Search found 186 matches

by sleepdancer2
Fri Sep 07, 2018 6:48 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 28
Views: 1028

Re: RLS Foundation hosting a Patient Symposium

@ViewsAskew Do you live in LA now? I hear you about it being hard to plan. @Rustsmith I think I would thoroughly enjoy this meeting. The interactions you describe appeal to me a lot. I have always wished more doctors could know a couple things about my journey, as it could possibly help someone some...
by sleepdancer2
Sun Sep 02, 2018 8:53 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 417
Views: 96627

Re: Published Research - General Sleep and RLS (WED)

Rustsmith wrote: use of TNS to study RLS

I'm having a "duh" moment. What is TNS?
by sleepdancer2
Sun Sep 02, 2018 8:46 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 28
Views: 1028

Re: RLS Foundation hosting a Patient Symposium

Anyone in Los Angeles making the 2+ hour drive down?
by sleepdancer2
Mon Aug 06, 2018 7:10 am
Forum: General Topics: RLS/WED
Topic: Sleeping position relating to RLS symptoms
Replies: 6
Views: 346

Re: Sleeping position relating to RLS symptoms

I find sleeping on my back optimal for rls symptom reduction. If I lie on my sides it can induce an attack. Lying on my front is occasionally helpful during an attack but I rarely choose to sleep that way. Unfortunately sleeping on my back exacerbates my snoring and, according to my sleep study, my...
by sleepdancer2
Tue Jul 31, 2018 8:01 am
Forum: Augmentation
Topic: 15 years is way too long
Replies: 36
Views: 2143

Re: 15 years is way too long

sleepdancer2..Yes that is very useful info. Sounds like its best to take it on an empty stomach. That was my dilemma. On an empty stomach it made me nauseous, so having some carbs with the med was helpful. I looked it up on what to avoid and saw it was proteins. Lots of good info on using that med ...
by sleepdancer2
Mon Jul 30, 2018 9:35 am
Forum: Augmentation
Topic: 15 years is way too long
Replies: 36
Views: 2143

Re: 15 years is way too long

Sinemet was the first drug I was put on after diagnosis in 1998. I was on it a few years before a different doctor told me it should be the last resort, not first. To the best of my memory, he said the agonists prompt the body to work but that Sinemet is a replacement and should be reserved for when...
by sleepdancer2
Mon Jul 23, 2018 9:25 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 20233

Re: Latest on TENS Unit Use for Nighttime Symptoms

Please do let us know if the placement on either side of the lower spine has any effect for you. I would love to have a quality TENS and really get into all the bells and whistles. On second thought, that would probably be wasted on me. lol I'm so basic.
by sleepdancer2
Mon Jul 23, 2018 9:18 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Niacin 100mg.
Replies: 9
Views: 433

Re: Niacin 100mg.

A few things that have been mentioned caught my attention. First, you mentioned your arm "flailing". Sounds more like PLMD to me. Not only that, but the only time I could describe my limb movements as flailing was when I was experiencing augmentation on a dopamine agonist. Aside from then,...
by sleepdancer2
Thu Jul 19, 2018 7:51 am
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 6
Views: 409

Re: no prescription for ropinirol

Are you already off the med? Not sure what dosage you are taking, but if you were on a higher dose, and I'm thinking especially since you've been on it so long, I would hope there would be a weaning instead of cold turkey. My cold turkey stop from a higher dose turned out to be problematic. Not ever...
by sleepdancer2
Sun Jul 08, 2018 7:06 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 20233

Re: Latest on TENS Unit Use for Nighttime Symptoms

Before I knew my diagnosis, I just knew my sleep was incredibly fragmented, that I changed positions constantly, and my bed covers looked like there had been a wrestling match in it overnight. After I was diagnosed I became more aware, realizing that when I woke "changing positions" I was ...
by sleepdancer2
Sat Jun 30, 2018 10:45 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 20233

Update on TENS Unit Use for Nighttime Symptoms

Looks like those neurons aren't totally gone yet. In late December life took a turn when family members were in a bad auto accident and I was staying out of state for 3 months to help during the early stages of their recovery. The stress of the situation was high - it was my job to be the strong one...
by sleepdancer2
Wed Jun 27, 2018 10:58 am
Forum: Augmentation
Topic: Brain chemistry or pathways and dopamine agonists
Replies: 5
Views: 700

Re: Brain chemistry or pathways and dopamine agonists

I looked around a bit on the PubMed site to see if I could find any related studies. Admittedly didn't spend a lot of time, but the only related topics I could find were about DAWS (Dopamine Agonist Withdrawal Syndrome) and one mentioned that a small percentage of people have a continued need for th...
by sleepdancer2
Sat Jun 16, 2018 9:02 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 566

Re: Hello from Kentucky

I hear Seattle is a beautiful place. I'm in southern California. About the TENS, most pharmacies sell them and I've seen some gadgets where the pads snap on I think. Maybe not the most economical version, but may be worth it for a trial and a trip. It seemed to me the effect is accumulative, so gett...
by sleepdancer2
Thu Jun 14, 2018 8:43 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 566

Re: Hello from Kentucky

I put the electrodes on my lower back (buttocks) as prescribed for low back pain. The sensations seem to interrupt some of the signals as they pass through that area. I've don't have a lot of experience with putting the electrodes on the affected areas, but putting the patches on my legs and feet pu...
by sleepdancer2
Sat Jun 09, 2018 9:23 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 566

Re: Hello from Kentucky

You might want to give using a TENS Unit a try. Some don't find it helpful. I do. Enough that I've been able to be off meds for about 7 years now. If you decide to try it, I would suggest getting just a cheap one to try it out as it will do as much as the high end ones with all the bells and whistle...

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