Search found 2885 matches

by Rustsmith
Sat Feb 23, 2019 12:25 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Dug

Saturday, February 23 Welcome to Dug, who has RLS, rather bad case too. Affects him all hours of the day and night. He is hoping to get others' opinions. Please post a note telling us about your RLS and what you are doing to manage it. We would love to be able to offer you our opinions on what you c...
by Rustsmith
Fri Feb 22, 2019 8:28 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Donredbucks

Friday, February 22 Welcome to Donredbucks, who has severe RLS and is being treated with Gabapentine and Suboxone, with moderate success. He still has some RLS and some unpleasant side effects. The general guidance is that your meds should control about 95% of your symptoms, so you might be doing we...
by Rustsmith
Fri Feb 22, 2019 5:07 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to sfisher

Friday, February 22 Welcome to sfisher, whose daughter has RLS. It is a daily hindrance on her life during school. They are wanting more information and to hear other peoples' stories that have gone through the same thing. Check out the posts in our Special Populations forum, which is where you will...
by Rustsmith
Fri Feb 22, 2019 3:03 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to s3v3n11

Friday, February 22 Welcome to s3v3n11, who has difficulty resting due to RLS. She takes medication but it doesn’t help very much anymore even after dosage increased. Medicine makes her nauseous. Please post a note telling us about the medicine and dose that is no longer working. It sounds like you ...
by Rustsmith
Thu Feb 21, 2019 4:47 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 61
Views: 1910

Re: Attempting to get off Ropinirole - again

PB, I am glad to see that for once, an administrative clerical error is working in your favor so that you can stay with your current clinic.
by Rustsmith
Tue Feb 19, 2019 11:19 pm
Forum: Prescription Medications
Topic: Opioid Study at Massachussets General
Replies: 11
Views: 1742

Re: Opioid Study at Massachussets General

The deadline to join the Opioid Registry at Massachusetts General Hospital has been extended to the end of June. If you haven't already joined, please do.
by Rustsmith
Tue Feb 19, 2019 10:55 pm
Forum: General Topics: RLS/WED
Topic: RLS Advocacy
Replies: 1
Views: 1239

Re: RLS Advocacy

The Foundation has scheduled Friday, May 3 as the RLS "Day on the Hill". Everyone is invited to come to Washington, DC to advocate for RLS on Capitol Hill in person. To find out more, go to https://rlsfoundation.blogspot.com/2019/02/speak-up-at-rls-day-on-hill-on-may-3.html
by Rustsmith
Tue Feb 19, 2019 9:23 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Prakash

Tuesday, February 19 Welcome to Prakash, who used to get a very uncomfortable feeling in both legs especially when sitting. Every so often Prakash would have to get up and walk around to get comfort. And at night would have to stretch to bring relief to fall asleep. Prakash is now on meds, but there...
by Rustsmith
Mon Feb 18, 2019 9:19 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 47

Re: Methadone to Buprenorphine

I have only heard of results with buprenorphine (Subaxone) from a couple of folks with RLS. One of the longer users goes by Eefall. Dr Earley put him on it a few years ago as a last ditch effort when everything else had failed. He has had some issues with it, but it worked on his RLS. I know of one ...
by Rustsmith
Sun Feb 17, 2019 10:15 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to ginsnews

Sunday, February 17 Welcome to ginsnews, who has had RLS for 37 years -since age 29. It was years before ginsnews even knew what it was as it was just a horrible inconvenience due to problems sitting through a movie, concert or airflight. Most nights ginsews was up kicking until purely exhausted. Th...
by Rustsmith
Sun Feb 17, 2019 8:18 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Cjseely1026

Sunday, February 17 Welcome to Cjseely1026, who has had RLS for over 50 years. She can’t enjoy movies or traveling and it causes her to lose sleep. It’s depressing. Depressing is one word for it. Please post a note telling us what you are doing to manage so that we can offer a few suggestions for im...
by Rustsmith
Sat Feb 16, 2019 9:52 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to girlsxfive

Saturday, February 16 Welcome to girlsxfive, who has insomnia and is drugged all the time, so quality of life is not good. Please post a note telling us what you are taking and the dose. There is no reason to feel drugged all the time, so we should be able to suggest something that you can discuss w...
by Rustsmith
Sat Feb 16, 2019 4:12 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Jrivory

Saturday, February 16

Welcome to

Jrivory, who has a family member who has suffered with RLS for decades.

Please feel free to post a note asking any questions that you have. We would love to be able to help your family out.
by Rustsmith
Sat Feb 16, 2019 3:45 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Dirk

Friday, February 15 Welcome to Dirk, who as a child, around 10 years old, he would would go with his family to our community’s annual high school musical. This was torture and he always had to excuse himself and walk the dark empty hallways of the school while the show went on. Now in his mid 50s he...
by Rustsmith
Fri Feb 15, 2019 9:11 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 44
Views: 405

Welcome to Bh.phxmech

Friday, February 15 Welcome to Bh.phxmech, who has had RLS since childhood. It effects sleep and is worsening with age. Legs went from constant movement and tingly sensation to just out right pain. Please post a note telling us what you are doing to manage your RLS. We may be able to offer some sugg...

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