Restless Legs Syndrome (RLS) Discussion Board

Good Evening, I hope this finds you all without Covid 19 problems. I am returning here to let you know that my mom passed on September 30, 2020. Up to her passing her RLS remained. She had many other complications of which combined were not treatable. She had Dementia which really went south in Janu...

Thanks so much! I will

... her doctor, in Montana, is now going to slowly take her off the Methadone and try something else. I am not sure what. I will meet with him when I go to Montana next week. I want to make sure he knows something about RLS.

Thanks,
Tammy

Hi All, It is now 2019 an update on my mom. She has been on Methadone since May of 2014. The good is the RLS is gone or controlled and hiding. The bad the Methadone makes her very very sleepy, her teeth are not good and if she is late on a dose she is frantic. She has had another knee partial replac...

Good Evening, I talked with my mom tonight. Her new medicine is working well for her RLS. (She is taking Methadone twice a day, Celebrex, Hormone therapy.). She is on a breathing mask at night which has helped tremendously. She is having bone pain, I'm not sure if it is a side effect. I couldn't fin...

Hello, it's been quite awhile since I have posted on here. I wanted to give you an update on my dear mother. I had been reading lots of blogs and reports on WED/RLS. In March I talked with Susan at RLS.org, Southern California RLS Support Group, she told me about Dr. Mark Buchfuhrer and his extensiv...

Hi Ann,
Yes, I did find the specialist on this site. We will keep that in mind when we make the appointment. We will have a list of questions and also find out how long they have been treating WED patients etc..

Thank you so much for your input. I like your thought about starting over but will make sure she does under the supervision of her current or a new RLS specialist. One day at a time!

Hello and thank you for the welcome! I found this site to do some research for my dear mom who lives 1300 miles from me, wish I had a Lear jet! She is 72 and has suffered from this awful RLS for many years. A little history; as long as I can remember she has always had what she called "happy le...