Search found 2882 matches

by Rustsmith
Fri Feb 22, 2019 3:03 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to s3v3n11

Friday, February 22 Welcome to s3v3n11, who has difficulty resting due to RLS. She takes medication but it doesn’t help very much anymore even after dosage increased. Medicine makes her nauseous. Please post a note telling us about the medicine and dose that is no longer working. It sounds like you ...
by Rustsmith
Thu Feb 21, 2019 4:47 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 61
Views: 1909

Re: Attempting to get off Ropinirole - again

PB, I am glad to see that for once, an administrative clerical error is working in your favor so that you can stay with your current clinic.
by Rustsmith
Tue Feb 19, 2019 11:19 pm
Forum: Prescription Medications
Topic: Opioid Study at Massachussets General
Replies: 11
Views: 1741

Re: Opioid Study at Massachussets General

The deadline to join the Opioid Registry at Massachusetts General Hospital has been extended to the end of June. If you haven't already joined, please do.
by Rustsmith
Tue Feb 19, 2019 10:55 pm
Forum: General Topics: RLS/WED
Topic: RLS Advocacy
Replies: 1
Views: 1238

Re: RLS Advocacy

The Foundation has scheduled Friday, May 3 as the RLS "Day on the Hill". Everyone is invited to come to Washington, DC to advocate for RLS on Capitol Hill in person. To find out more, go to https://rlsfoundation.blogspot.com/2019/02/speak-up-at-rls-day-on-hill-on-may-3.html
by Rustsmith
Tue Feb 19, 2019 9:23 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Prakash

Tuesday, February 19 Welcome to Prakash, who used to get a very uncomfortable feeling in both legs especially when sitting. Every so often Prakash would have to get up and walk around to get comfort. And at night would have to stretch to bring relief to fall asleep. Prakash is now on meds, but there...
by Rustsmith
Mon Feb 18, 2019 9:19 pm
Forum: Prescription Medications
Topic: Methadone to Buprenorphine
Replies: 4
Views: 46

Re: Methadone to Buprenorphine

I have only heard of results with buprenorphine (Subaxone) from a couple of folks with RLS. One of the longer users goes by Eefall. Dr Earley put him on it a few years ago as a last ditch effort when everything else had failed. He has had some issues with it, but it worked on his RLS. I know of one ...
by Rustsmith
Sun Feb 17, 2019 10:15 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to ginsnews

Sunday, February 17 Welcome to ginsnews, who has had RLS for 37 years -since age 29. It was years before ginsnews even knew what it was as it was just a horrible inconvenience due to problems sitting through a movie, concert or airflight. Most nights ginsews was up kicking until purely exhausted. Th...
by Rustsmith
Sun Feb 17, 2019 8:18 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Cjseely1026

Sunday, February 17 Welcome to Cjseely1026, who has had RLS for over 50 years. She can’t enjoy movies or traveling and it causes her to lose sleep. It’s depressing. Depressing is one word for it. Please post a note telling us what you are doing to manage so that we can offer a few suggestions for im...
by Rustsmith
Sat Feb 16, 2019 9:52 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to girlsxfive

Saturday, February 16 Welcome to girlsxfive, who has insomnia and is drugged all the time, so quality of life is not good. Please post a note telling us what you are taking and the dose. There is no reason to feel drugged all the time, so we should be able to suggest something that you can discuss w...
by Rustsmith
Sat Feb 16, 2019 4:12 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Jrivory

Saturday, February 16

Welcome to

Jrivory, who has a family member who has suffered with RLS for decades.

Please feel free to post a note asking any questions that you have. We would love to be able to help your family out.
by Rustsmith
Sat Feb 16, 2019 3:45 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Dirk

Friday, February 15 Welcome to Dirk, who as a child, around 10 years old, he would would go with his family to our community’s annual high school musical. This was torture and he always had to excuse himself and walk the dark empty hallways of the school while the show went on. Now in his mid 50s he...
by Rustsmith
Fri Feb 15, 2019 9:11 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Bh.phxmech

Friday, February 15 Welcome to Bh.phxmech, who has had RLS since childhood. It effects sleep and is worsening with age. Legs went from constant movement and tingly sensation to just out right pain. Please post a note telling us what you are doing to manage your RLS. We may be able to offer some sugg...
by Rustsmith
Fri Feb 15, 2019 6:45 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Jools

Friday, February 15 Welcome to Jools, who had her 1st symptoms during her second pregnancy. She was on DAs for 15 years and suffered terrible augmentation and horrendous withdrawal. RLS still affects her every single day despite opioid meds. She is angry that it is not taken seriously by the medical...
by Rustsmith
Fri Feb 15, 2019 6:15 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to Resa

Friday, February 15 Welcome to Resa, who has faced limitations on what entertainment and events she can enjoy because of the disruption of RLS. She does not sleep well and is unable to tolerate long plane rides. Please post a note telling us what you are doing to manage your RLS and asking any quest...
by Rustsmith
Fri Feb 15, 2019 3:14 pm
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 41
Views: 382

Welcome to beachGolfer

Friday, February 15 Welcome to BeachGolfer, who feels that RLS has taken over her life though, thankfully, she only has symptoms at night. She is currently weaning from Mirapex with the use of Percocet. Fortunately, she has a very supportive neurologist and husband. You are very lucky to have the su...

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