is a doctor! Please take a look at the Foundation's website (http://ww...
by Rustsmith
Tue Jan 23, 2018 2:00 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to Avtar Singh

Tuesday, January 23 Welcome to Avtar Singh, who is 67 Yrs and not getting sleep due to RLS. After meals jos RLS is more severe. He is experiencing rapid loss of memory. He had a spine injury (D9 & D10 joint) 20 yrs back. and is an ex-sportsman(Cyclist) who needs help to pull him out of his prese...
by Rustsmith
Tue Jan 23, 2018 1:19 am
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to longear1

Monday, January 22

Welcome to

longear1, whose RLS has about ruined her life. She has had it since about age 3 and since menopause it's worse.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
by Rustsmith
Fri Jan 19, 2018 7:41 pm
Forum: General Topics: RLS/WED
Topic: RLS Advocacy
Replies: 0
Views: 23

RLS Advocacy

Twice during the past week I have been asked to speak with RLS patients who are at serious risk of losing access to their opioid medications due to changes in the laws or the policies of insurance companies. If you have not already done so, PLEASE sign up to become an RLS advocate. You can find out ...
by Rustsmith
Fri Jan 19, 2018 4:58 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to rjdishon

Friday, January 19 Welcome to rjdishon, who is currently take 4 mg of Klonopin and 4 mg of Requip per evening to be able to sleep; however, rjdishon suffers from RLS symptoms throughout the day. rjdishon has a computer lifter to use for approx. the last 4 hours of the workday because of an inability...
by Rustsmith
Fri Jan 19, 2018 2:07 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to Brin1861

Friday, January 19 Welcome to Brin1861, who says Omgosh, there's actually a foundation for restless legs! She has suffered with restless legs for over 30 years, at first her doctor said she must be laying on them wrong...there is no help. She takes 1 mg Mirapex which helped in the beginning if she t...
by Rustsmith
Wed Jan 17, 2018 11:53 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to LillianPhilbin

Wednesday, January 17 Welcome to LillinaPhilbin, who RLS makes her unable to get a full nights sleep - she keeps tossing and turning. So it affects her relationship with her partner at night and upon awakening. Please post a note telling us what you are doing to manage your RLS and asking any questi...
by Rustsmith
Wed Jan 17, 2018 5:16 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to Lilmo

Wednesday, January 17 Welcome to Lilmo, who wants to talk with others in same state as she just to know she is not the only one suffering. When it starts, she get so restless and stressed out trying to deal with it. Last night she didn't get to bed at all because she couldn't settle it. Please post ...
by Rustsmith
Wed Jan 17, 2018 3:31 am
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to Brisbaneite

Tuesday, January 16 Welcome to Brisbaneite, who is a long time sufferer of RLS as was Brisbaneite's mother. This condition severely affects the ability to have a good night's sleep and leads to inability to get out of bed early, daytime drowsiness and lethargy. Please post a note telling us a bit ab...
by Rustsmith
Tue Jan 16, 2018 11:49 pm
Forum: General Topics: RLS/WED
Topic: Treatment for Refractory RLS at Quality Care Clinics
Replies: 4
Views: 54

Re: Treatment for Refractory RLS at Quality Care Clinics

I'm soon to be an Advocate for RLS with our elected representatives so I will use this feedback for the good of RLS sufferers. Thanks for joining the Advocacy program. For others, becoming an advocate is very easy and does not take much of your time at all. They provide you with the basis for a let...
by Rustsmith
Tue Jan 16, 2018 11:43 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 27
Views: 254

Welcome to i-o-u

Tuesday, January 16 Welcome to i-o-u, who has symptoms day in & day out- with the worst being from 5:30pm-2am. i-o-u has tried to stay off the meds, having come off many meds needed for treatment of Chronic Lyme Disease & it’s symptoms but has traded one loaded bag for another. So, is wonder...

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