Search found 222 matches

by sleepdancer2
Sat Feb 24, 2024 11:56 am
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 28
Views: 1133

Re: Reversing Restless Leg Syndrome

Thanks Rustsmith for the prompt to do some reading and see what I can learn. I wasn't aware of discussion of permanent damage with augmentation. Will I find those discussions on PubMed or can you point me in the right direction? I'll go check to see if any of that info is already posted here. This p...
by sleepdancer2
Wed Feb 21, 2024 9:23 am
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 28
Views: 1133

Re: Reversing Restless Leg Syndrome

Just want to co-sign the advice to wean. You may find some doctors don't take it seriously, but stand your ground. I stopped abruptly once about 15 years ago and some of the effects proved permanent. Once I got off meds after augmentation I did not have the luck of my RLS/PLMD resetting back to prea...
by sleepdancer2
Thu Feb 02, 2023 12:36 pm
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 15545

Re: Spinal Cord & DRG Stimulator Trial

I've read where some people put the electrodes on their legs, I guess on trigger points. I didn't have any luck with that. Just seemed to set off my nerves worse. Maybe if I'd had professional instruction it would have helped. At any rate, I found when I put the electrodes on my lower back (buttocks...
by sleepdancer2
Sun Mar 20, 2022 11:12 am
Forum: Just Joined?
Topic: Decades of RLS getting worse
Replies: 17
Views: 17161

Re: Decades of RLS getting worse

I love hearing your story, sleepdancer2. Gives me hope every time. Thank you! Sometimes I feel bad about saying anything because so many have not found relief, but I just hope with everyone's input, there will be enough info to glean from that others might be helped. The info on this site taught me...
by sleepdancer2
Tue Mar 15, 2022 12:30 pm
Forum: Just Joined?
Topic: Decades of RLS getting worse
Replies: 17
Views: 17161

Re: Decades of RLS getting worse

How well I remember days and nights like you describe. It was a long haul getting to a place of better sleep, but I got there. I'll share a few things that helped me, just in case you can glean something that helps you. Glad to hear you are not also going to have to address augmentation on a dopamin...
by sleepdancer2
Mon Sep 13, 2021 8:45 am
Forum: Physical Treatments
Topic: MUSIC / FRISSON
Replies: 11
Views: 10324

Re: MUSIC / FRISSON

I have a theory about the old music, at least as to how it relates to my periodic limb movements. When I started using a TENS Unit on my lower back for my legs, I realized that even if my legs weren't repetitively jerking, my brain was still like a stuck record with a phrase repeating over and over ...
by sleepdancer2
Mon Sep 13, 2021 8:40 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 98
Views: 67538

Re: Spinal Stimulator

Deb, it's good to hear that you are getting such an impressive degree of relief.
by sleepdancer2
Tue Jun 29, 2021 10:36 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 98
Views: 67538

Re: Spinal Stimulator

Hi Deb. Hadn't visited the forum for a while and was excited to see this thread. I know how precious any degree of relief and good sleep is. Hope your relief becomes even more sustained. You have certainly paid your dues.
by sleepdancer2
Wed Oct 21, 2020 10:29 am
Forum: Just Joined?
Topic: New member and need help with DAWS
Replies: 9
Views: 7057

Re: New member and need help with DAWS

Hi. Haven't been on the board in a while, just saw your post. Not familiar with what all DAWS entails, just know if it's worse than the period of going of a dopamine agonist after augmentation, my heart goes out to you. One time, if I remember correctly, I was on about the same dose as you and quit ...
by sleepdancer2
Tue Jan 28, 2020 7:39 am
Forum: Physical Treatments
Topic: TENS placement for RLS
Replies: 2
Views: 7845

Re: TENS placement for RLS

Just read this after answering your PM. Without digging up my 10 year old journals I can't say if I ever tried this exact configuration. Just based on the theories of how TENS works this seems reasonable to me. Wouldn't hurt to try, but try everything for a long enough period to be reasonably certai...
by sleepdancer2
Tue Oct 22, 2019 3:31 am
Forum: Physical Treatments
Topic: How to be a guinea pig?
Replies: 9
Views: 5802

Re: How to be a guinea pig?

Certainly understand your willingness to "take one for the team". Years ago my sleep doc sent me to a movement disorder specialist for my periodic limb movements and he presented my case at a big neuro conference. Sadly, because my symptoms didn't fit within known boxes (turned out to be augmentatio...
by sleepdancer2
Fri Sep 27, 2019 11:08 am
Forum: General Topics: RLS
Topic: Interesting correlation between knee injections and PLMD
Replies: 3
Views: 1810

Interesting correlation between knee injections and PLMD

If any here are familiar with my story, you know that I treat my periodic limb movements with a TENS Unit. As the years have passed my degree of "healing" is such that I can skip nights without using the TENS, although those nights are few in a row and largely unpredictable. When it's going to be a ...
by sleepdancer2
Thu Sep 26, 2019 7:16 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: A BIG what if
Replies: 15
Views: 16844

Re: A BIG what if

Interesting question. There's been lots of discussion on here about meds that can either exacerbate RLS or maybe even cause it as a side effect. If you are augmenting on Mirapex, that sounds to me like twice the agony if there are two contributors. Unfortunately the only way to answer those question...
by sleepdancer2
Wed Sep 25, 2019 9:23 am
Forum: Just Joined?
Topic: Tightening in calf
Replies: 10
Views: 2277

Re: Tightening in calf

I just joined this forum because I was looking for help with exactly this topic. I take Gabapentin and don't usually have the legs flopping that I used to have and the quality of my sleep has improved. But my legs are often so sore when I wake up. And my calfs are always tight. If I'm cramping in t...
by sleepdancer2
Wed Sep 25, 2019 9:11 am
Forum: Just Joined?
Topic: How do you hold down a job?
Replies: 15
Views: 3558

Re: How do you hold down a job?

Hi Taco Bill. Please know that many of us have been at prolonged low points (mine was several years) and feeling beyond dejected at the changes in our lives. In retrospect, augmentation and the post augmentation period was the worst. It can be a journey figuring out what things might help us. My doc...