Search found 2513 matches

by Rustsmith
Sat Aug 18, 2018 5:28 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 11
Views: 114

Re: Neupro

Augmentation is a common complication that occurs when taking a dopamine agonist, like pramipexole, for an extended period of time. The time for it occurs varies between individuals. For some, it can occur in days and for others, it does not happen for years. You sound like you fall into the latter ...
by Rustsmith
Fri Aug 17, 2018 2:02 am
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to CharlieWoody

Thursday, August 16

Welcome to

CharlieWoody, who can't sleep so RLS affects everyday life, can't drive long distances and can't relax in the evening.

Please post a note telling us what you are doing to manage your RLS so that we can try to offer some suggestions to help with your sleep.
by Rustsmith
Thu Aug 16, 2018 3:32 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to Tylerrj01

Thursday, August 16 Welcome to Tylerrj01, who has had RLS for almost 30 years. She plans events around her symptoms and always carries her ropinirole. Her symptoms sometimes start in the afternoon and disrupt her work. Since your symptoms sometimes start during the afternoon, take a look at our foru...
by Rustsmith
Wed Aug 15, 2018 4:17 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to paulande

Wednesday, August 15

Welcome to

paulande, whose RLS is so bad, she is having a hard time functioning as she is so tired all the time.

Please post a note telling us what you are doing to manage your RLS. We may be able to offer some suggestions that will allow you to get some more rest.
by Rustsmith
Wed Aug 15, 2018 12:50 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to marvelisticme

Wednesday, August 15 Welcome to marvelisticme, who has suffered with RLS for 40 years. marvelisticme can't sit for long, nor sleep well and knows there must be something that will helpto find sleep! Please post a note telling us what you are currently doing to manage your RLS so that we can offer so...
by Rustsmith
Wed Aug 15, 2018 12:46 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to TwinkleStar

Wednesday, August 15

Welcome to

TwinkleStar, who daughter has been diagnosed in RLS. She also suffers tremors (jitterings) probably related.

Please post a note telling us a bit more about your daughter (age, current treatment, etc) so that we can offer some suggestions to you.
by Rustsmith
Tue Aug 14, 2018 10:45 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 195

Re: weather

Betty, in 2012 we took back to back cruises out of Dover in August (during the London Olympics). The first week we went up the Norwegian coast, which was spectacularly beautiful. The second week was a tour of the British Isles, including the Channel Isles, Ireland and then two days in Edinburgh. It ...
by Rustsmith
Tue Aug 14, 2018 8:17 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 11
Views: 114

Re: Neupro

vkelley, welcome to the group. You are in great hands with Dr Ondo. He was the first RLS specialist that I saw after a disastrous series of neurologists. I still have great confidence in his advice and would still be one of his patients if we hadn't moved from The Woodlands to Colorado. For the size...
by Rustsmith
Tue Aug 14, 2018 4:52 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to Alexandramm

Tuesday, August 14 Welcome to Alexandramm, who needs suggestions for non-drug help. Take a look through our forum on Non-Prescription medications to get an idea of your options. And please post a note telling us about your RLS and what you have been doing so that we can offer some specific suggestio...
by Rustsmith
Tue Aug 14, 2018 1:06 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to vkelley

Tuesday, August 14 Welcome to vkelley, who has suffered with severe RLS for the last two years. She has a constant need to move her legs and it affects her sleep, which in turn affects her ability to focus during the day. Treatment thus far has been ineffective. Please post a note telling us what tr...
by Rustsmith
Mon Aug 13, 2018 6:27 pm
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 21
Views: 337

Re: What med cocktail works for you??

Shari, the time that it takes THC to work depends upon the mode of delivery. Smoking (not recommended) or vaping provides an impact that is almost immediate, but it also wears off rather quickly. Tinctures that are placed under the tongue can take a few minutes to work, but last longer. Edibles can ...
by Rustsmith
Mon Aug 13, 2018 6:10 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to lmason

Monday, August 13 Welcome to lmason, who unfortunately has this disease and would prefer not to take medication for it. She is currently or Ropinirole and would love to come off of it. She is also slightly anemic. Please post a note telling us about your anemia (ferritin level if you know it) and yo...
by Rustsmith
Mon Aug 13, 2018 6:06 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to Evansrj

Monday, August 13 Welcome to Evansrj, who has had symptoms of RLS since youth but they would go away after 2/3 days. Evansrj is now going on about 1 month with little relief from medication and so hopes to find alternative solutions through board. Please post a note telling us a bit about your curre...
by Rustsmith
Sun Aug 12, 2018 5:54 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 195

Re: weather

I live in an area of Colorado that is high desert. Our normal daily high temperatures for July and August are over 100F, but the nights are around 65 because it is so dry. But this summer we only had one week of normally hot weather. the rest has been in the low 90s. Our problem has been almost no r...
by Rustsmith
Sun Aug 12, 2018 2:00 pm
Forum: Just Joined?
Topic: AUGUST 2018 - NEW MEMBERS
Replies: 18
Views: 261

Welcome to Motorhome

Sunday, August 12 Welcome to Motorhome, who cannot set and read a book. She has the worst case the doctors say they have ever seen. she can't sit still. Your RLS sounds like what many of us experience, so "you are not alone". Please post a note telling us what your doctors have you doing t...

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