Restless Legs Syndrome (RLS) Discussion Board

Wednesday, March 20 Welcome to GMG, who when an RLS "attacks" occur, it robs him of sleep. He has been taking Mirapex (generic) for several years with very good results. Unfortunately, red wine (which he loves) is a trigger. Wine in general tends to be a trigger for many. Please post a not...

Wednesday, March 20 Welcome to bethkickit, who has struggled with RLS for many years. Recently she experienced augmentation while taking mirapex. RLS has affected her ability to achieve adequate sleep. She is often very tired and this affects her ability to work and participate in activities that sh...

Tuesday, March 19 Welcome to madigan, whose life revolves around her legs 24/7. Will she sleep? Can she sit long enough to watch a TV show? Will the 4 hour drive to visit grandchildren be torture? When will her next augmentation start? Every activity depends on how she is feeling at that moment. Ple...

Since you went to Mayo, you might give some consideration going to Dr Shalini Paruthi at St Lukes Hospital in St Louis. She has RLS herself and one or her special interests is RLS and other sleep disorders in children. Also, the RLS Foundation has a number of publications on pediatric RLS. This is a...

Tuesday, March 19

Welcome to

Sue-Q, who says that there are very few things that RLS does not effect. She has had RLS for about 40 years.

Please post a note telling us what you do to manage your RLS after 40 yrs and asking any questions that you have. We look forward to helping you out.

Tuesday, March 19 Welcome to Ian Foster, who has RLS and would like to hear more about what is working for others; augmentation; new research; etc Take a look around to see if you can find some of the answers that you seek and then please post a note telling us about what you are doing to manage and...

Tuesday, March 19 Welcome to Bunkiegal, whose RLS is effected her ability to sleep and function the next day. It’s progressively getting worse. Unfortunately, RLS tends to get worse with age. Please post a note telling us what you are doing to manage your RLS so that we can try to give you some sugg...

This link is to an interview with Dr Winkelman that was published in Sleep Review magazine. There isn't anything really new, but it is nice to see that something like this is going to be seen by a large number of sleep medicine doctors. http://digitaledition.sleepreviewmag.com/sleeprev/diged/2019030...

Monday, March 18 Welcome to PaulBenn, whose RLS is causing sleep disruption, limited social activities, and painful leg movements. That pretty much describes what it does to all of us. If you post a note telling us about your meds, including the dose, we may be able to offer you some suggestions for...

I don't think iron deficiency fully explains all cases, or wouldn't red meat / iron supplements be a reliable cure? The root cause of RLS is an iron deficiency in a specific part of the brain, the substantia nigra. There are a number of reasons that can lead to this deficiency. Some people, such as...

Sunday, March 17 Welcome to colleen116, who has had RLS for over 20 years and has been on meds for most of that time. She has been on all the typical meds, augmented and had impulse control issues on dopamine agonists and is now on low dose opioids. She loves the work the RLS Foundation does and is ...

Sunday, March 17 Welcome to Quercus, who has suffered from RLS on and off for over 25 years. For the last 6 years, it has been fairly well-controlled with Mirapex but now symptoms are breaking through at least twice a day. At night, sometimes Quercus can't sleep and the next day is horrible trying t...

Saturday, March 16 Welcome to Werbers, who is 68 years old and has had RLS in various degrees of severity for a long time. It has been particularly bad since about 1990. Werbers has take Tramadol 100mg daily and Oxycodone 10mg daily since about 1995 and took ropinorole for a couple of years and deal...

Saturday, March 16 Welcome to TRCSr39, whose RLS is causing Sleep problems and restlessness while being seated for a length of time like watching TV or working on the computer. Please post a note telling us about your RLS treatment(s) and asking any questions that you have so that we can try to help...

Saturday, March 16 Welcome to jej345, whose RLS prevented a good night's sleep. That, in turn, exacerbated depression/anxiety issues during the daytime. Please post a note telling us what you are doing to manage your RLS so that we can offer you some suggestions for improving your control and gettin...