Search found 11 matches

by Suckerbeagle
Mon Nov 23, 2015 11:14 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 722
Views: 50869

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Ran out of meds one day early. In for a horrendous night. There are legit reason why I ran out. Seems no one can help me.why are we treated like drug-seeking criminals when stuff like this happens. It's the first time for me after ten years on the medication. I have to get through the night until 9a...
by Suckerbeagle
Fri Nov 20, 2015 7:15 am
Forum: General Topics: RLS/WED
Topic: Anyone awake?
Replies: 3
Views: 283

Anyone awake?

Oick! Is anyone awake? For quite a while I've been experiencing pretty bad inflammation in my arthritic knees. Finally! My orth doc gave me shots and I'm hugely better. But. I have been largely inactive for quite a while and after the shots was told to stay off the legs for 48 hours. Guess how much ...
by Suckerbeagle
Wed Jul 23, 2014 10:10 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 118
Views: 42514

Re: Who is your favorite doctor?

I'm going to be moving to Portland Maine next year. Anyone know of a good WED doctor in that vicinity?
by Suckerbeagle
Wed Jul 23, 2014 10:03 pm
Forum: General Topics: RLS/WED
Topic: Who is your favorite doctor?
Replies: 118
Views: 42514

Re: Who is your favorite doctor?

In Boston it's Dr. Betsy Sherry at Mount Auburn Hospital. She's the greatest. In New Mexico, where I am now it's Dr. Michael Baten in Santa Fe. Both of these docs are neurologists who specialize in WED. We need these doctors because they can prescribe the meds we need and work with us on finding wha...
by Suckerbeagle
Wed Jul 23, 2014 8:54 pm
Forum: General Topics: RLS/WED
Topic: Fired my doctor today
Replies: 18
Views: 1782

Re: Fired my doctor today

OMG! I had to fire a doctor too. It was horrible. I moved from Boston to New Mexico and got a sleep medicine doctor instead of a neurologist who specializes in WED. This character kept trying to treat me for sleep apnea which I do not have. He threatened me about losing weight. Said he was going to ...
by Suckerbeagle
Wed Jul 23, 2014 8:37 pm
Forum: General Topics: RLS/WED
Topic: I think I am in remission
Replies: 7
Views: 1573

I think I am in remission

This happened once before years ago. It lasted about two weeks or so. Has anyone else experienced this? I feel great but disoriented since I'm used to monitoring my body 24/7. It's sort of like the hiccups when they stop;you're sitting there waiting...
by Suckerbeagle
Mon Jul 21, 2014 10:17 pm
Forum: Prescription Medications
Topic: Opoids + OTC pain meds
Replies: 7
Views: 1126

Re: Opoids + OTC pain meds

Has anyone else noticed that opoids + Tylenol (Percocet, for instance) are less effective than opoids alone? For me, also, more than 3 doses of Tylenol in succession can aggravate symptoms; same is true for any other OTC pain meds! Especially bothersome were the older versions of sleep aids contain...
by Suckerbeagle
Mon Jul 21, 2014 10:11 pm
Forum: Prescription Medications
Topic: anyone's meds have worked 5 years or more?
Replies: 27
Views: 3164

Re: anyone's meds have worked 5 years or more?

Oh, it definitely keeps me up! I've found a semi solution, but it wouldn't work for anyone who has a job they must show up at during regular hours! I kept staying up later - I was always alert in the 10 PM to 3 or 4 AM timeframe. I'd been going to sleep between 5 and 8 AM in the past year or so. Re...
by Suckerbeagle
Fri Jul 18, 2014 11:21 pm
Forum: Just Joined?
Topic: New to this site, July 18th 2014
Replies: 9
Views: 1423

Re: New to this site, July 18th 2014

Thankfully I did find an excellent neurologist in Santa Fe, an hour away but worth it. I am on gabapentin, clonazapam at night, but hydrocodone is what is saving my life. It works and it works fast. I tolerate it very well. I feel so very fortunate for myself when I read about the horrible suffering...
by Suckerbeagle
Fri Jul 18, 2014 10:48 pm
Forum: Help for Relationships
Topic: Ruined Relationships
Replies: 34
Views: 16669

Re: Ruined Relationships

Thanks rthom. I'm up and down with my moods. Actually I'm up most of the time. What worries me is my relationship with my daughter. It's pretty much ruined. As far as the other relationships are concerned I have made amends and moved on. With her it's not that simple. I've done everything that I ca...
by Suckerbeagle
Fri Jul 18, 2014 10:27 pm
Forum: Just Joined?
Topic: New to this site, July 18th 2014
Replies: 9
Views: 1423

New to this site, July 18th 2014

Hoping to not feel so alone. Moved from Boston to New Mexico and had an awful time finding the right doctor. I have never lived near a support group so I hope this will be my new WED home. Cheers to all.

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