Search found 443 matches

by Frunobulax
Thu Aug 14, 2014 9:04 am
Forum: General Topics: RLS
Topic: Mind won't relax/can't sleep
Replies: 21
Views: 2808

Re: Mind won't relax/can't sleep

Ok here is the short term sleep results of me using the following drugs: Melatonin 10 mg, Valerian Root 500 mg, L-Theanine 200 mg. Taken at 9 P.M. One each. I started taking Melatonin a few days ago. Even though it has no effect on my WED (no surprise), it does help me get sleepy. However, vitamin ...
by Frunobulax
Thu Aug 14, 2014 8:53 am
Forum: General Topics: RLS
Topic: Monitoring PLMS with a smartphone
Replies: 13
Views: 3222

Re: Monitoring PLMS with a smartphone

I am sure that all of us would be very interested to know just what goes on whlle we are sleeping. Well, I've cobbled together a simple android application doing just that. It will track movements and detect PLMS. It is highly experimental and I'm planning on adding some more features in the future...
by Frunobulax
Thu Aug 07, 2014 5:40 pm
Forum: Prescription Medications
Topic: Transitioning to new meds
Replies: 20
Views: 3146

Re: Transitioning to new meds

I have taken Requip or ropinerol since 2006 and was on 2mg 4x a day for 8mg a day. Also on gabapentin at 300 x 3 a day. I believe the side effects from the ropinerol piled up and resulted in hallucinations, swollen feet and ankles, weight gain of about 40 pounds increased heart rate and blood press...
by Frunobulax
Thu Aug 07, 2014 4:38 pm
Forum: General Topics: RLS
Topic: I'm back! ..... and scared
Replies: 112
Views: 17552

Re: I'm back! ..... and scared

I was diagnosed, this was my treatment, I've tried this and this and this, this treatment worked great for years and then this doctor came in and screwed it all up. Then acted like I was an addict when I went out of my way to try non-narcotic treatments again and they did not work. Some doctors ten...
by Frunobulax
Thu Aug 07, 2014 7:32 am
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

I have nothing to add, but want to thank all of you contributing to this thread. I am WAY in over my head, and will probably have to read this a dozen times more to BEGIN to follow it, but just wanted to say I appreciate your time and thoughts. With that said, I did gather that buying a bottle of B...
by Frunobulax
Wed Aug 06, 2014 10:58 am
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

I'm new to RLS and this discussion board and see that Fruno...(the most recent post) says that "most of us" experience the urge to move...so there are RLS sufferers who have the leg discomfort without the urge to move? I ask because I don't and am trying to figure out if I actually have R...
by Frunobulax
Tue Aug 05, 2014 8:40 am
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

Yes, ECT can have severe side effects, and I guess the way they used it 50 years ago was a little like medieval age doctors used to treat their patients (bleeding and such): They did the same to everybody regardless of the symptoms, and the therapy often did more damage than good. But I'm told we're...
by Frunobulax
Mon Aug 04, 2014 5:49 pm
Forum: General Topics: RLS
Topic: Wanted: "Brain chemistry for dummies"
Replies: 1
Views: 694

Wanted: "Brain chemistry for dummies"

Hi again, I wondered if there was a book out there that would explain the biochemical reactions in our brain (like, the cycles resulting in dopamine, GABA and melatonin production). Is there anything that one could simply order on amazon? It pains me that I have no reference to look up the things I'...
by Frunobulax
Mon Aug 04, 2014 5:42 pm
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

OK, no thoughts about that? I was wondering if ECT may help the more extreme cases among us, even if it is clearly something that shouldn't be prescribed lightly. OK, next day, next question. From taking vitamin B12 in high doses I clearly got a boost in my brain dopamine production, since I not onl...
by Frunobulax
Mon Aug 04, 2014 7:22 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Podcast about RLS and Inflammation
Replies: 4
Views: 3268

Re: Podcast about RLS and Inflammation

Is it his guy? http://www.rlcure.com/ His summary about things influencing dopamine levels http://www.rlcure.com/dopamine.html is comprehensive and well worth a read (especially since it is hard to find with google, so many of you will have missed that). OTOH, I fail to see the evidence about inflam...
by Frunobulax
Sun Aug 03, 2014 8:46 am
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

Well, one question at a time Question of the day (TM): Electroconvulsive therapy is suspected to increase neurotransmitter production, including dopamine and seratonine. Is there a relation to WED? Is our irresistable urge to move somehow related to the artificial cramps (or epileptic seizures) indu...
by Frunobulax
Tue Jul 29, 2014 3:36 am
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

We talked about that study a month or so ago when we first saw it. It just adds more confusion, if you ask me. There are just so many variables. Maybe if you spend a lot of time looking at each of them, you might find a pattern. I have missed this one - so much to read up. However, with that said, ...
by Frunobulax
Mon Jul 28, 2014 2:20 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Protein supplements/Artificial sweeteners
Replies: 13
Views: 5750

Re: Protein supplements/Artificial sweeteners

I have tried Tyrosine capsules too, doesn't work for me either. There are various protein shakes out there that contain a mix of amino acids, however, most contain artificial sweeteners and aromas. A few are pure protein powder, without any sweeteners or other supplements - just google "protein...
by Frunobulax
Mon Jul 28, 2014 12:30 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Co-enzyme Q10
Replies: 5
Views: 3642

Co-enzyme Q10

I heard a recommendation that Co-enzyme Q10 may help some RLS patients. The search function returned only few results - has anybody tried it? Did it do something?

Regards, .f
by Frunobulax
Mon Jul 28, 2014 12:14 pm
Forum: General Topics: RLS
Topic: Theories about WED
Replies: 27
Views: 4298

Re: Theories about WED

Here is one thing my doctor told me about. It might shed some light on this. "Peripheral hypoxia in restless legs syndrome (Willis-Ekbom disease)." Salminen, Rimpilä, Polo, appeared in "Neurology" this may. Restless Legs Syndrome: New Evidence of Peripheral Mechanism http://www.m...