Search found 9 matches

by Nikita
Wed Oct 23, 2013 12:02 pm
Forum: General Topics: RLS/WED
Topic: Iron/Ferritin Test Results
Replies: 9
Views: 1172

Re: Iron/Ferritin Test Results

Chipmunk, I totally understand your feeling that there has to be a unifying cause for all the problems! I have felt the same way. Seems like the more I try to look, the more I find wrong. However, do get all your medical records and try to organize them so you can have everything ready to support yo...
by Nikita
Tue Oct 22, 2013 12:10 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Re: Elevated Iron

And I am ever so grateful for those hours in college pouring over medical journals and reporting on them for my classes. I never imagined that I would be using them and understanding them now, especially when back then, we had to go to the medical libraries to get them!
by Nikita
Tue Oct 22, 2013 11:56 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Re: Elevated Iron

Image
YOU SO TOTALLY ROCK!

Thanks!
by Nikita
Tue Oct 22, 2013 1:24 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Re: Elevated Iron

Yeah, I didn't bring up hemochromatosis because I didn't test as a carrier for the C282Y. I am a carrier for the H63D chromosome, but that alone shouldn't be the cause. A little into that, the genetic testing only tests for the top three genetic mutations, and all are Caucasian. I am considered Cauc...
by Nikita
Mon Oct 21, 2013 2:18 pm
Forum: Everything Else...just no RLS/WED!
Topic: For when you are awake & need something to distract yourself
Replies: 4
Views: 2465

Re: For when you are awake & need something to distract your

LOL! Thanks! It was a distraction indeed...except I'm now late....
by Nikita
Mon Oct 21, 2013 1:53 pm
Forum: Physical Treatments
Topic: RLS and TENS... my story
Replies: 18
Views: 4607

Re: RLS and TENS... my story

I have a TENS style unit. I purchased it as a Groupon deal. I bought it when I anticipated an international flight (it's delayed, so I haven't been able to see if it provided relief from long flights) I talked to a vocational therapist and she said it is very important that people keep the placement...
by Nikita
Mon Oct 21, 2013 1:26 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Re: Elevated Iron

Honestly, no, I'm really confused! I have high stored iron, but not high iron in the blood. Red blood cells are usually normal and hemoglobin is low normal. A low iron diet is not well mapped out, a high iron diet is easy to get info on. I know what the recommended iron intake should be for a normal...
by Nikita
Thu Oct 17, 2013 1:55 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Re: Elevated Iron

OK, makes sense. Just wondered if a low iron diet could cause anemic conditions and increase the WED symptoms. I have Mirapex, I can compensate, but I didn't know if I should expect to adjust. I have found that the more I know, the better I can help the doctors put all the pieces together and we can...
by Nikita
Wed Oct 16, 2013 11:29 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Elevated Iron
Replies: 11
Views: 5451

Elevated Iron

Howzit gang! Brief history, My family has a strong hereditary link for RLS, going at least back to my grandmother and continuing to our kids. Recently, due to other issues, I had iron tested and the Ferritin level was 501. I did test positive as a H63D carrier, but that shouldn't be the cause. We ar...

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