Search found 183 matches

by sleepdancer2
Mon Aug 06, 2018 7:10 am
Forum: General Topics: RLS/WED
Topic: Sleeping position relating to RLS symptoms
Replies: 6
Views: 151

Re: Sleeping position relating to RLS symptoms

I find sleeping on my back optimal for rls symptom reduction. If I lie on my sides it can induce an attack. Lying on my front is occasionally helpful during an attack but I rarely choose to sleep that way. Unfortunately sleeping on my back exacerbates my snoring and, according to my sleep study, my...
by sleepdancer2
Tue Jul 31, 2018 8:01 am
Forum: Augmentation
Topic: 15 years is way too long
Replies: 35
Views: 782

Re: 15 years is way too long

sleepdancer2..Yes that is very useful info. Sounds like its best to take it on an empty stomach. That was my dilemma. On an empty stomach it made me nauseous, so having some carbs with the med was helpful. I looked it up on what to avoid and saw it was proteins. Lots of good info on using that med ...
by sleepdancer2
Mon Jul 30, 2018 9:35 am
Forum: Augmentation
Topic: 15 years is way too long
Replies: 35
Views: 782

Re: 15 years is way too long

Sinemet was the first drug I was put on after diagnosis in 1998. I was on it a few years before a different doctor told me it should be the last resort, not first. To the best of my memory, he said the agonists prompt the body to work but that Sinemet is a replacement and should be reserved for when...
by sleepdancer2
Mon Jul 23, 2018 9:25 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 19332

Re: Latest on TENS Unit Use for Nighttime Symptoms

Please do let us know if the placement on either side of the lower spine has any effect for you. I would love to have a quality TENS and really get into all the bells and whistles. On second thought, that would probably be wasted on me. lol I'm so basic.
by sleepdancer2
Mon Jul 23, 2018 9:18 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Niacin 100mg.
Replies: 9
Views: 237

Re: Niacin 100mg.

A few things that have been mentioned caught my attention. First, you mentioned your arm "flailing". Sounds more like PLMD to me. Not only that, but the only time I could describe my limb movements as flailing was when I was experiencing augmentation on a dopamine agonist. Aside from then,...
by sleepdancer2
Thu Jul 19, 2018 7:51 am
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 6
Views: 220

Re: no prescription for ropinirol

Are you already off the med? Not sure what dosage you are taking, but if you were on a higher dose, and I'm thinking especially since you've been on it so long, I would hope there would be a weaning instead of cold turkey. My cold turkey stop from a higher dose turned out to be problematic. Not ever...
by sleepdancer2
Sun Jul 08, 2018 7:06 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 19332

Re: Latest on TENS Unit Use for Nighttime Symptoms

Before I knew my diagnosis, I just knew my sleep was incredibly fragmented, that I changed positions constantly, and my bed covers looked like there had been a wrestling match in it overnight. After I was diagnosed I became more aware, realizing that when I woke "changing positions" I was ...
by sleepdancer2
Sat Jun 30, 2018 10:45 am
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 19332

Update on TENS Unit Use for Nighttime Symptoms

Looks like those neurons aren't totally gone yet. In late December life took a turn when family members were in a bad auto accident and I was staying out of state for 3 months to help during the early stages of their recovery. The stress of the situation was high - it was my job to be the strong one...
by sleepdancer2
Wed Jun 27, 2018 10:58 am
Forum: Augmentation
Topic: Brain chemistry or pathways and dopamine agonists
Replies: 5
Views: 532

Re: Brain chemistry or pathways and dopamine agonists

I looked around a bit on the PubMed site to see if I could find any related studies. Admittedly didn't spend a lot of time, but the only related topics I could find were about DAWS (Dopamine Agonist Withdrawal Syndrome) and one mentioned that a small percentage of people have a continued need for th...
by sleepdancer2
Sat Jun 16, 2018 9:02 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 376

Re: Hello from Kentucky

I hear Seattle is a beautiful place. I'm in southern California. About the TENS, most pharmacies sell them and I've seen some gadgets where the pads snap on I think. Maybe not the most economical version, but may be worth it for a trial and a trip. It seemed to me the effect is accumulative, so gett...
by sleepdancer2
Thu Jun 14, 2018 8:43 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 376

Re: Hello from Kentucky

I put the electrodes on my lower back (buttocks) as prescribed for low back pain. The sensations seem to interrupt some of the signals as they pass through that area. I've don't have a lot of experience with putting the electrodes on the affected areas, but putting the patches on my legs and feet pu...
by sleepdancer2
Sat Jun 09, 2018 9:23 am
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 376

Re: Hello from Kentucky

You might want to give using a TENS Unit a try. Some don't find it helpful. I do. Enough that I've been able to be off meds for about 7 years now. If you decide to try it, I would suggest getting just a cheap one to try it out as it will do as much as the high end ones with all the bells and whistle...
by sleepdancer2
Wed May 30, 2018 9:53 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 27
Views: 1010

Re: Introducing myself

I am not knowledgeable enough about the specifics of weaning to have a meaningful opinion about your doctor's prescribed schedule. I do have firsthand knowledge with stopping abruptly and it causing neurological issues that turned out to be permanent. Your doc may prefer to err on the side of cautio...
by sleepdancer2
Sun Apr 15, 2018 5:33 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Light Bulb Moment Regarding Advising Iron
Replies: 1
Views: 518

Light Bulb Moment Regarding Advising Iron

A discussion today caused me to rethink my ever-ready advice to check one's ferritin level and take iron to get it up. Not once did it cross my mind to include a disclaimer. A 60 yo acquaintance with MSA, or Multiple Systems Atrophy, was just diagnosed with Thalassemia. It is a hereditary blood diso...
by sleepdancer2
Mon Apr 09, 2018 6:46 am
Forum: Just Joined?
Topic: Just joined
Replies: 18
Views: 1283

Re: Just joined

Hi. Glad you found your way here. Some of the people here are so very informed on the options for treatment and generous in sharing. Agreeing with all those expressing concern over your dosage of medication. When people are on a low dose, stopping may not be a problem. But at your dose, I'd recommen...

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