Restless Legs Syndrome (RLS) Discussion Board

Monday, September 24 Welcome to Denise Marie, whose RLS has impacted her family for so long - longer than we even knew what the heck it was. Her mom had the “heebie-jeebies” for lack of a better name to described the sensation of bugs crawling on her legs that she would unsuccessfully try to allevia...

Monday, September 24

Welcome to

Faulk52, whose RLS is just annoying and causes anxiety. Faulk52 had a stroke and since then been bothered with RLS.

Please post a note telling us about what you do to manage your RLS. We may be able to offer some suggestions to make it less annoying.

Beth, thanks for the suggestion. For many years, running was all that I needed to address low grade depression. It requires at least 2 miles for me to get the endorphins flowing. As long as I kept that up, depression stayed away. I also do a little bit of weight lifting as part of my running trainin...

Sunday, September 23

Welcome to

tweedy333, who would love to get ideas from others who are suffering.

Please post a note telling us what you are doing for your RLS so that we can provide you with some ideas.

Saturday, September 22

Welcome to

bgtm84, who has had luck with treating severe restless leg.

Please post a note telling us about how you have been treating your RLS and asking any questions that you have.

Saturday, September 22 Welcome to Bruffie, who wants pass on information about an instant relief cream that he bought in France a couple of years ago. As an occasional sufferer of RLS, he finds that this "Kamol" cream gives relief/cure every time. Glad you found something that works for yo...

Perry, the current max recommended dose of pramipexole for RLS is 0.5mg, so you are quite a bit beyond that. The other type of medication that is recommended for use with RLS these days is gabapentin, Horizant or Lyrica. These might be useful, but will not help you get off of the pramipexole. Quitti...

Friday, September 21

Welcome to

gowacky, who feels that life with RLS is miserable. Life when always deprived of enough sleep is very hard.

Please post a note telling us a bit about what you are doing to manage your RLS so that we might be able to offer some suggestions for improvement.

I looked at the paper and they made the point that RLS is more prevalent in women and that Parkinson's is more prevalent in men. They realized that this contradiction would have some sort of impact on their results, but could not do anything about it since their study cohort was all men. I was hopin...

Thursday, September 20 Welcome to Mellie, whose RLS keeps her from sleeping. She can't sit for very long, so airplane rides can be excruciating/embarrassing. Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions, which would include making airplane...

Wednesday, September 19 Welcome to szigmond, who is up most nights with RLS. Pramipexole helps some. Recently szigmond took a trip that required various air flights on 4 separate days-- usually RLS does not occur much in the day but each day szigmond had RLS on either the first or second flight or b...

At this point, I think that it is my doctor's intention that Tramadol is a temporary treatment. I see her again in January and I will not be surprised if she wants to switch me back to methadone at that time. But all that is really a guess on my part. As for dose, I do not see any reason why I would...

There should be a special category for you "EXTREME." In the paper by Dr William Ondo describing a patient that received DBS surgery because none of the treatments that they tried was working, he used the term "malignant" RLS. I gathered that her IRLSSG score was 40 before the s...

The required dose of gabapentin is something that varies a lot between individuals. 300mg at bedtime can be enough for some people to fall asleep and others may require 900, 1200 or more. Often the recommendation is to start low and titrate up, but that is a decision that needs to be made by your do...

Final update - I increased my dose of Tramadol ER yesterday and finally got a reasonable amount of sleep last night (6.5 hrs). I would have gotten more, but I just didn't feel tired at bedtime. Today, I feel good and have started enjoying the fact that I can experience happiness and other emotions a...