Restless Legs Syndrome (RLS) Discussion Board

I hope that you were not taking a very high dose of ropinirole when you stopped. There is a "rare" condition called dopamine agonist withdrawal syndrome (DAWS), that can cause permanent neurological damage. It occurs from abruptly stopping a dopamine agonist from a much higher dose than th...

There generally isn't any restriction on taking gabapentin with or without a meal. Due to the small intestine limit, it probably isn't a great idea to take it with a big meal. Also, you should be aware that the max dose of gabapentin is quite high. I currently take 600mg at bedtime to help me fall a...

Saturday, July 21

Welcome to

Brynmr, who has RLS and says that knowledge is power.

We totally agree, which is why we strive to share our knowledge. Please post a note telling us what you do to manage your RLS and asking any questions that you have.

Saturday, July 21 Welcome to curqlink, who has had RLS for the past 30 years or so. Like with most people it started out just being a nuisance. Now curqlink longs for the good old days when it was just an unpleasant sensation. Please post a note telling us about what you are doing to manage your RLS...

Saturday, July 21 Welcome to Anitasara, who has consistent pain but prefers not to take any medicine so she basically suffers. It has really affected her sleep, so she I feels like she is 40 years older than she actually is. Please take a look through our forum on Non-prescription meds to get an ide...

I just looked and one of the ingredients in Advil PM is the generic form of Bendryl. If it works, then great. But it is something that has the potential of causing problems for many of us.

Sleepless, I think that I found the article you describe.

http://anesthesiology.pubs.asahq.org/data/journals/jasa/931127/0000542-201211000-00051.pdf

Sleepless, welcome to the group. There has been quite a bit of research progress in the last year or so, particularly by the National Institute of Health in the area of identifying adenosine as the common link between our dopamine and glutamate and how low iron levels in the brain are common to all ...

Friday, July 20 Welcome to Sleepless at night, who is suffering with RLS and is seeking any help possible. When it goes into Sleepless's arm, it's the worst. Sleepless also has a few things that may help other people. Please post a note telling us about what you can share with others about managing ...

Thursday, July 19 Welcome to Robyn Stalson, who would like to determine if she is experiencing augmentation from taking Gabapentin. Is this possible? Her symptoms are now arms and legs and all day. She is considering alternative drugs (Ropinirole) with Gabapentin. However, she is very scared of taki...

Thursday, July 19 Welcome to Niab, who has had terrible RLS for 45 years and now it is getting worse and it prevents Niab from going anywhere. Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to offer you some sugges...

Thursday, July 19 Welcome to Iman01, who can remember the creepy sensations in his legs during rest as a child. His mother understood and told him she had it too but she didn’t know what to do about it. For the most part it stopped for many years but now that he is 67 it has returned with a vengeanc...

Wednesday, July 18 Welcome to Sanschutz, who cannot sleep. About 30 minutes after laying down in bed,the creepy crawly feeling. Sanschutz has tried ice packs, compression, propping leg up, meditation, and many more. It’s no use. Take a look around to get an idea of what others do to manage symptoms,...

Your doctor may be familiar with the eventual "side effect" of augmentation. Augmentation can occur with the dopamine agonists (ropinirole, pramipexole and rotigatine). What happens is that the medication stops working as intended and starts to make your RLS symptoms even worse. Quitting c...

Tuesday, July 17 Welcome to timed, who is not able to get timed's primary care doctor to prescribe ropinirol, and so was hoping to get some advice. Please post a note telling us what your PCP is willing to prescribe and if he/she gave any reason. This is generally an issue for those of us who need o...