Search found 16 matches

by Ellephant
Sat Nov 02, 2013 1:16 am
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Re: Atypical Symptoms? (some newb questions)

So after doing a lot more research and reading about personal experiences with various neurological disorders, it seems like everything that I have kind of fits more neatly into the MS jar than the RLS jar. What confuses me is I don't have any brain lesions (yet) so I really have no idea. I have an ...
by Ellephant
Sat Nov 02, 2013 12:58 am
Forum: Prescription Medications
Topic: Adderall
Replies: 2
Views: 726

Adderall

I was wondering if someone could please explain to me how adderall affects (or doesn't affect) WED symptoms. I'm confused because I thought that adderall acted by either producing more dopamine or preventing the reuptake of dopamine (I can't remember which - I just know that it increases dopamine in...
by Ellephant
Mon Oct 28, 2013 5:22 pm
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Re: Atypical Symptoms? (some newb questions)

Okay, serious question. Could this be super early signs of Parkinson's? Would that have shown up in my brain MRIs? I'm getting mixed results from the internet in terms of how Parkinson's is diagnosed. I assume this has nothing to do with Parkinson's since many members here have very similar symptoms...
by Ellephant
Mon Oct 28, 2013 1:36 am
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Re: Atypical Symptoms? (some newb questions)

As far as twitching goes I sometimes get big, almost electrical like twitches in my whole body. Usually right as I am falling asleep. I never get these twitches when my wed symptoms are active. It seems I have to be somewhat relaxed to twitch. Sometimes they are just in a part of my body and it cou...
by Ellephant
Sat Oct 26, 2013 5:03 pm
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Re: Atypical Symptoms? (some newb questions)

I bet I just need an exorcism. That's certainly what it looks like, at least haha. But yeah. The distractability is 100% me. I'll probably be making an appointment at Johns Hopkins soon because this is getting ridiculous and EVERY nerve test and MRI comes back normal (and sleeping half an hour in 3 ...
by Ellephant
Sat Oct 26, 2013 4:36 am
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Re: Atypical Symptoms? (some newb questions)

When you say twitch, do you see movement? That is not a WED/RLS thing. We move because of the HORRID sensation and STRONG URGE to move. It's as if our brain is telling us, YOU MUST MOVE, NOW! If we do not move, I've had my muscles move, as if my body was saying, OK, you didn't move when I told you ...
by Ellephant
Fri Oct 25, 2013 9:15 pm
Forum: General Topics: RLS/WED
Topic: Marijuana stopped symptoms!
Replies: 15
Views: 2346

Re: Marijuana stopped symptoms!

Just throwing my two cents in on the indica vs sativa - indica really made it a lot worse for me. It actually put even more physical "emphasis" on my legs, and didn't make me tired at all. Though sativa is really hit or miss for me depending on the night, I get better results with it becau...
by Ellephant
Fri Oct 25, 2013 8:17 pm
Forum: Just Joined?
Topic: Atypical Symptoms? (some newb questions)
Replies: 21
Views: 3796

Atypical Symptoms? (some newb questions)

Hey there, Although I'm like 90% positive with the affirmation of my healthcare team that I do in fact have RLS, I wanted to ask about some of the atypical stuff that's going on with my symptoms that is preventing us from being 100% sure. (We can't just try a dopamine agonist and see how I respond b...
by Ellephant
Fri Oct 25, 2013 7:05 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 475
Views: 114524

Re:

Wow, this was fascinating. I seem to recall that we have talked about this in the past (awhile ago). http://www.websciences.org/cftemplate/NAPS/archives/indiv.cfm?ID=20066131 Auditory startle reaction is disinhibited in idiopathic restless legs syndrome. FRAUSCHER B, LOSCHER WN, HOGL B, POEWE W, KO...
by Ellephant
Sat Oct 19, 2013 2:55 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Child with RLS
Replies: 9
Views: 5340

Re: Child with RLS

Is it possible to augment to that kind of medication, an alpha-2 adrenergic agonist?
by Ellephant
Fri Oct 18, 2013 1:52 pm
Forum: General Topics: RLS/WED
Topic: Marijuana stopped symptoms!
Replies: 15
Views: 2346

Re: Marijuana stopped symptoms!

Has anyone experienced significantly worsening twitches/muscle jerks while doing this? I find that my unpleasent sensations dissipate a bit but I end up twitching all over.
by Ellephant
Thu Oct 17, 2013 12:14 pm
Forum: General Topics: RLS/WED
Topic: Rapid or Gradual Onset/Progression?
Replies: 3
Views: 647

Rapid or Gradual Onset/Progression?

Hey there, I saw a neurologist specializing in movement disorders at Columbia in nyc yesterday. He thinks that my RLS symptoms are either conversion disorder (admitedly possible) or an exacerbation of my tics (I don't think that's possible at all - completely different things). He said his main reas...
by Ellephant
Tue Oct 08, 2013 3:19 pm
Forum: Prescription Medications
Topic: Raising Ferretin Levels
Replies: 7
Views: 1228

Re: Raising Ferretin Levels

No, I don't think that my doctor is very well-versed. She is the one who wants to start me on a DA and I'm like but.... but my ferritin is 30.
by Ellephant
Tue Oct 08, 2013 4:19 am
Forum: Prescription Medications
Topic: Raising Ferretin Levels
Replies: 7
Views: 1228

Re: Raising Ferretin Levels

Sorry for my ignorance, but what is an iron infusion? Is that a shot? (if so, is it worth trying to get one to prevent augmentation?)
by Ellephant
Tue Oct 08, 2013 12:47 am
Forum: Prescription Medications
Topic: Raising Ferretin Levels
Replies: 7
Views: 1228

Raising Ferretin Levels

Is it possible to do through supplementation? I just got my reports and my serum ferretin is way too low to be a proper DA candidate, but unfortunately my doctors thought that would be my best treament option, prior to this discovery. I think I had read somewhere that taking ferrous sulphate with vi...

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