Search found 2338 matches

by Rustsmith
Mon May 21, 2018 12:57 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Adaysfullhouse

Monday, May 21

Welcome to

Adaysfullhouse, whose RLS causes misery at night, when trying to take naps or on long car rides!!

Please post a note telling us what you are doing to manage the symptoms so that we can offer you some suggestions for improvement.
by Rustsmith
Sun May 20, 2018 11:02 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Marshanurse

Sunday, May 20 Welcome to Marshanurse, whose RLS is causing her to lose sleep which in turn causes her production and concentration at work to be below expectations. She is feeling tired and don't want to do much on her weekends off. Please post a note telling us what you are currently doing to mana...
by Rustsmith
Sun May 20, 2018 11:00 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Flamingoer

Sunday, May 20 Welcome to Flamingoer, who has suffered with leg pain at night for a lifetime as well as having had problems with feel rested. Flamingoer is currently trying to deal with these symptoms without prescribed medications and needs help!! Please post a note telling us what you have tried a...
by Rustsmith
Sun May 20, 2018 2:39 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Foxwell8

Sunday, May 20

Welcome to

Foxwell8, who has an urge to move legs all day and night-especially reading,watching TV ,starting to sleep.

Please post a note telling us what you are currently doing to manage your RLS so that we can offer some suggestions to better manage your need to move.
by Rustsmith
Sat May 19, 2018 8:44 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to moose

Saturday, May 19 Welcome to moose, whose RLS affects her everyday and prevents her from relaxing until she takes medication in the evenings. Please post a note telling us about your medication so that we may be able to offer you some suggestions to discuss with your doctor for improving your situati...
by Rustsmith
Sat May 19, 2018 4:43 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to elsif

Saturday, May 19 Welcome to elsif, who is 27 and on 4mg of ropinerol to combat increased frequency of RLS while on antidepressants. RLS has gotten worse since and he is on the max dose apparently, so he us in augmentation. He has had RLS since infancy. His mom, her twin brother, and his grandma have...
by Rustsmith
Sat May 19, 2018 12:22 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 196

Re: Recent restrictions on length of opioid prescriptions

That is exactly the reason for the question. You might even consider asking about "refractory RLS". If the answer is something like "what is that", it gives you an idea that at least the nurse isn't up to speed with post augmentation RLS.
by Rustsmith
Fri May 18, 2018 11:13 pm
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 196

Re: Recent restrictions on length of opioid prescriptions

mudslide, I will let others with experience with interstate prescriptions answer your question. I have a couple of suggestions for you to consider. 1) Once you know the name of the neurologist, call the office and ask to speak with a nurse. Ask the nurse if the doctor is familiar with treating augme...
by Rustsmith
Fri May 18, 2018 12:35 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to drFred

Friday, May 18 Welcome to drFred, who has RLS and nothing seems to help. He is trying to connect with others who have RLS and is looking for suggestions and help in dealing with it. You have come to the right place to connect with others who have RLS. Please post a note telling us about what you hav...
by Rustsmith
Wed May 16, 2018 3:27 pm
Forum: General Topics: RLS/WED
Topic: IV iron infusion
Replies: 2
Views: 45

Re: IV iron infusion

Others who have had iron infusions can provide you with their experience. If you are a member of the Foundation, they have an excellent webinar that was presented by Dr Earley at Johns Hopkins on iron and RLS. In the webinar, he not only discusses why iron is so critical, but also the differences be...
by Rustsmith
Tue May 15, 2018 7:08 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to EthelL

Tuesday, May 15 Welcome to EthelL, who has been suffering from RLS for about 13 years. It was tolerable at first, but she now suffers from severe chronic depression and multiple sclerosis. All antidepressants cause excruciatingly worsened RLS, except two-Wellbutrin, which I am highly allergic to, an...
by Rustsmith
Tue May 15, 2018 5:49 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Cantsleeporfunction

Tuesday, May 15 Welcome to Cantsleeporfunction, who has severe RLS 24/7. It didn't start that way. It started only on her calves at bedtime or sitting for long period of time (ex: opera, movie theater). Now due to Mirapex and maybe other RLS drugs, my RLS symptoms are in my arms, soles of my feet, a...
by Rustsmith
Tue May 15, 2018 5:42 pm
Forum: General Topics: RLS/WED
Topic: Frantic...RLS 24/7
Replies: 4
Views: 69

Re: Frantic...RLS 24/7

Your concern about having a problem with continued access to an opioid is well founded. Many of us who take them on a regular basis have to struggle to maintain access, either from our doctors or our pharmacies. And the problems appear to still be getting worse as the media, the politicians and the ...
by Rustsmith
Mon May 14, 2018 8:59 pm
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 24
Views: 208

Re: Uh-oh... methadone hassles?

Mudslide, I wouldn't to too wild with the highlighter, but there are a couple of sentences in the abstract of the opioid paper that you might want to point out. The very first sentence is important, where it states that we are different from chronic pain patients. There is another that states that o...
by Rustsmith
Mon May 14, 2018 5:54 pm
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 24
Views: 405

Welcome to Angela Fillingham

Monday, May 14 Welcome to Angela Fillingham, whose 4 year old granddaughter has just been diagnosed with RLS. The family would apreciate info, help and support and to be able to undertand what she is suffering. You should find information that will be useful in our forums, especially the one on Spec...

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