Restless Legs Syndrome (RLS) Discussion Board

Monday, April 23 Welcome to CatherineWheale, who has had RLS all her adult life and now she is 70. She takes a lot of medication and has experienced augmentation. Her family also has a pronounced predisposition for RLS. Please post a note telling us a bit about your current medication and the status...

Deb, the pure CBD oils can be rather pricey (I know because my wife uses them). For a first time experiment, you might consider trying a 50/50 THC/CBD edible since they cost much less. The high level of CBD inhibits the intoxicating part of the THC, so most do not feel any sort of high feeling. The ...

Monday, April 23 Welcome to JanMarie, who has had RLS for more than 20 years and it is severe now. She is dependent on medication that has serious side effects for her personally. So she is curious about the experiences of others. Please post a note telling us about your medication and its side effe...

Sorry that they are not available in NJ. I don't use CBD but my wife does. She prefers a product from Charolette's Web, but it is pricey. But it is available in our dispensaries in Colorado.

You will have to try it out in order to know. Epidolex is supposed to be almost totally CBD (they can't get all of the THC out). But if you are smoking a high CBD marijuana, you probably still have a high THC content. So it might not be the same. If you can get it, a CBD tincture would probably be c...

It took a bit of digging, but I finally found the ingredients in Calm Legs. It has a small amount of iron, Vitamin C, Vitamin E, Folic Acid, Magnesium, Vitamin B-12 and Valerian. Might help if you are deficient in one of these (except that 8mg of iron isn't going to do much), but certainly not somet...

Saturday, April 21 Welcome to AmandaB, whose are coming earlier in the day, it is increasingly harder to relax in the evening or sleep at night, and her husband is getting more and more frustrated with her RLS. She is hoping to connect with others with this condition for support and also practical a...

This announcement appeared today. It appears that the FDA may be on the verge of approving CBD oil for the treatment of pediatric epilepsy. Of course, once it is on the market, it will be used off label for many other purposes. Approval will also increase the pressure on the FDA to remove marijuana ...

Wednesday, April 18 Welcome to amandasm, who would like to find a community that understands what she is going through with RLS. This has not been an easy journey for her. You have found a community who all understand. Please post a note telling your story and what you are currently doing to manage ...

Wednesday, April 18 Welcome to artl3, who was diagnosed with RLS 12 months ago during a sleep test. He started using a cpap device with only slight improvement and so decided to research this blog to determine other options. Please post a note telling us a bit about your symptoms so that we can offe...

Final update on this thread. I met with the Nurse Practitioner at my new doctor's office for the second time today. He will be my primary care provider since he can write prescriptions for opioids. When I first met with him last month, I left a copy of the Mayo Clinic publication on using opioids fo...

I agree with Holland and will add my recent experience to his comments. I have been in the process of changing my PCP during the last six weeks. The change was necessary because I finally found one locally who is willing to write scripts for opioids. The only condition is that he wants monthly urine...

Monday, April 15 Welcome to bluejay 61, who has had RLS for over forty years. He is 75 now and is looking for less meds to take and wants to know what is helping others. You will find that the meds that we take vary depending upon how serious our RLS is and the side effects that we had. Please post ...

If you do not follow their announcements or see Nightwalkers, the next webinar on Opioid Advocacy is being held tomorrow (Monday). It isn't too late to sign up if you haven't already. https://www.rls.org/get-involved/advocacy

I just got an email from the airline asking for feedback about my delayed flight. I always suspect that these emails are fishing for complements about how well they handled the situation. Well, if that is what they wanted, they most definitely did not get it. I rarely give choose either the best or ...