Search found 2192 matches

by Rustsmith
Thu Feb 22, 2018 5:04 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to Markg

Thursday, February 22

Welcome to

Markg, who has RLS symptoms and is Interested to know more.

Please take a look around and then post a note telling us about your symptoms and asking any questions that you have. We would love to be able to help you out.
by Rustsmith
Thu Feb 22, 2018 3:10 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to Kristinapw

Thursday, February 22 Welcome to Kristinapw, whose legs twitch and hurt all of the time whether she is laying down or sitting. Not only do they twitch but they hurt as do her feet. Please post a note telling whether you have a diagnosis of RLS. Your symptoms are close, but there are other things tha...
by Rustsmith
Tue Feb 20, 2018 7:46 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 1
Views: 44

Re: NeuPro: keeping track of patch locations

MikeD, I was on the patch for 15 months before augmentation caught up me again. I started out with a similar approach. I found that after a month or so that I had identified 14 locations where the patch 1) worked, 2) would stay attached, 3) didn't cause too much irritation, and 4) wasn't didn't caus...
by Rustsmith
Mon Feb 19, 2018 12:28 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 71
Views: 906

Re: Dipyridamole

it's just that I am unlikely to live long enough for it to be practical for me. Holland, that makes two of us. As for an intrathecal iron preparation, I would have to give a LOT of thought before I was willing to try that, especially since it would not be a one-time treatment (at least hopefully if...
by Rustsmith
Sun Feb 18, 2018 11:51 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 71
Views: 906

Re: Dipyridamole

I think you made a comment in jest recently about needing DNA modifications. That is what some of us will require to address brain iron deficiency. The RLS genetics paper published last year by Dr Winkleman, et al. reported that the RLS variants for both the MEIS1 and BTBD9 genes are probably relate...
by Rustsmith
Sun Feb 18, 2018 9:02 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 71
Views: 906

Re: Dipyridamole

I was thinking that sleepiness is primarily an effect of adenosine on the glutamatergic system and the urge to move is primarily a dopaminergic system effect. Wouldn't it be more likely that the initial sleepiness is due to the spike in adenosine, whose role in wake/sleep is to cause a feeling of s...
by Rustsmith
Sat Feb 17, 2018 6:46 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to jjgcmg56

Saturday, February 17 Welcome to jjgcmg56, whom he and his wife have suffered from chronic lower lower back and neck pain as well as RLS for years. His wife also has neuropathy throughout her body. Please post a note telling us what you are currently taking to manage your pain, neuropathy and RLS. W...
by Rustsmith
Sat Feb 17, 2018 6:43 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to lacey97

Saturday, February 17 Welcome to lacey97, who is very interested in sharing and learning about this terrible disorder. She is suffering more now than ever and hopes to help someone else or find help with support. We can very definitely provide support and maybe even some suggestions to improve your ...
by Rustsmith
Thu Feb 15, 2018 3:31 am
Forum: Augmentation
Topic: Topic of the Year
Replies: 43
Views: 9012

Re: Topic of the Year

Billdel, you are very fortunate that the impulse issue that you had was eating and not gambling or shopping, like some pramipexole users. At least this way, you understood that something was wrong and found the cause on your own. Many have to have interventions from family members, often after perso...
by Rustsmith
Tue Feb 13, 2018 6:35 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to Deb B.

Tuesday, February 13 Welcome to Deb B, who has had RLS her whole life but was diagnosed 15 years ago. She is 59 years old. She has to sleep alone, is always tired, pills are a drain on the pocketbook and she just hates the creepy feeling. Please post a note telling us what you are (of have been) tak...
by Rustsmith
Mon Feb 12, 2018 10:05 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to ChattyKathy

Monday, February 12

Welcome to

ChattyKathy, whose RLS is driving her insane!!

Please post a note telling us a bit about your current medications and anything else you are doing to manage the symptoms. We would love to be able to offer some suggestions for you to consider.
by Rustsmith
Mon Feb 12, 2018 9:59 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 24
Views: 312

Welcome to judiart

Monday, February 12 Welcome to judiart, who has suffered for 60 years with separate bedrooms, separate sleep hours, thousands of hours of discomfort and frustration. Also medicines that don't work or that have unacceptable side effects. Please post a note telling us what you are currently doing to m...
by Rustsmith
Mon Feb 12, 2018 8:34 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 13
Views: 117

Re: Discussion of Adenosine paper

Holland, I'm not sure about the urge to move vs PLMS issue. But in the recent paper where they did the genome wide survey that identified something like 14 new RLS genes, they made a comment about PLMS being a genetic subset of RLS. MAYBE that is what the authors were considering, i.e. PLMS is relat...
by Rustsmith
Sun Feb 11, 2018 7:42 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 13
Views: 117

Discussion of Adenosine paper

Beth, I totally agree with your barking comment. I found quite a bit about hyperarousal with PTSD. It appeared that there was a link because the spoke about it occurring with patients were self medicating. But I quickly realized that I wasn't comfortable with the connections that MIGHT have been the...
by Rustsmith
Sun Feb 11, 2018 7:01 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 13
Views: 117

Discussion of Adenosine paper

I haven't been able to find much literature that connects opioids and hyperarousal. That doesn't mean that it isn't there, but it might be too old and well established to get hits from the search engines that I tried using. Insomnia and sleep problems are listed as a side effect for opioids, but tha...

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