Search found 1919 matches

by Rustsmith
Fri Oct 20, 2017 2:46 pm
Forum: Prescription Medications
Topic: Worried about taking medication for RLS
Replies: 48
Views: 1706

Re: Worried about taking medication for RLS

Generally, marijuana can help with sleep issues but often has not been very effective for the movement problems. I heard Dr. B say that inhaled MJ can help some. Also, MJ is probably not strong enough to help with augmentation and the final steps of getting off of ropinirole. For that, you either ha...
by Rustsmith
Fri Oct 20, 2017 1:11 pm
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to Scouten

Friday, October 20 Welcome to Scouten, who suffers from RLS and it is becoming worse with time. Scouten would like to learn how to cope from others. Please post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have. We look forward to hearing from y...
by Rustsmith
Fri Oct 20, 2017 1:08 pm
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to Colehcole1

Friday, October 20 Welcome to Colehcole1, who often falls asleep when sitting down. His wife says that he moves every 8 seconds while sleeping and he gets up 2 or 3 times a night. Insomnia and PLMS issues are common with RLS. Please post a note telling us if your have been diagnosed by a physician a...
by Rustsmith
Thu Oct 19, 2017 9:11 pm
Forum: General Topics: RLS/WED
Topic: My RLS should I get a 2nd opinion ?
Replies: 22
Views: 2808

Re: My RLS should I get a 2nd opinion ?

I don't know about when I wake up, but my mind will frequently race when I am having issues falling asleep due to RLS.
by Rustsmith
Thu Oct 19, 2017 9:09 pm
Forum: Just Joined?
Topic: Severity of RLS/WED?
Replies: 3
Views: 17

Re: Severity of RLS/WED?

The best way to evaluate the severity of your RLS is the International RLS Study Group (IRLSSG) questionnaire. The questions are ones that your doctor should have already asked you. There is a rating scale based upon your score that appears on the bottom of the third page.
by Rustsmith
Thu Oct 19, 2017 3:02 pm
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to ybuchner

Thursday, October 18

Welcome to

ybuchner, whose daughter is 20 and her RLS is plaguing her.

Please post a note telling us about your daughter's RLS and what she is doing to manage it. Also feel free to ask any questions that you have. We would all love to be able to offer some suggestions.
by Rustsmith
Thu Oct 19, 2017 2:14 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 351
Views: 77554

Re: Published Research - General Sleep and RLS (WED)

Here is a link to the paper described above that appeared in Lancet this month. http://www.sciencedirect.com/science/article/pii/S1474442217303277 There are a couple of conclusions that are not of any surprise. There were correlations between RLS and depression, ferritin levels and sleep problems. A...
by Rustsmith
Wed Oct 18, 2017 11:18 pm
Forum: General Topics: RLS/WED
Topic: It's settled! Seeing specialist!
Replies: 10
Views: 50

Re: It's settled! Seeing specialist!

Wonderful news, that was really quick.
by Rustsmith
Tue Oct 17, 2017 2:26 am
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to ramansrini

Monday, October 16

Welcome to

ramansrini, who has had RLS for years, and had tried many techniques for control, but one of the techniques worked well. So ramansrini wants to share with others.

Please post a note telling us about your RLS and the technique that you are using to manage it.
by Rustsmith
Mon Oct 16, 2017 1:00 pm
Forum: Just Joined?
Topic: Tortured Newbie
Replies: 4
Views: 36

Re: Tortured Newbie

KDJM, welcome to the discussion board. I wish that I could say that your experience is unusual, but most of us have somewhat similar stories, especially the part about your doctor. Hang in there, November 1 isn't that far away, especially if it is to see a specialist at one of the Quality Care Clini...
by Rustsmith
Mon Oct 16, 2017 12:52 pm
Forum: General Topics: RLS/WED
Topic: Bad News
Replies: 21
Views: 403

Re: Bad News

That is great news. If only we had more doctors like yours with the backbone to stand up to the administrators and policy makers who are trying to tell them how to handle their patients!
by Rustsmith
Sat Oct 14, 2017 1:52 pm
Forum: General Topics: RLS/WED
Topic: It's settled! Seeing specialist!
Replies: 10
Views: 50

Re: It's settled! Seeing specialist!

This is a decision that you will not regret, even though the travel part can be a hassle. It is a great feeling when you finally get to meet with a doctor who "gets it" and who you know that you can have confidence in his/her recommendations for your care.
by Rustsmith
Fri Oct 13, 2017 1:14 pm
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to tlm57

Friday, October 13 Welcome to tlm57, whose RLS has affected sleep, work, family and overall health. When her legs become restless she cannot function and has to stand or pace for hours. She lives in a rural area of upstate NY and medical care is extremely limited. She has been on Pramipexole for 10+...
by Rustsmith
Thu Oct 12, 2017 10:38 pm
Forum: Just Joined?
Topic: OCTOBER 2017 - NEW MEMBERS
Replies: 22
Views: 178

Welcome to tmmcwilliams

Thursday, October 12 Welcome to tmmcwilliams, who has been bothered by RLS for many years, but just had a sleep study to find the cause of my PLM. She is an insomniac, getting maybe 3 hours of sleep a day and functioning (barely) with that. She is happy to find out the cause and is now on the road t...
by Rustsmith
Thu Oct 12, 2017 5:46 pm
Forum: Just Joined?
Topic: Vacation and RLS
Replies: 9
Views: 84

Re: Vacation and RLS

Welcome to the board. It is hard to say why your RLS would clear up while you are on vacation. Part of it depends upon your vacations. Years ago I noticed that my allergies cleared up while I was on vacation. My allergist figured it out, as a scuba diver, my vacations tended to be on liveaboard boat...

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