Search found 443 matches

by Frunobulax
Thu Sep 04, 2014 5:15 pm
Forum: Prescription Medications
Topic: Augmentation and mood swings
Replies: 16
Views: 2478

Re: Augmentation and mood swings

Stopping a dopamine agonist abruptly from a high dose (high dose may be key) caused me to develop an odd variant of synesthesia, where the brain glitches and mixes the senses. [...] This sounds pretty bad. I'm not saying that cold turkey is the way to go. I think this is an open topic, and we have ...
by Frunobulax
Thu Sep 04, 2014 5:11 pm
Forum: General Topics: RLS
Topic: Open question #1: Exercise and WED
Replies: 17
Views: 4026

Re: Open question #1: Exercise and WED

Yes, I though about something like that. As for the B12, my WED symptoms basically reverted back to previous severity, but the jury is still out on that (it's been only 2 months). So it is still a bit of a mystery why it helped in the first place. As for the exercise, it is very possible that the ex...
by Frunobulax
Wed Sep 03, 2014 9:57 am
Forum: General Topics: RLS
Topic: Open question #1: Exercise and WED
Replies: 17
Views: 4026

Re: Open question #1: Exercise and WED

I think it is an interesting read I have two thoughts about that. (1) There is a good chance that WED is not caused by a chemical imbalance. However, since we are not sure about this it would be foolish not to explore this option: If WED _does_ come from a chemical imbalance, then we may be able to ...
by Frunobulax
Tue Sep 02, 2014 3:01 pm
Forum: General Topics: RLS
Topic: Open question #1: Exercise and WED
Replies: 17
Views: 4026

Open question #1: Exercise and WED

Hi, if nobody objects I would like to post a number of questions where I think that answering them would help our understanding of WED. First question: A lot of WED patients report consistently that high-intensity exercise severely excarbates their WED symptoms, while moderate-intensity exercise hel...
by Frunobulax
Tue Sep 02, 2014 2:48 pm
Forum: General Topics: RLS
Topic: SEVEN Common Myths About Restless Legs Syndrome
Replies: 7
Views: 1255

Re: SEVEN Common Myths About Restless Legs Syndrome

Dwimble, there are a lot of good reasons why the connection between WED and inflammation should be explored in a scientific setting. And even though I strongly doubt that inflammation is the cause for _all_ WED, it may be responsible for a significant portion. Who knows? However, the way you're writ...
by Frunobulax
Tue Sep 02, 2014 1:39 pm
Forum: Prescription Medications
Topic: Augmentation and mood swings
Replies: 16
Views: 2478

Re: Augmentation and mood swings

Dr. Buchfuhrer mentioned that he prefers to stop his patients "cold turkey". So I guess he thinks that weaning dopamine agonists will just prolong the suffering. Clonazepam, in my experience, won't help with the WED symptoms - it will help only if you suffer from insomnia even though your ...
by Frunobulax
Sun Aug 24, 2014 5:05 pm
Forum: Prescription Medications
Topic: Lyrica - on its own - effective dose?
Replies: 10
Views: 2237

Re: Lyrica - on its own - effective dose?

Neco wrote:Yeah, I figured it was gonna be something like that.... ###### gov't scaring doctors into not prescribing sh**, even if its the other thing that actually worked :roll:


WED medication work different for each of us. Until you give it a try, you never know if it works well or not...
by Frunobulax
Sat Aug 23, 2014 5:36 pm
Forum: Prescription Medications
Topic: New member that needs advise
Replies: 3
Views: 678

Re: New member that needs advise

Think I posted in the wrong forum before, so here goes again. Trying to get off Mirapex .75mg. Been on Mirapex for over 10 years and it is so not working anymore. My doctor has me trying to half my dosage and supplement with Requip .25mg for a couple of days and then stopping Mirapex and just stayi...
by Frunobulax
Sat Aug 23, 2014 5:23 pm
Forum: Prescription Medications
Topic: Lyrica - on its own - effective dose?
Replies: 10
Views: 2237

Re: Lyrica - on its own - effective dose?

I was on Lyrica for a short time. Mild cases may respond to 50-75mg, once per evening. Over here doctors will usually go up to 450mg per day (maybe 150-150-150 or 100-150-200), but dosage should be increased slowly because they are severe side effects, including nausea, dizzyness, weight gain and de...
by Frunobulax
Wed Aug 20, 2014 6:29 pm
Forum: General Topics: RLS
Topic: Monitoring PLMS with a smartphone
Replies: 13
Views: 3222

Re: Monitoring PLMS with a smartphone

You might also want to try digging through any API/Android documentation; there has GOT to be an API call, or some way to write a callback to either ignore or bypass any screen state checks, I would think?? Well, without access to a phone running an old OS I can't even check it out But I've read th...
by Frunobulax
Wed Aug 20, 2014 9:34 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Podcast about RLS and Inflammation
Replies: 4
Views: 3268

Re: Podcast about RLS and Inflammation

Well, her suggests a pretty radical approach to nutrition. It would be interesting to have a study and see if it hels people, and to what degree. There is enough circumstantial evidence to merit a study, that's sure. Unfortunately no pharma company will be interested, so it may be difficult to get t...
by Frunobulax
Wed Aug 20, 2014 9:19 am
Forum: General Topics: RLS
Topic: Monitoring PLMS with a smartphone
Replies: 13
Views: 3222

Re: Monitoring PLMS with a smartphone

One can become obsessed with it, that's for sure So far I found that my PLMS highly correlates with WED symptoms. So if I'm having a hard time with WED, I tend to have a lot of PLMS. No big surprise here. But more surprising is that I have quite severe PLMS eposides (120 twitches per hour or more) w...
by Frunobulax
Mon Aug 18, 2014 4:38 pm
Forum: General Topics: RLS
Topic: Monitoring PLMS with a smartphone
Replies: 13
Views: 3222

Re: Monitoring PLMS with a smartphone

Well, I've cobbled together a simple android application doing just that. Nice! You didn't even mention that you were the nerd we were looking for! My phone runs 2.3 (dark ages) so I guess it's not worth trying. Well, I used to work as a software developer until a few years ago. I never did somethi...
by Frunobulax
Fri Aug 15, 2014 3:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: amino acids...
Replies: 61
Views: 27675

Re: amino acids...

Ann, I wonder if we should be more careful with our language, especially what we call "drugs", because the term has a definitive negative touch (at least over here) and people automatically associate it with illegal/recreational drugs. For some reason most people refer to opioids as "...
by Frunobulax
Fri Aug 15, 2014 6:56 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: amino acids...
Replies: 61
Views: 27675

Re: amino acids...

Tracy: Are you still on the Lyrica? What dose? I'm down to failing Horizant again.... yes new Neuro wanted m e to go back on Horizant after last Neuro ripped it from me because of depression that send me into a tailspin I'd never experienced before in my life. [...] Lyrica is used to treat anxiety....