Search found 4368 matches

by Rustsmith
Wed Apr 14, 2021 3:04 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to WarriorC

Wednesday, April 14

Welcome to

WarriorC, who has debilitating RLS and would love to connect via Zoom with Warrior's tribe!

The discussion board system is not set up to be able to find people via Zoom. However, if someone would like to exchange info with you via our PM system, that would work.
by Rustsmith
Mon Apr 12, 2021 12:59 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to Gumboots

Monday, April 12 Welcome to Gumboots, whose RLS effects his daily life and is now so intense it is even in his legs, arms, shoulders, back and neck. Are you currently taking a dopamine agonist (pramipexole, ropinerole or rotigatine)? If you are, then your symptoms point toward augmentation. If not, ...
by Rustsmith
Mon Apr 12, 2021 1:57 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to kgmoore2187

Sunday, April 11 Welcome to kgmoore2187, who developed severe pricking sensations and leg jerks about 4 years ago. kgmoore experienced this all day long but it is worse at night when at rest. kgmoore is young, 33, so getting doctors to believe the severity of the symptoms and impact on life was hard...
by Rustsmith
Mon Apr 12, 2021 12:25 am
Forum: Augmentation
Topic: Pit of despair.
Replies: 6
Views: 51

Re: Pit of despair.

Potential Methadone conflicts have not come up, but I will be sure to ask. Deb and I both use a CPAP machine (I have UARS and Deb has central apnea) and we both live at elevation in the Rockies. I also take gabapentin, which is a central nervous system depressant like all of the opioids. Every time...
by Rustsmith
Sun Apr 11, 2021 7:29 pm
Forum: Augmentation
Topic: Pit of despair.
Replies: 6
Views: 51

Re: Pit of despair.

frickets, you cannot understand how incredibly lucky you are to have found these new doctors. The plan that they have you on is far better than most people get when trying to come down off a very high dose of pramipexole. Stopping too quickly runs the risk of developing dopamine agonist withdrawal s...
by Rustsmith
Sun Apr 11, 2021 3:05 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to Janis

Saturday, April 10 Welcome to Janis, whose RLS has affected her ability to sleep. It has caused considerable stress in her relationships and her quality of life. We would love to be able to help you regain control of your life. If you are willing to post a message telling us what you are currently d...
by Rustsmith
Sun Apr 11, 2021 12:22 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to jess

Saturday, April 10 Welcome to jess, who has had RLS since age 20 yrs. jess's symptoms occur only occasionally so the disease has not had a great impact on my life. jess is very interested in current research because you never know if this disease will get worse with age. You will find quite a bit of...
by Rustsmith
Sat Apr 10, 2021 2:42 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to LeanneRW

Friday, April 9 Welcome to LeanneRW, whose RLS is getting worse and she is about at wits end! She could use relief and talking to people who can relate and understand. We would be happy to help with some suggestions, answers to questions or simply understanding. If you will post a note telling us wh...
by Rustsmith
Sat Apr 10, 2021 12:14 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to GMZLYoung44

Friday, April 9 Welcome to GMLZYoung44, who is miserable with RLS. Young has to deal with it all day at work, then at home too until it becomes so intolerable and that Young has to go lay down to try and stretch the legs. Are you doing anything other than stretching to manage your RLS? Do you have a...
by Rustsmith
Fri Apr 09, 2021 10:15 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to Leighla13

Friday, April 9 Welcome to Leighla13, who has had RLS on and off for 45 years. She is on medication now, but it is not working as well anymore and she is worried about augmentation. The loss of sleep is the worst part. If your medication isn't working as well, augmentation is a possibility. If you w...
by Rustsmith
Fri Apr 09, 2021 9:01 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to whough

Friday, April 9 Welcome to whough, who has suffered with RLS for 40 years. 35 years ago, whough tried to enter a NIH study in Bethesda but was disqualified due to low iron. whough is now taking Ropinirole, 3 or 4 years, started at .25 milligrams, now taking .5. Lot of days that has no effect or wear...
by Rustsmith
Thu Apr 08, 2021 1:29 am
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to Roseygirl

Wednesday, April 7

Welcome to

Roseygirl, who is miserable with RLS and it’s getting worse. She is looking for help.

We would love to be able to help you out. All you need to do is post a note telling us what sort of help we can provide and/or asking any questions that you have.
by Rustsmith
Wed Apr 07, 2021 9:59 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to ahankins737

Wednesday, April 7 Welcome to ahankins737, who has been struggling with RLS for many years and is trying to learn what her triggers are and how she can treat it without medication. It has definitely affected her sleep and in turn she is concerned about how menopause will go, which is right around th...
by Rustsmith
Wed Apr 07, 2021 6:44 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to EricP

Wednesday, April 7 Welcome to EricP, who has had RLS for most of his life, didn’t know what it was until he mentioned something to his dad and he said that Eric's grandma had it really bad. We would be happy to help you better understand your RLS. If you have any questions, just post a note and we w...
by Rustsmith
Wed Apr 07, 2021 3:32 pm
Forum: Just Joined?
Topic: APRIL 2021 - New Members
Replies: 16
Views: 142

Welcome to tomj83969

Wednesday, April 7 Welcome to tomj83969, who has been dealing with RLS for 18 years. He has progressed from 1 mg of Ropinirole daily in 2003 to at present 3 1/2 mg per day. In a word, he is miserable. He is looking for help, advice, and support. If you are having problems and are at 3.5mg of ropiner...