Search found 102 matches

by Frunobulax
Mon Feb 12, 2018 8:56 pm
Forum: General Topics: RLS/WED
Topic: Thought: RLS and allergies/hypersensitivity
Replies: 1
Views: 43

Thought: RLS and allergies/hypersensitivity

After discussing a few things with my aunt, who is a doctor (but no RLS specialist), she brought up something that I also thought about on occasions: Do we know any connection between RLS and a hypersensitivity of the immune system? There are a lot of things that make RLS behave similar to an allerg...
by Frunobulax
Mon Feb 12, 2018 8:35 pm
Forum: General Topics: RLS/WED
Topic: Ice Cream
Replies: 13
Views: 216

Re: Ice Cream

It seems kind of sad to think of ice cream as a trigger. I consider this one of my few comfort foods. So far I haven't seen a difference in when I do enjoy ice cream and when I do without. Maybe not a trigger? I hope so! I don't eat that much when I have it, maybe a 1/2 cup. Triggers are different ...
by Frunobulax
Wed Feb 07, 2018 6:44 pm
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 325

Re: Starting At Emory

As for the Klonipin (aka Clonazepam), it is a benzodiazapine. And yes, the benzos are addicting. In fact, many report that they are even more difficult to get off of than the dopamine agonists, like pramipexole. I took Clonazepam and Alprazolam, and can confirm that it's not easy to get off them. A...
by Frunobulax
Sun Feb 04, 2018 10:02 pm
Forum: General Topics: RLS/WED
Topic: Skullcap and Valerian Bedtime Tea
Replies: 6
Views: 86

Re: Skullcap and Valerian Bedtime Tea

I don't know about Skullcap, but Valerian did nothing for me - it increased drowsiness, but didn't help against the urge to move. Still, I'm one of the people who tries everything he gets his hands on though. If I was in your place I'd try it for a limited time (maybe 2 weeks), starting with a rathe...
by Frunobulax
Sun Feb 04, 2018 9:47 pm
Forum: Prescription Medications
Topic: Requip Withdrawal Time and Tramadol effective time?
Replies: 6
Views: 99

Re: Requip Withdrawal Time and Tramadol effective time?

There are dopamine agonist withdrawal symptoms. It's unclear if tapering helps, but I'd still suggest tapering, as my withdrawal from Pramipexole was gruelsome.
by Frunobulax
Mon Jan 30, 2017 9:50 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Golden root (Rhodiola rosea)
Replies: 9
Views: 1663

Re: Golden root (Rhodiola rosea)

Pretty much. I take 400mg folic acid daily, 100mg B6 3-4 every other day, and B12 a 2mg dose (sublingual) twice a week. I tried higher doses but they didn't do anything for me.
by Frunobulax
Mon Jan 30, 2017 8:38 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Golden root (Rhodiola rosea)
Replies: 9
Views: 1663

Re: Golden root (Rhodiola rosea)

Vitamin B6, Vitamin B12 and folic acid. All required for homocysteine metabolism. Been taking a bit magnesium too, but I'm not sure if that has any effect on my RLS, I'm taking it mainly because I bought something like 300 tablets in a bargain offer and will continue to use them until they're gone :)
by Frunobulax
Mon Dec 12, 2016 8:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Golden root (Rhodiola rosea)
Replies: 9
Views: 1663

Re: Golden root (Rhodiola rosea)

Absolutely. And if it's placebo effect, I'll take this as well :)
Mind you, I don't think it is. I tried like a gazillion different things, and only 4 (including golden root) made a difference so far - I've been taking the other three religiously for years now.
by Frunobulax
Mon Dec 12, 2016 4:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Golden root (Rhodiola rosea)
Replies: 9
Views: 1663

Re: Golden root (Rhodiola rosea)

I gave it a try. Having some experience with RLS remedies, I waited some time before reporting back here... Summary: Golden root seems to help noticably with my depressions, and to enhance my sleep quality a bit. The details: My current situation is/was that the urge to move is pretty well controlle...
by Frunobulax
Thu Nov 03, 2016 9:30 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Golden root (Rhodiola rosea)
Replies: 9
Views: 1663

Golden root (Rhodiola rosea)

Hi, I recently stumbled upon golden root https://en.wikipedia.org/wiki/Rhodiola_rosea . It seems to be a traditional russian medicine against depression and other dopamine related problems. It is supposed to be quite effective in cases where the dopamine system gets disturbed, for example for people...
by Frunobulax
Tue Sep 01, 2015 8:22 am
Forum: General Topics: RLS/WED
Topic: Help me to sort this out: Histamines, PPIs and gastric acid
Replies: 17
Views: 822

Re: Help me to sort this out: Histamines, PPIs and gastric a

I have often wished we could get a few physicians to join us in these discussions. Everyone bringing a different perspective. Well, I sent a few questions to two researchers in Germany (Trenkwalder and Oertel). They both answered basically that they were over their heads in research and have no tim...
by Frunobulax
Mon Aug 31, 2015 8:12 pm
Forum: General Topics: RLS/WED
Topic: Help me to sort this out: Histamines, PPIs and gastric acid
Replies: 17
Views: 822

Re: Help me to sort this out: Histamines, PPIs and gastric a

Forgive my rambling reply. I strongly prefer rambling replies over silence :) This is how my thoughts went: Anti-histamines are bad for us. So I thought that histamines ought to be good for us, and anything that interfered with their action, such as histamine receptor antagonists, would be bad for ...
by Frunobulax
Tue Aug 18, 2015 10:07 pm
Forum: Prescription Medications
Topic: RLS and Clonazepam
Replies: 9
Views: 737

Re: RLS and Clonazepam

I am wondering if anyone has gone through clonazepam withdrawal. [...] I have. I was on Clonazepam for max. 1mg a day for maybe 3 weeks. Didn't really help with my RLS. My doctor claims that Clonazepam makes you sleep deeper, so you basically use your sleep time more efficiently. Couldn't find more...
by Frunobulax
Tue Aug 18, 2015 2:00 pm
Forum: General Topics: RLS/WED
Topic: Help me to sort this out: Histamines, PPIs and gastric acid
Replies: 17
Views: 822

Help me to sort this out: Histamines, PPIs and gastric acid

Hi, I'm trying to sort this out but I'm not sure I understand it correctly. And my brain hurts :) In the last Nightwalkers publication there is an article that H3 receptor antagonists may be helpful for reducing RLS symptoms. Now, I have wondered for quite some time if my proton-pump inhibitor thera...
by Frunobulax
Fri Mar 13, 2015 2:10 pm
Forum: Just Joined?
Topic: RLS diagnosis
Replies: 12
Views: 1023

Re: RLS diagnosis

I tried Horizant 300 mg dose last night and then took 1/2 HCTZ/Triamterene water pill this AM and latter broke out with hives in legs. What to do now as I don't have any solution and have never taken dopamine class drugs due to potential augmentation. What else should I try? A single dose of a dopa...

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