Search found 2652 matches

by Rustsmith
Tue Oct 16, 2018 1:13 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to BeckyS

Tuesday, October 16

Welcome to

BeckyS, who is an RLS Foundation member and was diagnosed with RLS in 1980.

Thank you for your Foundation membership. Please post a note telling us a bit about your RLS and what you are doing to manage it. We might be able to offer some suggestions for improvement.
by Rustsmith
Tue Oct 16, 2018 1:06 pm
Forum: Just Joined?
Topic: Specialist to see?
Replies: 3
Views: 13

Re: Specialist to see?

The specialties that are often the most knowledgeable or RLS are the neurologists who specialize in either sleep medicine or movement disorders. This means that you cannot simply look for a neurologist. There are about eight of them in my town and none of them knows anything about RLS. In addition t...
by Rustsmith
Tue Oct 16, 2018 2:58 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to Audreylovescolor

Monday, October 15 Welcome to Audreylovescolor, who wants to join because she can't take it anymore with the painful RLS. She is hoping someone can help... Please post a note telling us a bit about the history of your RLS and what you are currently doing to manage it so that we can offer you some su...
by Rustsmith
Mon Oct 15, 2018 10:33 pm
Forum: Just Joined?
Topic: Recently Diagnosed
Replies: 11
Views: 620

Re: Recently Diagnosed

No ED, but I regularly go up and down on my gabapentin dose because I have difficulty reaching orgasm when the dose gets to 900 or 1200.
by Rustsmith
Sat Oct 13, 2018 3:24 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to GamerGirlAmy

Saturday, October 13 Welcome to GamerGirlAmy, whose mom developed RLS when fighting MS. The MS went into remission, the RLS did not. It did vanish when she had to start taking codeine for another unrelated condition. But now that she doesn't take the pain relievers as often, the RLS started to crop ...
by Rustsmith
Sat Oct 13, 2018 1:05 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to Sherryl

Friday, October 12 Welcome to Sherryl, whose quality of life has been dramatically reduced with increasing symptoms of RLS. The medications she is trying make her so tired it has added to depression. Please post a note telling us what you are taking (and the dose) so that we can offer you some sugge...
by Rustsmith
Fri Oct 12, 2018 3:49 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to Sentimental01

Thursday, October 11 Welcome to Sentimental01, whose RLS has made it difficult to participate in some activities, especially in the evening. Of course, it has affected sleep. It has made it difficult to travel. The side effects of the medication makes it more difficult to concentrate and remember th...
by Rustsmith
Fri Oct 12, 2018 3:45 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 9
Views: 82

Re: Social Security - US

Debbie filed for SSDI when she was 30 due to MS. It took 2 years of struggle before she was finally approved. At least at that time, over 90% of all applicants are turned down the first time around. For the first appeal, at least 50% were turned down at that stage. For the second appeal, you have to...
by Rustsmith
Thu Oct 11, 2018 11:49 pm
Forum: Help for Relationships
Topic: For Anyone Who Thinks RLS is a Joke
Replies: 13
Views: 198

Re: For Anyone Who Thinks RLS is a Joke

Last month when I had to stop taking methadone due to the extreme apathy that it was causing, I initially thought "how much worse can it be than it was before I started treatment?" After all, I went for several years of severe RLS before changing doctors and being diagnosed in less than a ...
by Rustsmith
Thu Oct 11, 2018 11:35 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 20
Views: 2525

Re: Sleeping Arrangements

Sleepless, although I am the one with RLS and PLMS, I am also a very light sleeper. My wife has recently developed a mild form of PLMS, so I have an idea of what it is like to get kicked. She is the sound sleeper, so she sleeps through most of my tossing and turning. Our solution was the California ...
by Rustsmith
Tue Oct 09, 2018 12:39 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to Smdavid6412

Tuesday, October 9

Welcome to

Smdavid6412, whose RLS has progressed from a nuisance to a life altering problem. She was thrilled to find RLS.org to help find answers and relief.

Please post a note telling us what you are doing to manage your RLS and asking any questions you have.
by Rustsmith
Tue Oct 09, 2018 12:37 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to Meg1994

Tuesday, October 9 Welcome to Meg1994, has had RLS since she was 10. She is 42 now and it is very severe. It is now in her arms as well as her legs. She hse been on every medication available and nothing helps. She has tried so many natural things and nothing helps. Morphine is the only thing that e...
by Rustsmith
Tue Oct 09, 2018 10:34 am
Forum: Just Joined?
Topic: Lifetime RLS/WED here to say hi!
Replies: 12
Views: 160

Re: Lifetime RLS/WED here to say hi!

James, welcome and sorry that you had to find us. Most of us have spent a lifetime with this condition and it is not fun. Educate both yourself and your partner since this is a condition that impacts both of you and you will need support at various times in the future. Did you find out what your fer...
by Rustsmith
Tue Oct 09, 2018 12:03 am
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 108

Re: refractory rls and psoriasis relationship

Here is a link to a paper that indicates that there may be some sort of unknown relationship between RLS and psoriasis

https://link.springer.com/article/10.1684/ejd.2015.2525
by Rustsmith
Sun Oct 07, 2018 4:30 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 17
Views: 260

Welcome to mlc470

Sunday, October 7 Welcome to mlc470, who has been diagnosed with RLS, though mlc's neurologist doesn't understand some of the symptoms. Would like to talk to people who have similar episodes. Feel a bit at a loss. Please post a note telling us about these symptoms as well as how your neurologist is ...

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