Search found 2186 matches

by Rustsmith
Sat Feb 17, 2018 6:46 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to jjgcmg56

Saturday, February 17 Welcome to jjgcmg56, whom he and his wife have suffered from chronic lower lower back and neck pain as well as RLS for years. His wife also has neuropathy throughout her body. Please post a note telling us what you are currently taking to manage your pain, neuropathy and RLS. W...
by Rustsmith
Sat Feb 17, 2018 6:43 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to lacey97

Saturday, February 17 Welcome to lacey97, who is very interested in sharing and learning about this terrible disorder. She is suffering more now than ever and hopes to help someone else or find help with support. We can very definitely provide support and maybe even some suggestions to improve your ...
by Rustsmith
Thu Feb 15, 2018 3:31 am
Forum: Augmentation
Topic: Topic of the Year
Replies: 41
Views: 8750

Re: Topic of the Year

Billdel, you are very fortunate that the impulse issue that you had was eating and not gambling or shopping, like some pramipexole users. At least this way, you understood that something was wrong and found the cause on your own. Many have to have interventions from family members, often after perso...
by Rustsmith
Tue Feb 13, 2018 6:35 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to Deb B.

Tuesday, February 13 Welcome to Deb B, who has had RLS her whole life but was diagnosed 15 years ago. She is 59 years old. She has to sleep alone, is always tired, pills are a drain on the pocketbook and she just hates the creepy feeling. Please post a note telling us what you are (of have been) tak...
by Rustsmith
Mon Feb 12, 2018 10:05 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to ChattyKathy

Monday, February 12

Welcome to

ChattyKathy, whose RLS is driving her insane!!

Please post a note telling us a bit about your current medications and anything else you are doing to manage the symptoms. We would love to be able to offer some suggestions for you to consider.
by Rustsmith
Mon Feb 12, 2018 9:59 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to judiart

Monday, February 12 Welcome to judiart, who has suffered for 60 years with separate bedrooms, separate sleep hours, thousands of hours of discomfort and frustration. Also medicines that don't work or that have unacceptable side effects. Please post a note telling us what you are currently doing to m...
by Rustsmith
Mon Feb 12, 2018 8:34 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 10
Views: 57

Re: Discussion of Adenosine paper

Holland, I'm not sure about the urge to move vs PLMS issue. But in the recent paper where they did the genome wide survey that identified something like 14 new RLS genes, they made a comment about PLMS being a genetic subset of RLS. MAYBE that is what the authors were considering, i.e. PLMS is relat...
by Rustsmith
Sun Feb 11, 2018 7:42 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 10
Views: 57

Discussion of Adenosine paper

Beth, I totally agree with your barking comment. I found quite a bit about hyperarousal with PTSD. It appeared that there was a link because the spoke about it occurring with patients were self medicating. But I quickly realized that I wasn't comfortable with the connections that MIGHT have been the...
by Rustsmith
Sun Feb 11, 2018 7:01 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 10
Views: 57

Discussion of Adenosine paper

I haven't been able to find much literature that connects opioids and hyperarousal. That doesn't mean that it isn't there, but it might be too old and well established to get hits from the search engines that I tried using. Insomnia and sleep problems are listed as a side effect for opioids, but tha...
by Rustsmith
Sat Feb 10, 2018 10:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium and CoQ10
Replies: 28
Views: 474

Re: Magnesium and CoQ10

Deb, when I had my first appointment with Dr Tsai, one of the first things that I mentioned was my role here on the board. The tone of our discussion changed immediately. At the time, I had been deep into augmentation for more than six months and couldn't drive for more than about 30 minutes without...
by Rustsmith
Sat Feb 10, 2018 9:29 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 10
Views: 57

Discussion of Adenosine paper

Beth, I agree that we were referencing the same thing, just different places in the paper. Holland, I am not suggesting any changes at this time. My point is that this part of the paper explains why you are doing better now on the lower dose. The movement part is still controlled, but the hyperarous...
by Rustsmith
Sat Feb 10, 2018 7:10 pm
Forum: Prescription Medications
Topic: Discussion of Adenosine paper
Replies: 10
Views: 57

Discussion of Adenosine paper

The following was split from the "Dipyridamole" thread created by stjohnh to report on his experience trying Dipyridamole to treat his RLS based upon the information contained in the Adenosine paper http://bb.rls.org/viewtopic.php?f=5&t=4749&start=375 that was posted on January 12....
by Rustsmith
Sat Feb 10, 2018 6:58 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New to Iron
Replies: 20
Views: 3075

Re: New to Iron

Yankiwi - a recent Foundation webinar on iron presented by Dr Earley suggested that you will get the greatest benefit by taking iron (plus Vit. C) at bedtime. Of course, that would mean no bedtime snack or glass of milk. When I was taking levothyroxine, I usually tried to take it midway between brea...
by Rustsmith
Fri Feb 09, 2018 5:03 pm
Forum: Just Joined?
Topic: Just joined
Replies: 47
Views: 448

Re: Just joined

Earl, getting off of pramipexole is one of the hardest things that any of us have every had to do. Many describe it as torture, which sounds like a good description of what Edith is experiencing. It is pure misery for a week to ten days with RLS symptoms that are far worse than normal. But once you ...
by Rustsmith
Fri Feb 09, 2018 4:51 pm
Forum: Just Joined?
Topic: FEBRUARY 2018 - NEW MEMBERS
Replies: 21
Views: 175

Welcome to Thrilled2Pieces

Friday, February 9

Welcome to

Thrilled2Pieces, who needs to communicate with other RLS sufferers

You have definitely come to the right place for that. Please post a note telling us a bit about your RLS and what you are doing to manage it.

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