Search found 2663 matches

by Rustsmith
Fri Oct 19, 2018 1:37 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to winney

Friday, October 19

Welcome to

winney, who may have RLS. and has developed ways of managing it to a degree which winney would like to share

Please post a note telling about the symptoms that you believe may be RLS and what you are doing to manage them.
by Rustsmith
Wed Oct 17, 2018 10:57 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 123
Views: 27640

Re: Is your DA causing augmentation?

Neupro wasn't effective after 3 nights.


There are some people who augment on the dopamine agonists after just a couple of days, so it looks like you might be one of them.
by Rustsmith
Wed Oct 17, 2018 9:13 pm
Forum: Just Joined?
Topic: New member :)
Replies: 2
Views: 45

Re: New member :)

One of the unique properties of the use of dopamine agonists when used to treat RLS is augmentation. Augmentation occurs when the medication stops treating your RLS and starts making it worse. Your RLS symptoms occur earlier in the day and can spread from the legs to other parts of the body, which o...
by Rustsmith
Wed Oct 17, 2018 8:43 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to Sonjams

Wednesday, October 17 Welcome to Sonjams, whose RLS has been under control for a number of years, but within the last few months she is noticing symptoms so much earlier in the day than before. What started out as first appearing after she went to bed, to then late afternoon, to now having symptoms ...
by Rustsmith
Wed Oct 17, 2018 5:14 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to Samsa

Wednesday, October 17 Welcome to Samsa, who would like to connect with other people who experience RLS and find ways to manage it naturally. Please post a note telling us a bit about your RLS, what you are doing to manage it and asking any questions that you have. That way we can offer suggestions, ...
by Rustsmith
Wed Oct 17, 2018 3:24 pm
Forum: Prescription Medications
Topic: NeuPro: keeping track of patch locations
Replies: 7
Views: 663

Re: NeuPro: keeping track of patch locations

I avoided the showering issue by removing the old one before the shower and applying the new one afterwards. The other option is to use tape to cover the patch, but then the tape has to remain in place since it would probably also pull the patch off.
by Rustsmith
Wed Oct 17, 2018 3:19 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to Ebrandt

Tuesday, October 16 Welcome to Ebrandt, whose RLS is getting severe. Her legs won't stop moving. It starts in the afternoon and continues till the late evening. She takes medication for it but sometimes it doesn't work. Today was very bad day and it doesn't help that she is also anemic. Tomorrow she...
by Rustsmith
Tue Oct 16, 2018 11:29 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 422
Views: 98386

Re: Published Research - Suicide and RLS (WED)

Here is another publication that is pending, this time a study of the relationship between suicide and RLS. The results summary so far says 192 RLS and 158 control participants were comparable for age, sex, race, and other potential demographic confounders. In general, RLS was moderate-to-severe (me...
by Rustsmith
Tue Oct 16, 2018 10:49 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to NotAlone

Tuesday, October 16 Welcome to NotAlone, who wants to hear how others with RLS are coping. Her condition has become worse. She has never participated in a discussion board of any kind, but now she needs to not feel like she is alone with this illness. She needs the encouragement. You are definitely ...
by Rustsmith
Tue Oct 16, 2018 7:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 445
Views: 41870

Re: Medical Marijuana

BeckyS, the research into MMJ for RLS is just getting started. The issue was that since it is still against federal law, any research lab that receives federal grant money, i.e. all of them, would jeopardize that funding if they didn't satisfy all of the federal requirements for studying Schedule 1 ...
by Rustsmith
Tue Oct 16, 2018 2:43 pm
Forum: General Topics: RLS/WED
Topic: Help Please
Replies: 14
Views: 894

Re: Help Please

Keppra and gabapentin are in the same class of anti-convulsant meds. The anti-convulsant meds are becoming the first line treatments for RLS, so it isn't surprising that the Keppra is helping with your RLS symptoms. But you might want talk with your doctors about taking both of them. As for the Neup...
by Rustsmith
Tue Oct 16, 2018 1:13 pm
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to BeckyS

Tuesday, October 16

Welcome to

BeckyS, who is an RLS Foundation member and was diagnosed with RLS in 1980.

Thank you for your Foundation membership. Please post a note telling us a bit about your RLS and what you are doing to manage it. We might be able to offer some suggestions for improvement.
by Rustsmith
Tue Oct 16, 2018 1:06 pm
Forum: Just Joined?
Topic: Specialist to see?
Replies: 4
Views: 61

Re: Specialist to see?

The specialties that are often the most knowledgeable or RLS are the neurologists who specialize in either sleep medicine or movement disorders. This means that you cannot simply look for a neurologist. There are about eight of them in my town and none of them knows anything about RLS. In addition t...
by Rustsmith
Tue Oct 16, 2018 2:58 am
Forum: Just Joined?
Topic: OCTOBER 2018 NEW MEMBERS
Replies: 23
Views: 341

Welcome to Audreylovescolor

Monday, October 15 Welcome to Audreylovescolor, who wants to join because she can't take it anymore with the painful RLS. She is hoping someone can help... Please post a note telling us a bit about the history of your RLS and what you are currently doing to manage it so that we can offer you some su...
by Rustsmith
Mon Oct 15, 2018 10:33 pm
Forum: Just Joined?
Topic: Recently Diagnosed
Replies: 11
Views: 646

Re: Recently Diagnosed

No ED, but I regularly go up and down on my gabapentin dose because I have difficulty reaching orgasm when the dose gets to 900 or 1200.

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