Search found 2980 matches

by Rustsmith
Fri Mar 22, 2019 5:53 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to michellev

Friday, March 22

Welcome to

michellev, who can’t sleep well at night and her RLS affects her daytime alertness.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have so that we can help you out.
by Rustsmith
Thu Mar 21, 2019 7:45 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Lbblues98

Thursday, March 21

Welcome to

Lbblues98, whose RLS is causing lost sleep and pain 24 hours a day, mainly in Lbblues98's legs.

Please post a note telling about what you are doing to manage your RLS so that we will know where to start with our suggestions to help you out.
by Rustsmith
Thu Mar 21, 2019 7:43 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to gln

Thursday, March 21 Welcome to gln, who hase suffered with RLS for over 40 years. Recently it has been increasing effecting sleep and making life miserable. Please post a note telling us what you are doing to manage your RLS so that we can offer you some suggestions for getting more sleep and achievi...
by Rustsmith
Thu Mar 21, 2019 7:17 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Sophie

Thursday, March 21 Welcome to Sophie, who has had RLS over 10 years and has to plan many activities according to her RLS and the timing of her medication. She thinks that augmentation may be starting and would like ideas on the best way forward. Please post a note telling us about your new symptoms,...
by Rustsmith
Thu Mar 21, 2019 7:13 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to lbrls123

Thursday, March 21 Welcome to lbrls123, who is a 68yo male who has had hereditary RLS since childhood. He does not remember a time when he did not have to deal with nightly symptoms. Because his symptoms became worse with age, he was forced to quit his job at age 61 and apply for SS disability. He c...
by Rustsmith
Thu Mar 21, 2019 11:38 am
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Dmagjoe

Thursday, March 21 Welcome to Dmagjoe, who has had RLS his whole life. He remembers as a boy standing next to his bed raising himself on his toes until his calves burned. He was in his 40s before he found out he had a condition called RLS. He has been through augmentation and things are getting wors...
by Rustsmith
Wed Mar 20, 2019 9:09 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to GMG

Wednesday, March 20 Welcome to GMG, who when an RLS "attacks" occur, it robs him of sleep. He has been taking Mirapex (generic) for several years with very good results. Unfortunately, red wine (which he loves) is a trigger. Wine in general tends to be a trigger for many. Please post a not...
by Rustsmith
Wed Mar 20, 2019 10:32 am
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to bethkickit

Wednesday, March 20 Welcome to bethkickit, who has struggled with RLS for many years. Recently she experienced augmentation while taking mirapex. RLS has affected her ability to achieve adequate sleep. She is often very tired and this affects her ability to work and participate in activities that sh...
by Rustsmith
Wed Mar 20, 2019 1:58 am
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcomet to madigan

Tuesday, March 19 Welcome to madigan, whose life revolves around her legs 24/7. Will she sleep? Can she sit long enough to watch a TV show? Will the 4 hour drive to visit grandchildren be torture? When will her next augmentation start? Every activity depends on how she is feeling at that moment. Ple...
by Rustsmith
Tue Mar 19, 2019 10:14 pm
Forum: Just Joined?
Topic: New member - 8 year old son diagnosed at 6 with RLS/PLMD
Replies: 5
Views: 58

Re: New member - 8 year old son diagnosed at 6 with RLS/PLMD

Since you went to Mayo, you might give some consideration going to Dr Shalini Paruthi at St Lukes Hospital in St Louis. She has RLS herself and one or her special interests is RLS and other sleep disorders in children. Also, the RLS Foundation has a number of publications on pediatric RLS. This is a...
by Rustsmith
Tue Mar 19, 2019 8:50 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Sue-Q

Tuesday, March 19

Welcome to

Sue-Q, who says that there are very few things that RLS does not effect. She has had RLS for about 40 years.

Please post a note telling us what you do to manage your RLS after 40 yrs and asking any questions that you have. We look forward to helping you out.
by Rustsmith
Tue Mar 19, 2019 5:25 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Ian Foster

Tuesday, March 19 Welcome to Ian Foster, who has RLS and would like to hear more about what is working for others; augmentation; new research; etc Take a look around to see if you can find some of the answers that you seek and then please post a note telling us about what you are doing to manage and...
by Rustsmith
Tue Mar 19, 2019 10:34 am
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to Bunkiegal

Tuesday, March 19 Welcome to Bunkiegal, whose RLS is effected her ability to sleep and function the next day. It’s progressively getting worse. Unfortunately, RLS tends to get worse with age. Please post a note telling us what you are doing to manage your RLS so that we can try to give you some sugg...
by Rustsmith
Tue Mar 19, 2019 1:45 am
Forum: General Topics: RLS/WED
Topic: Interview with Dr Winkelman
Replies: 0
Views: 13

Interview with Dr Winkelman

This link is to an interview with Dr Winkelman that was published in Sleep Review magazine. There isn't anything really new, but it is nice to see that something like this is going to be seen by a large number of sleep medicine doctors. http://digitaledition.sleepreviewmag.com/sleeprev/diged/2019030...
by Rustsmith
Mon Mar 18, 2019 3:01 pm
Forum: Just Joined?
Topic: MARCH 2019 - New Members
Replies: 75
Views: 473

Welcome to PaulBenn

Monday, March 18 Welcome to PaulBenn, whose RLS is causing sleep disruption, limited social activities, and painful leg movements. That pretty much describes what it does to all of us. If you post a note telling us about your meds, including the dose, we may be able to offer you some suggestions for...

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