Search found 2103 matches

by Rustsmith
Fri Jan 19, 2018 7:41 pm
Forum: General Topics: RLS/WED
Topic: RLS Advocacy
Replies: 0
Views: 11

RLS Advocacy

Twice during the past week I have been asked to speak with RLS patients who are at serious risk of losing access to their opioid medications due to changes in the laws or the policies of insurance companies. If you have not already done so, PLEASE sign up to become an RLS advocate. You can find out ...
by Rustsmith
Fri Jan 19, 2018 4:58 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to rjdishon

Friday, January 19 Welcome to rjdishon, who is currently take 4 mg of Klonopin and 4 mg of Requip per evening to be able to sleep; however, rjdishon suffers from RLS symptoms throughout the day. rjdishon has a computer lifter to use for approx. the last 4 hours of the workday because of an inability...
by Rustsmith
Fri Jan 19, 2018 2:07 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to Brin1861

Friday, January 19 Welcome to Brin1861, who says Omgosh, there's actually a foundation for restless legs! She has suffered with restless legs for over 30 years, at first her doctor said she must be laying on them wrong...there is no help. She takes 1 mg Mirapex which helped in the beginning if she t...
by Rustsmith
Wed Jan 17, 2018 11:53 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to LillianPhilbin

Wednesday, January 17 Welcome to LillinaPhilbin, who RLS makes her unable to get a full nights sleep - she keeps tossing and turning. So it affects her relationship with her partner at night and upon awakening. Please post a note telling us what you are doing to manage your RLS and asking any questi...
by Rustsmith
Wed Jan 17, 2018 5:16 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to Lilmo

Wednesday, January 17 Welcome to Lilmo, who wants to talk with others in same state as she just to know she is not the only one suffering. When it starts, she get so restless and stressed out trying to deal with it. Last night she didn't get to bed at all because she couldn't settle it. Please post ...
by Rustsmith
Wed Jan 17, 2018 3:31 am
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to Brisbaneite

Tuesday, January 16 Welcome to Brisbaneite, who is a long time sufferer of RLS as was Brisbaneite's mother. This condition severely affects the ability to have a good night's sleep and leads to inability to get out of bed early, daytime drowsiness and lethargy. Please post a note telling us a bit ab...
by Rustsmith
Tue Jan 16, 2018 11:49 pm
Forum: General Topics: RLS/WED
Topic: Treatment for Refractory RLS at Quality Care Clinics
Replies: 4
Views: 39

Re: Treatment for Refractory RLS at Quality Care Clinics

I'm soon to be an Advocate for RLS with our elected representatives so I will use this feedback for the good of RLS sufferers. Thanks for joining the Advocacy program. For others, becoming an advocate is very easy and does not take much of your time at all. They provide you with the basis for a let...
by Rustsmith
Tue Jan 16, 2018 11:43 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to i-o-u

Tuesday, January 16 Welcome to i-o-u, who has symptoms day in & day out- with the worst being from 5:30pm-2am. i-o-u has tried to stay off the meds, having come off many meds needed for treatment of Chronic Lyme Disease & it’s symptoms but has traded one loaded bag for another. So, is wonder...
by Rustsmith
Tue Jan 16, 2018 10:25 pm
Forum: Just Joined?
Topic: Not sure if this is RLS or not
Replies: 8
Views: 46

Re: Not sure if this is RLS or not

The gabapentin prescription is also one that is consistent with a new diagnosis of RLS, although it is also used for a wide variety of other neurological conditions (I originally started it for migraine prevention). So, I hope that it works even though your diagnosis is probably not RLS. I also wish...
by Rustsmith
Tue Jan 16, 2018 7:34 pm
Forum: General Topics: RLS/WED
Topic: Treatment for Refractory RLS at Quality Care Clinics
Replies: 4
Views: 39

Re: Treatment for Refractory RLS at Quality Care Clinics

Last wee I spoke with a long time patient of Dr Earley at Hopkins. I was told that as of about Feb 1, Dr Earley said that they will only be allowed to give out prescriptions for five days of methadone. I'm not certain, but it appears that this is a new Maryland state law. This particular patient had...
by Rustsmith
Tue Jan 16, 2018 7:19 pm
Forum: Just Joined?
Topic: Not sure if this is RLS or not
Replies: 8
Views: 46

Re: Not sure if this is RLS or not

Chris, sorry that you have having this problem as well as getting a diagnosis. Most of us had problems getting a diagnosis, so we can relate. There are no tests that can be conducted to diagnose RLS, so there is a series of questions that a patient and his/her doctor answer for the diagnosis. This l...
by Rustsmith
Tue Jan 16, 2018 6:05 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to sheila2259

Tuesday, January 16 Welcome to shiela2259, who has RLS 24/7/365, suffers from augmentation and sees no real relief in sight. Her doctor says he is between a rock and a hard place in treating her. She need some real help. Please post a note telling us what you have tried to treat your RLS and whether...
by Rustsmith
Tue Jan 16, 2018 4:48 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to capot1948

Tuesday, January 16 Welcome to capot1948, who has been having 'abnormal involuntary movement' problems for almost a year now. capot1948 has been to various movement disorder specialists who have said things like possible orthostatic tremor, orthostatic myoclonus and the latest from the Baylor Colleg...
by Rustsmith
Mon Jan 15, 2018 4:21 pm
Forum: Just Joined?
Topic: JANUARY 2018 - NEW MEMEBERS
Replies: 23
Views: 202

Welcome to laurab0107

Monday, January 15 Welcome to laurab0107, whose sleep deprivation has affected her well being physically, mentally & emotionally. She is hoping that with the information that she has obtained in this site may be able to help her. Please post a note telling us a bit about what you are currently d...
by Rustsmith
Sun Jan 14, 2018 3:00 am
Forum: Augmentation
Topic: going from ropinerole to gabapentin
Replies: 5
Views: 77

Re: going from ropinerole to gabapentin

Canton, I cannot help with your withdrawal from ropinerole because I went directly from pramipexole to methadone. But, something doesn't sound quite right here. Does your doctor at Hopkins who recommended going onto gabapentin know that you are taking Horizant? Horizant is a modified form of gabapen...

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