Search found 2281 matches

by Rustsmith
Sat Apr 21, 2018 7:37 pm
Forum: Prescription Medications
Topic: Epidiolex
Replies: 3
Views: 11

Re: Epidiolex

Sorry that they are not available in NJ. I don't use CBD but my wife does. She prefers a product from Charolette's Web, but it is pricey. But it is available in our dispensaries in Colorado.
by Rustsmith
Sat Apr 21, 2018 7:08 pm
Forum: Prescription Medications
Topic: Epidiolex
Replies: 3
Views: 11

Re: Epidiolex

You will have to try it out in order to know. Epidolex is supposed to be almost totally CBD (they can't get all of the THC out). But if you are smoking a high CBD marijuana, you probably still have a high THC content. So it might not be the same. If you can get it, a CBD tincture would probably be c...
by Rustsmith
Sat Apr 21, 2018 2:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Calm Legs
Replies: 3
Views: 21

Re: Calm Legs

It took a bit of digging, but I finally found the ingredients in Calm Legs. It has a small amount of iron, Vitamin C, Vitamin E, Folic Acid, Magnesium, Vitamin B-12 and Valerian. Might help if you are deficient in one of these (except that 8mg of iron isn't going to do much), but certainly not somet...
by Rustsmith
Sat Apr 21, 2018 1:06 pm
Forum: Just Joined?
Topic: APRIL 2018 - NEW MEMBERS
Replies: 17
Views: 284

Welcome to AmandaB

Saturday, April 21 Welcome to AmandaB, whose are coming earlier in the day, it is increasingly harder to relax in the evening or sleep at night, and her husband is getting more and more frustrated with her RLS. She is hoping to connect with others with this condition for support and also practical a...
by Rustsmith
Thu Apr 19, 2018 10:58 pm
Forum: Prescription Medications
Topic: Pending approval for CBD Oil by the FDA?
Replies: 1
Views: 39

Pending approval for CBD Oil by the FDA?

This announcement appeared today. It appears that the FDA may be on the verge of approving CBD oil for the treatment of pediatric epilepsy. Of course, once it is on the market, it will be used off label for many other purposes. Approval will also increase the pressure on the FDA to remove marijuana ...
by Rustsmith
Thu Apr 19, 2018 1:59 am
Forum: Just Joined?
Topic: APRIL 2018 - NEW MEMBERS
Replies: 17
Views: 284

Welcome to amandasm

Wednesday, April 18 Welcome to amandasm, who would like to find a community that understands what she is going through with RLS. This has not been an easy journey for her. You have found a community who all understand. Please post a note telling your story and what you are currently doing to manage ...
by Rustsmith
Wed Apr 18, 2018 9:48 pm
Forum: Just Joined?
Topic: APRIL 2018 - NEW MEMBERS
Replies: 17
Views: 284

Welcome to artl3

Wednesday, April 18 Welcome to artl3, who was diagnosed with RLS 12 months ago during a sleep test. He started using a cpap device with only slight improvement and so decided to research this blog to determine other options. Please post a note telling us a bit about your symptoms so that we can offe...
by Rustsmith
Wed Apr 18, 2018 12:53 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 35
Views: 1374

Re: Progress with my local doctor?

Final update on this thread. I met with the Nurse Practitioner at my new doctor's office for the second time today. He will be my primary care provider since he can write prescriptions for opioids. When I first met with him last month, I left a copy of the Mayo Clinic publication on using opioids fo...
by Rustsmith
Tue Apr 17, 2018 7:31 pm
Forum: Prescription Medications
Topic: Requip and Sleep Quality
Replies: 11
Views: 253

Re: Requip and Sleep Quality

I agree with Holland and will add my recent experience to his comments. I have been in the process of changing my PCP during the last six weeks. The change was necessary because I finally found one locally who is willing to write scripts for opioids. The only condition is that he wants monthly urine...
by Rustsmith
Mon Apr 16, 2018 12:20 pm
Forum: Just Joined?
Topic: APRIL 2018 - NEW MEMBERS
Replies: 17
Views: 284

Welcome to bluejay 61

Monday, April 15 Welcome to bluejay 61, who has had RLS for over forty years. He is 75 now and is looking for less meds to take and wants to know what is helping others. You will find that the meds that we take vary depending upon how serious our RLS is and the side effects that we had. Please post ...
by Rustsmith
Mon Apr 16, 2018 12:33 am
Forum: General Topics: RLS/WED
Topic: Next Foundation Webinar - Opioid Advocacy
Replies: 15
Views: 770

Re: Next Foundation Webinar - Opioid Advocacy

If you do not follow their announcements or see Nightwalkers, the next webinar on Opioid Advocacy is being held tomorrow (Monday). It isn't too late to sign up if you haven't already. https://www.rls.org/get-involved/advocacy
by Rustsmith
Mon Apr 16, 2018 12:30 am
Forum: Everything Else...just no RLS/WED!
Topic: CELL PHONES - ENGINEER - WARRANTY !!
Replies: 12
Views: 151

Re: CELL PHONES - ENGINEER - WARRANTY !!

I just got an email from the airline asking for feedback about my delayed flight. I always suspect that these emails are fishing for complements about how well they handled the situation. Well, if that is what they wanted, they most definitely did not get it. I rarely give choose either the best or ...
by Rustsmith
Mon Apr 16, 2018 12:25 am
Forum: Just Joined?
Topic: APRIL 2018 - NEW MEMBERS
Replies: 17
Views: 284

Welcome to Michelleh

Sunday, April 15 Welcome to Michelleh, who wants to help her husband, who suffers from severe rls. He had been on neupro patches for about 3 years and has just been put on mirapex instead of the patch that was no longer working. Please take a look around and then feel free to post any questions that...
by Rustsmith
Sun Apr 15, 2018 11:42 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 423
Views: 31850

Re: Medical Marijuana

KySue, there are several ways to find a doctor who "gets it" with RLS. The easiest is to go to one of the RLS Foundation's Quality Care Clinics, but this will probably require you to travel. The doctors at these clinics are usually involved in RLS research, so they are the experts. They ar...
by Rustsmith
Sun Apr 15, 2018 9:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 423
Views: 31850

Re: Medical Marijuana

KySue, I think that most everyone here has been in your situation with respect to augmentation. The normally recommended maximum dose for Mirapex is 0.25 to 0.5mg when treating RLS. Higher doses are allowed for treating Parkinsons. So, you are currently taking almost 10 times more Mirapex than the c...

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